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Comments (821)

Thank you very much for your interest. We currently have a N.Y. Presbyterian Hospital-Columbia & Cornell...

https://connect.mayoclinic.org/comment/761973/

only way to tell if my husband has CIDP

Discussion: Need to find out what's wrong with me

Support Group: Autoimmune Diseases

Posted: Oct 16, 2022

What works for me is getting IVIG regularly. My neurologist, who has a splendid reputation and...

https://connect.mayoclinic.org/comment/219635/

splendid reputation and specializes in CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Jan 15, 2020

I’m impressed that you got a diagnosis for something so rare in just a year! The...

https://connect.mayoclinic.org/comment/1123539/

just starting Rituxan infusions for CIDP

Discussion: May have undiagnosed autoimmune disease

Support Group: Autoimmune Diseases

Posted: Aug 14 10:33am

I have chronic inflammatory demyelinating polyneuropathy (CIDP), an incurable autoimmune disease that destroys the nerves in...

https://connect.mayoclinic.org/comment/93002/

inflammatory demyelinating polyneuropathy (CIDP

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jan 14, 2020

I was diagnosed last August with Guillain Barre Syndrome following a Covid infection and subsequently diagnosed...

https://connect.mayoclinic.org/comment/1072523/

infection and subsequently diagnosed with CIDP ... The CIDP symptoms had been going on

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: May 22 1:57am

I made a post about it months ago after my neurologist brought it up to me....

https://connect.mayoclinic.org/comment/1143238/

fda-approves-treatment-chronic-inflammatory-demyelinating-polyneuropathy-cidp-adults

Discussion: Has anyone tried Vyvgart for CIDP?

Support Group: Autoimmune Diseases

Posted: Sep 17 10:41pm

One very overlooked cause, alcoholism. My husband saw several neurologists. One put him on medication for...

https://connect.mayoclinic.org/comment/818655/

Another gave him infusions for CIDP.

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Feb 28, 2023

My first spinal tap about 8 yrs ago showed that my protein level was 4x the...

https://connect.mayoclinic.org/comment/1021662/

I’ve been diagnosed with CIDP and tried

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 24 10:12am

Have to know what you have in order to treat it. I see my Blood Doc...

https://connect.mayoclinic.org/comment/1095414/

Here is another one, CIDP could have

Discussion: Rituxan for ITP

Support Group: Autoimmune Diseases

Posted: Jun 27 7:03pm

I have cidp. For 10 years it got progressively worse until I could not even button...

https://connect.mayoclinic.org/comment/591398/

I have cidp.

Discussion: CIDP and the Covid Vaccine

Support Group: Autoimmune Diseases

Posted: Apr 2, 2021

Hi Kim Sorry to hear that you also have been diagnosed with CIDP. I also have...

https://connect.mayoclinic.org/comment/805485/

you also have been diagnosed with CIDP ... neuropathy but the pathophysiology for CIDP ... GIB-CIDP.org is a great organization

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Feb 2, 2023

Hi jaymiier, I've had/have the same symptoms as you for 18+ months and will share a...

https://connect.mayoclinic.org/comment/855977/

new long covid symptoms while having CIDP ... It may be beneficial to review your CIDP

Discussion: Severe leg vibrations constantly

Support Group: Post-COVID Recovery & COVID-19

Posted: May 7, 2023

@foxauthor good morning. I have been diagnosed with CIDP but not all my doctors agree. Some...

https://connect.mayoclinic.org/comment/799565/

I have been diagnosed with CIDP but ... rural area and no one is familiar with CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jan 21, 2023

@church5x Welcome to Mayo Clinic Connect. I’m so glad you found us! Some autoimmune diseases are...

https://connect.mayoclinic.org/comment/1065631/

difficult to diagnose than others, CIDP ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: May 10 5:12pm

OMG...!!! I am not alone, in my disease! I was diagnosed with cidp in 2021, my...

https://connect.mayoclinic.org/comment/812058/

I was diagnosed with cidp in 2021, my ... DIAGNOSED WITH CIDP IN 2021... ... Began my cidp regimen, 5 days a week ... interested in listening to and exchanging cidp

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 15, 2023

What city and state do you reside in. Your symptoms sound very close to what I...

https://connect.mayoclinic.org/comment/871599/

https://www.gbs-cidp.org This is ... focuses on MS/ALS diagnosed me with CIDP

Discussion: Multiple Sclerosis (MS) - please introduce yourself

Support Group: Brain & Nervous System

Posted: Jun 3, 2023

I have been diagnosed with CIDP with DADSS. Tried IVIG but had bad reaction to this....

https://connect.mayoclinic.org/comment/945643/

I have been diagnosed with CIDP with