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507 total results
Comments (460)
Has anyone been prescribed a pill DONOZOL to be taken twice per day for Mylofibrosis? If...
https://connect.mayoclinic.org/comment/1131840/
DONOZOL to be taken twice per day for Mylofibrosis
My heart goes out to you Posted by mtnlife @mtnlife, 6 days ago. I don't know...
https://connect.mayoclinic.org/comment/802874/
they missed PV and Diagnosed with Myelobrosis
My brother-in-law died from multiple myeloma last year. My sister, her husband struggled with symptoms after...
https://connect.mayoclinic.org/comment/797572/
2020 but 2023 just diagnosed with Myelofribrosis
What do you mean they can't do much? That doesn't sound good at all! You need...
https://connect.mayoclinic.org/comment/1102499/
You need to go see a specialist for Mylofibrosis
Bone marrow biopsy is the only way to confirm Mylofibrosis. It diagnoses what level by measuring...
https://connect.mayoclinic.org/comment/929302/
biopsy is the only way to confirm Mylofibrosis
Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...
https://connect.mayoclinic.org/comment/890099/
then lung cancer…asked if they had a Mylofibrosis ... to city of hope since they have a Mylofibrosis
Wow, I am glad I kept checking till I saw all these reports on mylefibrosis. I...
https://connect.mayoclinic.org/comment/894079/
checking till I saw all these reports on mylefibrosis
What dietary changes did you make to help with myleofibrosis?
https://connect.mayoclinic.org/comment/854017/
changes did you make to help with myleofibrosis
Are you positive for JK2? I have PV with A positive JAK2 on hydrox for 2...
https://connect.mayoclinic.org/comment/1299114/
for 2 years it can easily move to mylofibrosis
I can relate to blindsided, I was diagnose with Primary myleofibrousis (anemic) in July 2023. I...
https://connect.mayoclinic.org/comment/1275379/
blindsided, I was diagnose with Primary myleofibrousis ... symptoms only related to Jakafi and myleofibrousis
@hklass, here a few different discussions on Connect that were started on different MDS subjects: -...
https://connect.mayoclinic.org/comment/254688/
melodysplastic-syndrome-unspecified-myelofibroisis
Oh thank you so much🙏. Wow 13 biopsies,What a great fierce fighter you are !❤️ Yeah...
https://connect.mayoclinic.org/comment/1022596/
or rule out PV,Myeloproiferative or Myelofiorosis
Hi @wellness3070, Unfortunately, research shows that muscle weakness can be one of the side effects; however,...
https://connect.mayoclinic.org/comment/132605/
Clinic, about treatment of anemia in myelofibrosisi
Has anybody had any eye issues with?myelofibrosi?
https://connect.mayoclinic.org/comment/1164296/
myelofibrosi?
I am sorry that you are not doing well . I have myelofibtosis and still on...
https://connect.mayoclinic.org/comment/1251826/
I have myelofibtosis and still on JAKAFI
I was recently diagnosed with Mylofibrosis also. My hematologist has recommended that I have a Stem...
https://connect.mayoclinic.org/comment/1103286/
I was recently diagnosed with Mylofibrosis
Thanks for sharing your story I was diagnosed at 39 and was put on HU and...
https://connect.mayoclinic.org/comment/1354755/
term affects of Anagrelide leading to Mylefibrosis
I was very hesitant to begin taking hydroxyurea when I was diagnosed with ET. At my...
https://connect.mayoclinic.org/comment/1277310/
hematologist suspected I had progressed to Myleofibrosis
I was just diagnosed in Sept. 2022 (Hospitalized Sept 22-30 due to cellulitis) My numbers were...
https://connect.mayoclinic.org/comment/795740/
bone marrow biopsy and diagnosed with Myelofribrosis
I had Polycythemia Vera almost 20 years. Was taking Hydrea and it was working for me....
https://connect.mayoclinic.org/comment/1114732/
Polycythemia Vera has now changed to Myelofbrosis
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