CIDP – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

963 total results

Comments (917)

Hello @mabelandlynne, @gsnmurthy, and @etohdr. I see that you each have recently joined Connect and wanted...

https://connect.mayoclinic.org/comment/824512/

--- Support and Resources - GBS/CIDP ... Foundation: https://www.gbs-cidp.org

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 11, 2023

I self infuse with subcutaneous IG injections, Hizentra, for CIDP. I was encouraged to switch by...

https://connect.mayoclinic.org/comment/1056978/

subcutaneous IG injections, Hizentra, for CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 25, 2024

My husband was given 5 IVIG treatments and although he had no reactions from them after...

https://connect.mayoclinic.org/comment/1283335/

diagnosis is wrong, he does not have CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Apr 16 12:31pm

I took it for 4 months last year but then I got shingles and my neurologist...

https://connect.mayoclinic.org/comment/1352662/

Syndrone, which is a derivitive of CIDP

Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?

Support Group: Autoimmune Diseases

Posted: Jul 20 4:15pm

New here and to the Mayo forum in general. I was first misdiagnosed in 2020 then...

https://connect.mayoclinic.org/comment/1034714/

2020 then properly diagnosed in 2021 CIDP ... Much much rarer than CIDP alone.

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 16, 2024

Trish There is a wonder GIB-CIDP Organization that has everything, research groups, support groups, education, meetings...

https://connect.mayoclinic.org/comment/800265/

Trish There is a wonder GIB-CIDP Organization ... The website is GIB-CIDP.org There

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jan 22, 2023

In my 4 years of trying to find help for my CIDP in Albuquerque NM those...

https://connect.mayoclinic.org/comment/1120161/

years of trying to find help for my CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Aug 8, 2024

After being diagnosed with CIDP my doctor suggested I try IVIG. I have the infusions every...

https://connect.mayoclinic.org/comment/1014685/

After being diagnosed with CIDP my doctor

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 12, 2024

Joe, you have been through so much with your PN. I have it too. Mine is...

https://connect.mayoclinic.org/comment/993322/

Mine is severe, caused by CIDP and MGUS

Discussion: Has anyone used Cymbalta for nerve pain?

Support Group: Chronic Pain

Posted: Jan 7, 2024

My MGUS levels are not a concern at this time, so they’re being watched by myhemotologist-oncologist....

https://connect.mayoclinic.org/comment/943824/

My CIDP is the issue for the most part

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

@jesfactsmon Thank you for checking on that. Maybe I heard the doctor wrong. But he did...

https://connect.mayoclinic.org/comment/99408/

But he did confirm the CIDP diagnosis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 15, 2020

I have just finished my second round of IVIG infusions, and I don’t feel any relief...

https://connect.mayoclinic.org/comment/238689/

I’m getting IVIG for CIDP.

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Nov 22, 2019

Find another doctor. Who does that!!!??!?! Have you had nerve pot muscles biopsy, evaluation CIDP or...

https://connect.mayoclinic.org/comment/1243590/

nerve pot muscles biopsy, evaluation CIDP

Discussion: Does anyone recognize these symptoms?

Support Group: Neuropathy

Posted: Feb 23 9:33am

@itsmeagain Jello and cement- quite familiar to me. Mostly cement and tingling these days (4yrs later)Ivig...

https://connect.mayoclinic.org/comment/1248754/

Diagnosed with CIDP 3yrs ago through

Discussion: Problems walking after covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 2 1:06pm

Also, I was diagnosed in 2014 (and did exactly what I stated above). After 10 years...

https://connect.mayoclinic.org/comment/1245981/

I will always have CIDP and their is

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Feb 26 12:47pm

Thank you for the information. I have not had am EMG but I'll ask about that...

https://connect.mayoclinic.org/comment/1077999/

I looked into CIDP and there are several ... hyperreflexia of tendons and with CIDP

Discussion: How common is it for radiologists to miss lesions in early MS?

Support Group: Brain & Nervous System

Posted: May 30, 2024

My diagnosis is CIDP basically. Numbness and tingling in my feet, unable to balance without a...

https://connect.mayoclinic.org/comment/979112/

My diagnosis is CIDP basically. ... meds and treatments that’s done for CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Dec 12, 2023

@harley22 Will this be your 2nd drug for CIDP? You know, it can take tries with...

https://connect.mayoclinic.org/comment/1091371/

harley22 Will this be your 2nd drug for CIDP

Discussion: Retuximab infusions

Support Group: Neuropathy

Posted: Jun 21, 2024

I take 2400 mg a day, half at night and half in the morning. I’m 5’10”...

https://connect.mayoclinic.org/comment/1039063/

I also have CIDP/A MSAN which should

Discussion: Osteoarthritis

Support Group: Bones, Joints & Muscles

Posted: Mar 23, 2024

Thank you for the articles and connection to others’ comments. I’m new here, so I wasn’t...

https://connect.mayoclinic.org/comment/1321383/

One year prior, I was diagnosed with CIDP ... detrimental than the first time with the CIDP

Discussion: CIDP and arachnoid cysts

Support Group: Autoimmune Diseases

Posted: Jun 6 8:27am