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861 total results

Comments (821)

HI, I'm Carrie . I was diagnosed with CIDP and Small Fiber Neuropathy about 2 1/2...

https://connect.mayoclinic.org/comment/156820/

I was diagnosed with CIDP and Small ... finding another neurologist expert in CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 26, 2018

Prednisone long term can cause steroid myopathy but I would urge you to consider other possibilities....

https://connect.mayoclinic.org/comment/1100066/

improving, I was then diagnosed with CIDP ... opposite I needed for my RA, SLE and CIDP

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jul 6 2:35am

@shariday, I add my welcome. You'll notice that I moved your message to this existing discussion...

https://connect.mayoclinic.org/comment/605999/

to this existing discussion about CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: May 31, 2021

I have a variant of CIDP and was getting IVIG infusions. They seemed to slow the...

https://connect.mayoclinic.org/comment/893033/

I have a variant of CIDP and was getting

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jul 10, 2023

Hello @suziep, welcome to Connect. Thank you for sharing the diagnoses you are facing with the...

https://connect.mayoclinic.org/comment/142339/

inflammatory demyelinating polyneuropathy (CIDP ... anyone on this feed been diagnosed with CIDP

Discussion: Inflammatory Neuropathy/Diabetic amyotrophy

Support Group: Neuropathy

Posted: Mar 9, 2017

IVIG therapy, steroids and immunotherapy, stem cell transplant along with plasma exchange is the treatment for...

https://connect.mayoclinic.org/comment/1060318/

plasma exchange is the treatment for CIDP ... (the doctors) want to test me for CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: May 1 12:03pm

Which one are you taking and how long have you taken it? The pharmacist said 4-6...

https://connect.mayoclinic.org/comment/1144656/

We are doing panzyga for CIDP and mmn

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Sep 20 2:10pm

I also had a rash. Neurologist panicked and sent me to a dermatologist. Turns out I...

https://connect.mayoclinic.org/comment/954799/

I've had CIDP since 1996.

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Oct 27, 2023

PS another blood test for MGUS should be done, a serum protein electrophoresis. It checks for...

https://connect.mayoclinic.org/comment/1046608/

My IVIG was denied for CIDP but approved

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 7 5:54am

I've left 3 messages with the doctor's office, no one has replied. My next appointment is...

https://connect.mayoclinic.org/comment/730422/

;m not 100% convinced that he has CIDP

Discussion: CIDP and concerns about treatment risk factors

Support Group: Neuropathy

Posted: Jul 25, 2022

Sorry for all you guys are going through. Ask if an EMG test might give insight...

https://connect.mayoclinic.org/comment/853807/

I have CIDP and the EMG confirmed it

Discussion: My wife has autoimmune disease. She has inflammation in legs and arms.

Support Group: Autoimmune Diseases

Posted: May 3, 2023

When I developed CIDP, I almost went crazy from the itching in my feet. It was...

https://connect.mayoclinic.org/comment/292669/

When I developed CIDP, I almost went

Discussion: Generalized Sensorimotor Peripheral Neuropathy over my entire body

Support Group: Neuropathy

Posted: Feb 16, 2020

I have small fiber neuropathy and CIDP. I have taken Gabapentin for over 4 years with...

https://connect.mayoclinic.org/comment/1039074/

I have small fiber neuropathy and CIDP

Discussion: Neuropathy: Anyone have any experience with gabapentin?

Support Group: Neuropathy

Posted: Mar 23 4:27pm

IVIG takes at least six months to start working. It helps the neuropathy from progressing. Most...

https://connect.mayoclinic.org/comment/1092870/

I also have been diagnosed with CIDP

Discussion: Retuximab infusions

Support Group: Neuropathy

Posted: Jun 23 11:19pm

My out of pocket would be roughly 5k for the 5 sessions of Rituximab and honestly...

https://connect.mayoclinic.org/comment/1022762/

study I read that said it worked for CIDP

Discussion: I have Sjogren's neuropathy of my legs. Anyone try Rituximab?

Support Group: Neuropathy

Posted: Feb 26 2:40am

Hello! I started with toe numbness over two years ago and the numbness progressed up my...

https://connect.mayoclinic.org/comment/614391/

Whether I have actually CIDP or another ... problem (so difficult to diagnose CIDP

Discussion: CIDP and the Covid Vaccine

Support Group: Autoimmune Diseases

Posted: Jul 6, 2021

One of my local health care facilities has an infusion center. I just completed my first...

https://connect.mayoclinic.org/comment/833563/

optimistic that the IVIG will help my CIDP

Discussion: CIDP, Diagnosis, Treatment, Insurance - Medicare and Medicare Part D

Support Group: Neuropathy

Posted: Mar 28, 2023

Your title indicates weakness in legs. I think that requires further investigation if there’s weakness progressing...

https://connect.mayoclinic.org/comment/1057191/

progressive weakness along with PN called CIDP

Discussion: My legs getting weaker and weaker

Support Group: Neuropathy

Posted: Apr 25 1:45pm

Did they diagnose you with CIDP? If so, curious what tests did you undergo to get...

https://connect.mayoclinic.org/comment/1100381/

Did they diagnose you with CIDP?

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jul 6 12:40pm

I am headed for my 5th month of ivig treatments. Balance is better, muscles relaxed, small...

https://connect.mayoclinic.org/comment/1014991/

repair nerve seems quicker then large CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 13 10:16am