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52 total results
Comments (48)
Following up on this after my meeting with my team at Mayo Rochester. For anyone with...
https://connect.mayoclinic.org/comment/1218733/
For anyone with DDX41, I can highly ... learned that there are many sub-types of DDX41 ... all of the research I've done on DDX41
Hi @asarnesejr, From what I’m understanding, your doctor is recommending a Allogenic stem cell transplant (SCT)...
https://connect.mayoclinic.org/comment/1476506/
the appropriate treatment for the DDX41 ... fellow members who also have the same DDX41 ... here: Does anyone else have AML with ddx41 ... connect.mayoclinic.org/discussion/aml-with-ddx41
I believe I've advised this before and I'll advise it again... Get an appointment with Mayo...
https://connect.mayoclinic.org/comment/1476612/
As Lori said, DDX41 isn't something ... DDX41 is complicated and encompasses ... found that my particular variety of DDX41
Hi @fortuitous, There’s another member in Connect (@sherbs)with the same DDX41 mutation only with MDS, not...
https://connect.mayoclinic.org/comment/1188086/
in Connect (@sherbs)with the same DDX41
Went today (April 7th) to my MDS specialist to review the results of my genetics test...
https://connect.mayoclinic.org/comment/1545156/
have been diagnosed with MDS with a ddx41 ... 53%) mutation and a somatic missense ddx41
Welcome to Connect, @questions2023. Inqovi is a type of chemotherapy to treat patients with MDS (and...
https://connect.mayoclinic.org/comment/1281488/
~Does anyone else have AML with ddx41 ... connect.mayoclinic.org/discussion/aml-with-ddx41
Hello.I'm also on the same drug regime with the decitabine and the venetoclax.The first infused for...
https://connect.mayoclinic.org/comment/1032588/
transplant.I've got this genetic mutation ddx41
Welcome @rosejen. How lovely that you and @igorp are both from the UK. It’s nice to...
https://connect.mayoclinic.org/comment/1562329/
great deal of information about the DDX41
Hi @asarnesejr It’s hard to tell what future medical technology will come next. CAR-T therapy has...
https://connect.mayoclinic.org/comment/1582114/
Regarding the DDX41 mutation, as we’ ... and @fortuitous, who also have the DDX41
@igorp Hi there. Apologies for responding to a post from a few months ago. We are...
https://connect.mayoclinic.org/comment/1562244/
my mum (68) was diagnosed with AML DDX41
Thank you for helping me and sharing what happened to you, igorp. I think it just...
https://connect.mayoclinic.org/comment/1645098/
the rest of the results back, the DDX41 ... from 8% to undetectable .. and the DDX41
Thank you for the update! I’d read about delayed SCT for DDX41 mutations and realized my...
https://connect.mayoclinic.org/comment/1218857/
I’d read about delayed SCT for DDX41
Hi Deb, And hello to everyone else on the board. I'm recently diagnosed with MDS (with...
https://connect.mayoclinic.org/comment/1176727/
recently diagnosed with MDS (with DDX41
@asarnesejr Initially, the diagnosis of MDS can take a bit to get used to. I think...
https://connect.mayoclinic.org/comment/1399022/
I am not a Dr, but the DdX41 mutation
@lhick Hiya, sorry we have to become acquainted under such circumstances, but nice to meet you...
https://connect.mayoclinic.org/comment/1627778/
eb1 since my diagnosis is Germatic ddx41
Hi Folks, Long time but following up on this... I'll post more in the DDX41 specific...
https://connect.mayoclinic.org/comment/1218713/
I'll post more in the DDX41 specific ... well with what I've read about DDX41
Welcome, @igorp You popped into the perfect conversation with some of our other members who have...
https://connect.mayoclinic.org/comment/1508716/
other members who have AML with the DDX41 ... search=ddx41+
If you do require a
Update: and better understanding (i didn't want to start a new post) Hello to everyone. I...
https://connect.mayoclinic.org/comment/1498287/
Myelodysplastic syndrome (MDS) with a germline DDX41 ... (R339C) (53%) and somatic DDX41 (R545H
@asarnesejr You’re doing a great job in advocating for your best healthcare! I think having this...
https://connect.mayoclinic.org/comment/1499324/
The ddx41 variant is sometimes handled
Good morning, @asarnesejr. Well, my friend, you have a lot to chew on today after your...
https://connect.mayoclinic.org/comment/1561731/
, from information I’ve read, your DDX41 ... cohorts have published papers on the DDX41 ... mutation and have been referred to DDX41
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