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Comments (610)
@fourleaf It’s an age old problem and deep frustration that doctors who don’t know or just...
don’t care will label patients with ME ... /CFS (and more recently LC) as psychosomatic ... that is changing. 40 years with ME ... /CFS here and I was brushed off by plenty
@nataliem and @petuniamom567 indeed there are a lot of similarities between MF/CFS and long COVID. I...
ME/CFS is a real syndrome and a condition ... connect with other people living with ME ... /CFS. ... Currently ME/CFS discussions and members ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
I sympathize with all who responded to my ME/CFS post. One thing of note: All of...
sympathize with all who responded to my ME ... /CFS post. ... Where are ME/CFS people? ... ME/CFS should be studied separately. ... This would help both the ME/CFS people
Thanks for your kind reply. I see a naturopath and you are right that regular doctors...
regular doctors know nothing about ME ... /CFS or Long Covid. ... My former doctor, a specialists in ME ... /CFS (who unfortunately passed away) ... treated ME/CFS with something called
Posted: May 19 9:12am
Hi sueleerock, "Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, long-term illness that affects many body...
/CFS) is a serious, long-term illness ... People with ME/CFS are often not able ... At times, ME/CFS may confine them to ... People with ME/CFS have severe fatigue ... ME/CFS may get worse after people with
Support Group: Infectious Diseases
Posted: Nov 29, 2020
Does anyone here know of a Mayo doctor who can diagnose ME/CFS and/or another auto immune...
of a Mayo doctor who can diagnose ME ... /CFS and/or another auto immune disease ... group of individuals dealing with ME ... /CFS and they keep abreast of the latest
@colleenyoung Chronic Fatigue Syndrome is quite the unfortunate name, as it implies "fatigue" is the main...
/CFS. ... nationalacademies.org/hmd/reports/2015/me-cfs.aspx ... And that ME/CFS patients are more disabled ... Convincing doctors that ME/CFS patients ... https://www.cdc.gov/me-cfs/healthcare-providers
Hi @beanie300, there is another active discussion that may be helpful for you to read through...
Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments -- https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Just read an article today from the blog Health Rising, which follows ME/CFS, Fibro, POTS reaearch....
blog Health Rising, which follows ME ... /CFS, Fibro, POTS reaearch. ... /CFS Moment Just Occurred at…The Mayo ... it is not the right treatment for ME ... /CFS.
Support Group: Chronic Pain
Posted: Oct 15, 2023
@sita Thanks for the Phoenix Rising info. I am familiar with this group, as well as...
with this group, as well as the S4ME.info ... Your primary care doctor can diagnose ME ... /CFS. ... ME/CFS is no longer a diagnosis of exclusion ... https://www.cdc.gov/me-cfs/symptoms-diagnosis
Mayo Clinic follows CDC guidelines for diagnosis and treatment of ME/CFS. I had the opportunity to...
guidelines for diagnosis and treatment of ME ... /CFS. ... listen to a talk by specialist in ME ... /CFS at Mayo Clinic, who reaffirmed
Please check out information on ME/CFS and POTS. I have both after Covid and both my...
Please check out information on ME/CFS ... /CFS. ... Common co-morbid dx w/ ME/CFS and often ... Tough if she also has ME/CFS as exercise ... /CFS.)
Posted: Dec 11, 2023
Hello @stress, Welcome to Connect. I think you are right in that a lot of the...
I don't have ME/CFS but do have ... that I think speaks to neuropathy and ME ... /CFS. ... Neuropathy (SFN) Fibromyalgia and ME ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments
Support Group: Neuropathy
Posted: Nov 23, 2021