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1,062 total results
Comments (1,009)
Glad to hear that many sufferers of CIDP do not have pain, just numbness and tingling....
https://connect.mayoclinic.org/comment/1233650/
Glad to hear that many sufferers of CIDP ... near-crippling pain but not diagnosed with CIDP ... Not to minimize the seriousness of CIDP
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Feb 10, 2025
Hi @jshdma, I don't have CIDP but I also have to be careful walking downhill with...
https://connect.mayoclinic.org/comment/850137/
Hi @jshdma, I don't have CIDP but ... some clues for you. "Motor CIDP ... motor neuron disorder, while sensory CIDP ... 2020" --- The Misdiagnosis of CIDP ... Neuromuscular Notes: Taking the Mis- out of CIDP
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Apr 27, 2023
FDA JSUT APPROVED NEW MEDICINE FOR CIDP CALLED "VYVGAH HYTRULO WHY NO COMMENTS ON MAYO ORUM...
https://connect.mayoclinic.org/comment/1154192/
FDA JSUT APPROVED NEW MEDICINE FOR CIDP ... WHY NO COMMENTS ON MAYO ORUM FIRST CIDP
Discussion: What do I do now?
Support Group: Neuropathy
Posted: Oct 8, 2024
Welcome, @yvonne111. Good questions. I'm tagging fellow CIDP members like @mabelandlynne @cgrogers @lynn66618 @coachrandy @goldacharna @danawyn...
https://connect.mayoclinic.org/comment/1165167/
I'm tagging fellow CIDP members ... their coping strategies of living with CIDP ... around in this related discussion: - CIDP ... /connect.mayoclinic.org/discussion/cidp-support-group ... you might have to consider from pre-CIDP
Discussion: CIDP and trying to get on with life
Support Group: Autoimmune Diseases
Posted: Oct 30, 2024
I was diagnosed with CIDP around two years ago. I am currently doing IVIG treatments. They...
https://connect.mayoclinic.org/comment/1485391/
I was diagnosed with CIDP around two ... They confirmed it was CIDP by doing ... I’m just wondering if anyone with CIDP ... and I’m not sure if it’s related to CIDP
Discussion: CIDP Diagnosis
Support Group: Autoimmune Diseases
Posted: Jan 18 9:25am
Hello @goldacharna, I would like to add my welcome to Connect along with @dwyermw and others....
https://connect.mayoclinic.org/comment/889189/
will provide some relief for your CIDP ... /connect.mayoclinic.org/discussion/cidp-having-ivig-reactions ... / — CIDP and concerns about treatment ... /connect.mayoclinic.org/discussion/cidp
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Jul 3, 2023
@total99 here is a discussion where members are sharing their experiences -- CIDP (Chronic Inflammatory Demyelinating...
https://connect.mayoclinic.org/comment/660276/
are sharing their experiences -- CIDP ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy
Discussion: Nerve biopsy test: Is it done by a neurologist or rheumatologist?
Support Group: Neuropathy
Posted: Dec 7, 2021
If your neuropathy affects your legs/feet and arms/hands, make sure you are getting a correct diagnosis....
https://connect.mayoclinic.org/comment/324197/
CIDP -- chronic inflammatory demyelinating ... CIDP is rare and often misdiagnosed. ... misdiagnosed and treated only for pain, CIDP ... As a CIDP patient, I urge you to bring ... up the possibility of CIDP with your
Discussion: Now what! Neuropathy in feet and ankles.. Numbness in hands and arms
Support Group: Neuropathy
Posted: Oct 15, 2020
@jimhd Jim, after reading your post and your doctor's statement that "CIDP is an umbrella label...
https://connect.mayoclinic.org/comment/99387/
your doctor's statement that "CIDP ... is an umbrella term that includes CIDP ... From what I am reading, CIDP is auto ... Other types of neuropathy beside CIDP ... So CIDP is just a particular type of
Discussion: Chronic Pain members - Welcome, please introduce yourself
Support Group: Chronic Pain
Posted: Oct 15, 2020
Hi @joanland, Here's a good reference site for learning more about the condition and what treatments...
https://connect.mayoclinic.org/comment/1395070/
. -- Shining Through CIDP: https: ... the top of the page and type "CIDP ... words of some question you have on CIDP
Discussion: My neurologist has suggested my symptoms may indicate CIPD
Support Group: Autoimmune Diseases
Posted: Sep 17, 2025
@betoma, I moved your question about Vyvgart Hytrulo as a treatment for chronic inflammatory demyelinating polyneuropathy...
https://connect.mayoclinic.org/comment/1396067/
inflammatory demyelinating polyneuropathy (CIDP ... VYVGART Hytrulo, a new treatment for CIDP ... vyvgart-hytrulo-a-new-treatment-for-cidp
Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?
Support Group: Autoimmune Diseases
Posted: Sep 18, 2025
@bearmom, I don't have CIDP and can't imagine how difficult it is to manage the symptoms...
https://connect.mayoclinic.org/comment/1321345/
@bearmom, I don't have CIDP and ... mentioned by other members on Connect for CIDP ... search=CIDP%20symptoms. ... Have you seen the Shining Through CIDP
Discussion: CIDP and feeling like you are wrapped in wires?
Support Group: Autoimmune Diseases
Posted: Jun 6, 2025