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Comments (821)

@nemo1 Wow, the questions you asked. I can barely pronounce ‘polyradiculopathy’! I looked this up and...

https://connect.mayoclinic.org/comment/1024479/

Were you diagnosed with CIDP?

Discussion: Demylinating Sensorimotor Neuropathy vs./ or and Polyradiculopathy

Support Group: Autoimmune Diseases

Posted: Feb 28 4:17pm

Something is very wrong there. Medicare certainly does cover IVIG treatments for CIDP. I was diagnosed...

https://connect.mayoclinic.org/comment/830894/

certainly does cover IVIG treatments for CIDP ... I was diagnosed with CIDP almost four

Discussion: CIDP, Diagnosis, Treatment, Insurance - Medicare and Medicare Part D

Support Group: Neuropathy

Posted: Mar 23, 2023

At 65, I was diagnosed with CIDP in 2019. I started with neuropathy in my left...

https://connect.mayoclinic.org/comment/661833/

At 65, I was diagnosed with CIDP in ... Blessedly, my CIDP has not advanced.

Discussion: CIDP and the Covid Vaccine

Support Group: Autoimmune Diseases

Posted: Dec 12, 2021

I am seeing quite a few posts about CIDP. I took a survey and checked quite...

https://connect.mayoclinic.org/comment/1115129/

am seeing quite a few posts about CIDP ... How does one go about confirming CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 31 9:51am

I was told I had sensory polyneuropathy that is demylenating on emg. No one has treated...

https://connect.mayoclinic.org/comment/318894/

I do Do you think it could be cidp

Discussion: Searching For Diagnosis. CIDP? Please Help Me

Support Group: Neuropathy

Posted: Aug 29, 2020

I was on IVIG for five years. Twice I was paralyzed from head to toe with...

https://connect.mayoclinic.org/comment/238697/

was paralyzed from head to toe with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Sep 29, 2020

Hi @tonyinaus, Welcome to Connect. Since new members are not able to post links for a...

https://connect.mayoclinic.org/comment/645752/

thought I would share the link GBS/CIDP ... Foundation for you - https://www.gbs-cidp.org

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Oct 16, 2021

Most neurologists treat small fiber neuropathy with drugs like cymbalta, lyrica, neurontin,etc. Since I have CIDP,...

https://connect.mayoclinic.org/comment/92547/

Since I have CIDP, the first treatment

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Nov 29, 2018

Hello @mabelandlynne, @gsnmurthy, and @etohdr. I see that you each have recently joined Connect and wanted...

https://connect.mayoclinic.org/comment/824512/

--- Support and Resources - GBS/CIDP ... Foundation: https://www.gbs-cidp.org

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 11, 2023

Thank you for sharing your experience. I don't have CIDP, but I have some demyelination due...

https://connect.mayoclinic.org/comment/682259/

I don't have CIDP, but I have some

Discussion: Just approved: Evusheld for the pre-exposure prevention of COVID-19

Support Group: Transplants

Posted: Feb 18, 2022

Trish There is a wonder GIB-CIDP Organization that has everything, research groups, support groups, education, meetings...

https://connect.mayoclinic.org/comment/800265/

Trish There is a wonder GIB-CIDP Organization ... The website is GIB-CIDP.org There

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jan 22, 2023

@jesfactsmon Thank you for checking on that. Maybe I heard the doctor wrong. But he did...

https://connect.mayoclinic.org/comment/99408/

But he did confirm the CIDP diagnosis

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Oct 15, 2020

My MGUS levels are not a concern at this time, so they’re being watched by myhemotologist-oncologist....

https://connect.mayoclinic.org/comment/943824/

My CIDP is the issue for the most part

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 7, 2023

After being diagnosed with CIDP my doctor suggested I try IVIG. I have the infusions every...

https://connect.mayoclinic.org/comment/1014685/

After being diagnosed with CIDP my doctor

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 12 7:09pm

Joe, you have been through so much with your PN. I have it too. Mine is...

https://connect.mayoclinic.org/comment/993322/

Mine is severe, caused by CIDP and MGUS

Discussion: Has anyone used Cymbalta for nerve pain?

Support Group: Chronic Pain

Posted: Jan 7 3:58pm

In my 4 years of trying to find help for my CIDP in Albuquerque NM those...

https://connect.mayoclinic.org/comment/1120161/

years of trying to find help for my CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Aug 8 1:59pm

I have just finished my second round of IVIG infusions, and I don’t feel any relief...

https://connect.mayoclinic.org/comment/238689/

I’m getting IVIG for CIDP.

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Nov 22, 2019

I take 2400 mg a day, half at night and half in the morning. I’m 5’10”...

https://connect.mayoclinic.org/comment/1039063/

I also have CIDP/A MSAN which should

Discussion: Osteoarthritis

Support Group: Bones, Joints & Muscles

Posted: Mar 23 3:53pm

@harley22 Will this be your 2nd drug for CIDP? You know, it can take tries with...

https://connect.mayoclinic.org/comment/1091371/

harley22 Will this be your 2nd drug for CIDP

Discussion: Retuximab infusions

Support Group: Neuropathy

Posted: Jun 21 7:38pm

Thank you for the information. I have not had am EMG but I'll ask about that...

https://connect.mayoclinic.org/comment/1077999/

I looked into CIDP and there are several ... hyperreflexia of tendons and with CIDP

Discussion: How common is it for radiologists to miss lesions in early MS?

Support Group: Brain & Nervous System

Posted: May 30 4:38pm