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872 total results
Comments (827)
Hi again Betty. My doctor doesn't know the cause. We ruled out ALS and MS, ruled...
It may be idiopathic. ... used for years for rosacea) can cause neuropathy ... My neurologist still thinks its small ... fiber polyneuropathy because he says
Support Group: Neuropathy
Posted: Jul 29, 2023
Hi @lisaklisa, I was diagnosed with idiopathic small fiber peripheral neuropathy in 2016 but have had...
Hi @lisaklisa, I was diagnosed with idiopathic ... small fiber peripheral neuropathy in ... I shared my neuropathy journey in another ... discussion here - Member Neuropathy
Support Group: Neuropathy
Posted: Jul 21, 2023
@lgkent, I also have idiopathic small fiber peripheral neuropathy and would love it if stem cell...
@lgkent, I also have idiopathic small ... fiber peripheral neuropathy and would ... that it has worked for anyone with neuropathy ... about checking it out but I think idiopathic ... Patients with Hereditary Peripheral Neuropathy
Support Group: Neuropathy
Posted: Jul 15, 2023
Welcome @jeanm1, Sorry to hear the gabapentin isn't controlling the neuropathy pain. I also have idiopathic...
gabapentin isn't controlling the neuropathy ... I also have idiopathic small fiber PN ... : --- Foundation for Peripheral Neuropathy ... https://www.foundationforpn.org/ --- Neuropathy ... / The Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Jun 4, 2023
Hello Marjorie @mlben, Welcome to Connect. I'm sorry to hear that your mobility is declining from...
mobility is declining from the diabetic neuropathy ... mobility is my greatest fear with my idiopathic ... small fiber peripheral neuropathy. ... The Foundation for Peripheral Neuropathy ... of information on living well with neuropathy
Support Group: Neuropathy
Posted: Apr 21, 2023
@rwinney Rachel You have described your story so well in a nice summary . You are...
My diagnosis. 1) fibromyalgia 2) idiopathic ... ( doctors do not know the reason ) small ... fiber neuropathy 3) degenerative
Support Group: Fibromyalgia
Posted: Apr 2, 2023
Are you under the care of a neurologist? Do you have any past problems taking opioids?...
Since I switched to Tegretol for my neuropathy ... part time job, keeping my pain and neuropathy ... I have idiopathic length-dependent small ... fiber poly neuropathy, and (maybe)
Support Group: Neuropathy
Posted: Mar 27, 2023
Hi @hankinbc, Welcome to Connect. I also have idiopathic small fiber peripheral neuropathy and do not...
I also have idiopathic small fiber peripheral ... neuropathy and do not have diabetes ... following discussion helpful: -- Small ... Fiber Neuropathy: What helps? ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy
Support Group: Neuropathy
Posted: Mar 26, 2023
I have an undiagnosed case of peripheral neuropathy and recently had a lumbar puncture. The first...
an undiagnosed case of peripheral neuropathy ... pointed out that the EMG can’t measure small ... fiber changes, and that they haven’ ... They’re starting now to call it idiopathic
Support Group: Neuropathy
Posted: Jan 30, 2023
I have idiopathic small fiber peripheral neuropathy and had my right knee replaced a few years...
I have idiopathic small fiber peripheral ... neuropathy and had my right knee replaced ... complications and no negative impact on my neuropathy
Discussion: Surgery and SFN
Support Group: Neuropathy
Posted: Oct 30, 2022
Hello @shara, Welcome to Connect. I'm sorry to hear your neuropathy symptoms are getting worse. I...
I'm sorry to hear your neuropathy ... I have idiopathic small fiber peripheral ... neuropathy and shared my story in another ... discussion here -- Member Neuropathy ... / -- Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Oct 27, 2022
Hello @lenaybrown, it is frustrating not knowing what to do when you have neuropathy symptoms along...
not knowing what to do when you have neuropathy ... Connect looking for treatments for neuropathy ... a diagnosis which turned out to be idiopathic ... small fiber peripheral neuropathy. ... My two favorite sites are: -- Neuropathy
Welcome @mikeconnors1, There are many causes for neuropathy. I'm not sure if you have done any...
early on when I was diagnosed with idiopathic ... small fiber peripheral neuropathy. ... experience with what has helped them. -- Small ... Fiber Neuropathy: What helps? ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy
Support Group: Neuropathy
Posted: Aug 27, 2022
Hi Ray - Welcome back, I am glad you got a diagnosis, however vague, and thanks...
discussions about those diagnosed with Small ... Fiber Neuropathy (SFN), so many of ... was hit suddenly with my axonal PN (idiopathic
Support Group: Neuropathy
Posted: Aug 6, 2022
Hello @alfer, Welcome to Connect. I also have idiopathic small fiber periperal neuropathy. I went 20+...
I also have idiopathic small fiber periperal ... neuropathy. ... before seeking a diagnosis for the neuropathy ... to spinal conditions can also cause neuropathy ... think you may find helpful: -- Member Neuropathy
Support Group: Neuropathy
Posted: Jun 14, 2022
Hi Joy @joypalmer1, I would like to add my welcome to Connect along with @amandajro, @artscaping...
years before getting a diagnosis of idiopathic ... small fiber PN. ... I posted my neuropathy journey in another ... is the gold standard for diagnosing neuropathy ... /neuropathy-overview
Support Group: Neuropathy
Posted: May 13, 2022
Hello @obackus, Welcome to Connect. I think most of us with some form of neuropathy have...
think most of us with some form of neuropathy ... In my case of having idiopathic small ... fiber PN with no pain only numbness ... /neuropathy-overview -- Foundation ... for Peripheral Neuropathy: https://
Support Group: Autoimmune Diseases
Posted: Mar 3, 2022
My primary referred me to a neurologist who ordered some labs and a nerve conduction test...
I was diagnosed with idiopathic small ... fiber peripheral neuropathy which he ... cousin on my mom's side who has neuropathy