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Comments (917)

Hi I'm Betti. I have been diagnosed with CIDP, a rare peripheral neuropathy. I have spinal...

https://connect.mayoclinic.org/comment/1296267/

I have been diagnosed with CIDP, a rare

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: May 4 8:57am

Hello @cheentsia, I would like to add my welcome along with @govisri and others. It sounds...

https://connect.mayoclinic.org/comment/1036295/

opinion was helpful to confirm the CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Mar 19, 2024

Hello, I have CIDP and also have similar problems with my feet and legs. One thing...

https://connect.mayoclinic.org/comment/725727/

Hello, I have CIDP and also have similar

Discussion: Diagnosed with moderate/severe poly neuropathy: sensory motor

Support Group: Neuropathy

Posted: Jul 11, 2022

@becsbuddy I am looking for others with CIDP and arachnoid cysts. I am interested in talking...

https://connect.mayoclinic.org/comment/1320750/

becsbuddy I am looking for others with CIDP

Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?

Support Group: Autoimmune Diseases

Posted: Jun 5 9:32am

I have CIDP and, prior to having immunoglobulin infusions, my legs were feeling like they had...

https://connect.mayoclinic.org/comment/964600/

I have CIDP and, prior to having immunoglobulin

Discussion: unbearable tugging and electric buzz feeling in leg

Support Group: Chronic Pain

Posted: Nov 14, 2023

My husband had Guilliane Barre Syndrome in 2013, he is now dealing with residuals. Hands, feet...

https://connect.mayoclinic.org/comment/91843/

Does anyone else have GBS or CIDP?

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Apr 9, 2017

I have 3 other autoimmune diseases which made me susceptible to developing another (CIDP). The symptoms...

https://connect.mayoclinic.org/comment/1050778/

susceptible to developing another (CIDP ... daily for RA, lupus and it helps with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Apr 14, 2024

Welcome @biker201, Medicare can be confusing and I'm always struggling with decisions. There is another discussion...

https://connect.mayoclinic.org/comment/837917/

that you might find helpful: --- CIDP ... /connect.mayoclinic.org/discussion/cidp-diagnosis-treatment-insurance-medicare-and-medicare-part-d

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 5, 2023

@jtbt0406 Was a steroid treatment ever discussed with you in regards to CIDP? I see that...

https://connect.mayoclinic.org/comment/238732/

ever discussed with you in regards to CIDP ... diagnosed with MS (and I know MS and CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 25, 2020

Glad to hear that you are better. I have given up and will just live with...

https://connect.mayoclinic.org/comment/954832/

up and will just live with supposed CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Oct 27, 2023

@lynn66618 There are several discussion groups about CIDP. I included this link to one of the...

https://connect.mayoclinic.org/comment/968329/

are several discussion groups about CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Nov 20, 2023

Hello Colleen, hello group, I'm 59y old, from Vienna/Austria and I have been diagnosed with CIDP...

https://connect.mayoclinic.org/comment/640655/

Austria and I have been diagnosed with CIDP ... and just a year ago I was diagnosed CIDP ... anyone share some experience with CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Sep 30, 2021

Thank you for the support and prayers. There are other treatments however d/t the advanced CIDP...

https://connect.mayoclinic.org/comment/238731/

treatments however d/t the advanced CIDP ... As for previous illnesses prior to CIDP ... Yes no cure for CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Oct 25, 2020

@wncard Welcome to Mayo Clinic Connect! What symptoms led you to the doctor for a diagnosis?...

https://connect.mayoclinic.org/comment/851343/

you could tell us a little about how CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Apr 29, 2023

I have been diagnosed with CIDP and I am currently being treated with IgG infusions. Today...

https://connect.mayoclinic.org/comment/674601/

I have been diagnosed with CIDP and

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: Jan 24, 2022

Yes, I have CIDP and I’m treating with IVIG every 2 weeks. I also have neuromyletis...

https://connect.mayoclinic.org/comment/1117392/

Yes, I have CIDP and I’m treating with

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Aug 3, 2024

Try looking for a neuromuscular neurologist. That’s what I was told along with immunologist. These doctors...

https://connect.mayoclinic.org/comment/1113657/

neurologist about testing by spinal tap for CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 28, 2024

I am new to the group. I am 68 and was diagnosed with CIDP on March...

https://connect.mayoclinic.org/comment/1290556/

I am 68 and was diagnosed with CIDP ... My CIDP came on suddenly in February

Discussion: CIDP and concerns about treatment risk factors

Support Group: Neuropathy

Posted: Apr 26 2:34pm

I’ve been on IVIG / SCIG since 2021 for CIDP and occasionally steroids too following viruses....

https://connect.mayoclinic.org/comment/1111338/

been on IVIG / SCIG since 2021 for CIDP ... VYVGART Hytrulo, specifically aimed at CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 24, 2024

@kgitti I am waiting to be tested for MS and CIDP. The symptoms are terrible and...

https://connect.mayoclinic.org/comment/1045095/

am waiting to be tested for MS and CIDP ... if anyone has improved following a CIDP

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 4, 2024