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861 total results

Comments (821)

Yes, I do. I have been receiving IvIG treatment since 2015 and am faring well. Thank...

https://connect.mayoclinic.org/comment/782609/

I am the NYC Liaison for the GBS/CIDP

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 8, 2022

So glad he is on the mend. I was diagnosed in 2014 and still get Ivig...

https://connect.mayoclinic.org/comment/834988/

Please register with the GBS/CIDP Foundation ... Www.gbs-CIDP.org

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 31, 2023

As having CIDP. Right now I’m at a standstill on no meds except Tramadol for pain...

https://connect.mayoclinic.org/comment/969077/

As having CIDP.

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 22, 2023

Hi @artemis1886 , There are a few members who have mentioned Panzyga in other CIDP discussions...

https://connect.mayoclinic.org/comment/1140773/

who have mentioned Panzyga in other CIDP

Discussion: Panzyga

Support Group: Neuropathy

Posted: Sep 13 7:26am

I’m being treated for same as you. I’m hoping IVIG will help in stopping it from...

https://connect.mayoclinic.org/comment/219632/

years for me getting a diagnosis of CIDP ... and I was given this diagnosis of CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Jan 15, 2020

My diagnosis is CIDP. The cause is an "autoimmune situation" possibly exacerbated by sensitivity to gluten....

https://connect.mayoclinic.org/comment/637130/

My diagnosis is CIDP.

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Sep 20, 2021

Hi Carrie @sherlock, welcome to Mayo Clinic Connect. I have small fiber PN but I only...

https://connect.mayoclinic.org/comment/156821/

Neuropathy > Anyone been diagnosed with CIDP ... has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 26, 2018

I have CIDP and it only affects your peripheral nerves so you can probably take that...

https://connect.mayoclinic.org/comment/1131443/

I have CIDP and it only affects your

Discussion: Brain Demyelinating diseases OTHER than MS

Support Group: Brain & Nervous System

Posted: Aug 26 9:38pm

Thank you for your answer, our FDA gave the approvement for myasthenia gravis, but not yet...

https://connect.mayoclinic.org/comment/944711/

anywhere else and how efficient it is in CIDP

Discussion: experience with efgartigimod in cidp?

Support Group: Autoimmune Diseases

Posted: Oct 9, 2023

Fortunately I don't have any autoimmune markers (though runs in our family). My CIDP is managed...

https://connect.mayoclinic.org/comment/1034783/

My CIDP is managed through a neurologist

Discussion: Thigh weakness/foot drop after spine surgery

Support Group: Spine Health

Posted: Mar 16 3:41pm

Neuropathy is strange. I have CIDP and 2 other autoimmune disorders, and I'm an infusion RN,...

https://connect.mayoclinic.org/comment/1082812/

I have CIDP and 2 other autoimmune disorders

Discussion: Crawling sensation all over body

Support Group: Neuropathy

Posted: Jun 8 5:51am

I did get the vaccine and was terribly unsure about it because of the CIDP but...

https://connect.mayoclinic.org/comment/649255/

terribly unsure about it because of the CIDP ... exemption came out for those with CIDP

Discussion: CIDP and the Covid Vaccine

Support Group: Autoimmune Diseases

Posted: Oct 29, 2021

Hello @jutty -- welcome to Mayo Connect. I don't have Chronic inflammatory demyelinating polyneuropathy (CIDP) but...

https://connect.mayoclinic.org/comment/195818/

inflammatory demyelinating polyneuropathy (CIDP ... other members who have posted in other CIDP

Discussion: CIDP SINCE AUGUST 2015

Support Group: Neuropathy

Posted: Apr 12, 2018

I have SFN, too, but unknown (idiopathic) cause. This is as confirmed with punch biopsy of...

https://connect.mayoclinic.org/comment/1035582/

neurologist for testing of MS and CIDP

Discussion: Please help!! auto immune illness even w/ normal blood test results?

Support Group: Autoimmune Diseases

Posted: Mar 18 7:34am

I've had IVIG treatments for over 2 years for CIDP and small fiber neuropathy. A neurologist...

https://connect.mayoclinic.org/comment/92536/

IVIG treatments for over 2 years for CIDP

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Nov 29, 2018

Hi Jim, I also have similar symptoms as you, even though I’ve been diagnosed with CIDP....

https://connect.mayoclinic.org/comment/279765/

even though I’ve been diagnosed with CIDP

Discussion: Controlling the Anger and Sadness: My Neuropathy is Overtaking Me

Support Group: Neuropathy

Posted: Oct 24, 2019

@danmccann63 Welcome to Mayo Clinic Connect! I’m glad you found this site. Everyone here is so...

https://connect.mayoclinic.org/comment/1058000/

You said your CIDP is compliments of

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Apr 26 9:35pm

Hello Dillinger, I have severe neuropathy in my hands and forearms from CIDP. I feel quite...

https://connect.mayoclinic.org/comment/716014/

neuropathy in my hands and forearms from CIDP

Discussion: CIDP and the Covid Vaccine

Support Group: Autoimmune Diseases

Posted: Jun 10, 2022

Yup. Specifically "CIDP". Blood tests indicate the cause is an "autoimmune" condition, for which, infusions of...

https://connect.mayoclinic.org/comment/641257/

Specifically "CIDP".

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Oct 1, 2021

Hi, I have many of the symptoms of CIDP but no diagnosis. One I haven't really...

https://connect.mayoclinic.org/comment/895200/

Hi, I have many of the symptoms of CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 13, 2023