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Comments (3,811)

Have you considered a Lyme test? Has your PCP offered any tests, say, for autoimmunity, or...

https://connect.mayoclinic.org/comment/858998/

Another neuro?

Discussion: Need some insight. Cannot see neurologist for 7 months.

Support Group: Brain & Nervous System

Posted: May 12, 2023

@cmiller59, I did not realize that I had Osteoporosis. I never had bone pain or any...

https://connect.mayoclinic.org/comment/857968/

bone in my upper chest and to see a neuro-surgeon

Discussion: Drugs or exercise and vitamins?

Support Group: Osteoporosis & Bone Health

Posted: May 10, 2023

Sorry for all you guys are going through. Ask if an EMG test might give insight...

https://connect.mayoclinic.org/comment/853807/

rheumatologist was the one that steered me to neuro

Discussion: My wife has autoimmune disease. She has inflammation in legs and arms.

Support Group: Autoimmune Diseases

Posted: May 3, 2023

Hi, Tinae! I tested positive for 68 kD (kiloDalton)/HSP 70 (Heat Shock Protein) after sudden hearing...

https://connect.mayoclinic.org/comment/853562/

in the morning, and referred to a Neuro-Otologist

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: May 3, 2023

I become exhausted after phys exertion, too; however, my main concern in flying is Neuro fatigue....

https://connect.mayoclinic.org/comment/853278/

however, my main concern in flying is Neuro

Discussion: Airplane flight while still recovering from long haul COVID?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 2, 2023

Thanks for the empathy - it is very frustrating. I've researched sarcomas extensively, as well as...

https://connect.mayoclinic.org/comment/852230/

sarcomas extensively, as well as NETs (neuro-endocrine

Discussion: Soft-Tissue Masses Not Diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Hey! I am wondering if I have that. I have crazy ithing a stabbing all through...

https://connect.mayoclinic.org/comment/851149/

My neuro thinks it is SFN though. ... But neither neuro nor spinal surgeon

Discussion: Cervical myelopathy mistaken for neuropathy

Support Group: Neuropathy

Posted: Apr 28, 2023

They do think depakote is culprit, hadn’t had a seizure for 2 months when blood was...

https://connect.mayoclinic.org/comment/850457/

I do recall pediatric Neuro had him

Discussion: Test shows high ammonia: 78 high, normal's 30. Know about this?

Support Group: Epilepsy & Seizures

Posted: Apr 27, 2023

@ray666 - Well you are certainly getting many helpful suggestions. Mind if I chime in?? Here...

https://connect.mayoclinic.org/comment/850454/

I stopped at two, both were neuro. ... when it came to small nerves, etc neuro

Discussion: "Rubbery" Legs?

Support Group: Neuropathy

Posted: Apr 27, 2023

Thanks. I started LDN about a month ago and, now at 4.5 mg, appears to be...

https://connect.mayoclinic.org/comment/849109/

She also put in for a neuro consult

Discussion: Was just diagnosed with glaucoma, need support!

Support Group: Eye Conditions

Posted: Apr 25, 2023

Hello, I had a 6.8cm pheochromocytoma and had a right adrenalectomy March 17th. My scans do...

https://connect.mayoclinic.org/comment/846343/

Do I need a neuro endocrine tumor specialist

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

My rehabilitative and physical medicine specialist and my gynecologist refer me to pelvic floor PT. I...

https://connect.mayoclinic.org/comment/845983/

building strength (stamina) by a neuro-PT ... PT until I finished working with neuro-PT

Discussion: Low Back Pain May Be Sacroiliac Joint Inflammation, Special Treatment

Support Group: Bones, Joints & Muscles

Posted: Apr 19, 2023

Rachel, thank you for all the good information! I found the video very interesting. The presenter...

https://connect.mayoclinic.org/comment/838300/

I have several disorders including neuro ... I definitely suggest anyone with neuro

Discussion: Has anyone experienced internal vibrations?

Support Group: Brain & Nervous System

Posted: Apr 5, 2023

@mattey741 Okay, I asked ChatGPT for links to those studies. My question: can you give me...

https://connect.mayoclinic.org/comment/837195/

930-936. https://doi.org/10.1016/j.neuro

Discussion: Neuropathy caused by toxins, poisons and chemicals

Support Group: Neuropathy

Posted: Apr 3, 2023

@jwr - You asked me what I feel is helpful. The short answer is I go...

https://connect.mayoclinic.org/comment/836022/

According to my neuro doc, my PN seems

Discussion: Idiopathic Polyneuropathy: My endless journey to a near-diagnosis …

Support Group: Neuropathy

Posted: Apr 2, 2023

Hello Reese, I will make a note of the Buspar, anti-ansiolytic, and ask my doc. It...

https://connect.mayoclinic.org/comment/834451/

The doctors up at OHSU (neuro in Oregon

Discussion: Klonopin taper

Support Group: Depression & Anxiety

Posted: Mar 30, 2023

Thanks for sharing this. It’s a very difficult decision to say yes to surgery but all...

https://connect.mayoclinic.org/comment/834148/

said to throw away the pamphlets on neuro-stimulators

Discussion: Anybody had medial branch blocks/ablation to relieve back pain?

Support Group: Spine Health

Posted: Mar 29, 2023

I will start at 1.5 mg and see how it goes with the plan to gradually...

https://connect.mayoclinic.org/comment/830167/

interesting tests and try for another neuro

Discussion: What should I discuss / ask my PCP about?

Support Group: Neuropathy

Posted: Mar 22, 2023

Well as an update she ordered more bloodwork, said no to higher dose steroids, cannot give...

https://connect.mayoclinic.org/comment/829245/

She is also pushing again for a neuro

Discussion: What should I discuss / ask my PCP about?

Support Group: Neuropathy

Posted: Mar 20, 2023

My husband is preparing to have a trial version of the SCS(by Abbot) implanted. He tried...

https://connect.mayoclinic.org/comment/822374/

The Neuro Surgeon is planning to try

Discussion: Comparison of Spinal Cord Stimulators from Boston Sci., Nevro

Support Group: Spine Health

Posted: Mar 7, 2023