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Comments (4,154)

I was recently diagnosed with MAC and bronchiectasis. I am being treated by an infectious disease...

https://connect.mayoclinic.org/comment/1073546/

SCIENCE UNIVERSITY I'm in a clinical ... trial.

Discussion: Asymptomatic MAC

Support Group: MAC & Bronchiectasis

Posted: May 23 11:38pm

@denip , You're very welcome. Too late to edit my initial comment, but there's a typo...

https://connect.mayoclinic.org/comment/939905/

to look sooner rather than later at clinical ... trial drugs.

Discussion: CA 19-9 Levels - What is High Enough to Cause Concern for Prognosis?

Support Group: Pancreatic Cancer

Posted: Oct 1, 2023

I appreciate both comments. I also had y90 to my liver and it worked extremely well....

https://connect.mayoclinic.org/comment/1092243/

I have decided to screen for clinical ... trial this week of RM drugs designed

Discussion: Questions about SBRT radiation therapy targeting liver mets

Support Group: Pancreatic Cancer

Posted: Jun 23 7:58am

You might be overthinking this? When you thought/knew you had (at least) 3+4=7, you were still...

https://connect.mayoclinic.org/comment/994778/

qualified for the (new form of) ablation clinical ... trial and I was advised that RP was

Discussion: Knowing ASAP if with recurrence - Your Thoughts, Please!

Support Group: Prostate Cancer

Posted: Jan 10 6:15am

Hi garthc, I was diagnosed with Ph+CML in Jan. 2024, confirmed through bone marrow biopsy and...

https://connect.mayoclinic.org/comment/1102056/

marrow biopsy confirmed CML, I joined a clinical ... trial and began taking Tasigna, 2 150

Discussion: Side effects of Nilotinib (Tasigna) muscle pain and injury

Support Group: Blood Cancers & Disorders

Posted: Jul 9 7:32am

So I have just completed round 3 of chemo. Carbonation, pemetrexed plus bevacizumab. I have tolerated...

https://connect.mayoclinic.org/comment/1089656/

much changing, I signed up for every clinical ... trial they asked me for.

Discussion: Mesothelioma - no known asbestos exposure - compensation experience

Support Group: Lung Cancer

Posted: Jun 19 8:43am

https://www.drugs.com/pro/anastrozole.html I've cut and pasted the pertinent information below (estradiol=estrogen) Mean serum concentrations of estradiol were...

https://connect.mayoclinic.org/comment/1061372/

evaluated in multiple daily dosing trials ... Clinically significant suppression of

Discussion: Hair Loss Remedies for Thinning Hair on aromatase inhibitors?

Support Group: Breast Cancer

Posted: May 3 9:44am

Hopefully, I am an exception regarding Otezla. I was doing well on Cimzia, but during the...

https://connect.mayoclinic.org/comment/1074596/

to the ER and a diagnosis of Afib (atrial ... precautions” tachyarrhythmia, including atrial ... On eHEALTHME, a phase IV clinical study

Discussion: Psoriatic Arthritis: How do you manage PA and flares?

Support Group: Autoimmune Diseases

Posted: May 25 5:56pm

Hello @lobito and welcome to Mayo Clinic Connect. Members such as @bernese53 and @ken82 have shared...

https://connect.mayoclinic.org/comment/780791/

Hello @lobito and welcome to Mayo Clinic ... Meta-Analysis of Randomized Sham-Controlled Trials

Discussion: Spinal Bone Stimulator Efficacy After Total Lumbar Fusion

Support Group: Spine Health

Posted: Dec 4, 2022

I filled out the online form to be considered for the clinical trial. Thanks again for...

https://connect.mayoclinic.org/comment/1071383/

online form to be considered for the clinical ... trial.

Discussion: Anyone have cancer with unknown primary?

Support Group: Cancer

Posted: May 20 6:50am

Hello Jayne, I was diagnosed with a tortuous colon, earlier this year, after many tests (to...

https://connect.mayoclinic.org/comment/224899/

The Mayo clinic already has an article ... Healthcare Triage (on youtube) has at ... involved) agrees with the Healthcare Triage

Discussion: Anyone else have a Redundant / Tortuous Colon?

Support Group: Digestive Health

Posted: Feb 18, 2019

Sorry I haven’t been active on here for a while but wanted to give an update....

https://connect.mayoclinic.org/comment/324588/

, Carbo /Gemzar, zejula, Lynparza, clinical ... trial Herceptin and Perjeta, back to

Discussion: Ovarian Cancer: Should I go on Maintenance Therapy?

Support Group: Gynecologic Cancers

Posted: Oct 8, 2020

There’s only the one surgeon who uses that technique at FH and I believe it’s on...

https://connect.mayoclinic.org/comment/951513/

as I know, they’re not part of the clinical ... trial. ... Schaeffer is also participating in the clinical ... trial and has been using the technique

Discussion: Any experiences with pelvic fascia-sparing prostate surgery?

Support Group: Prostate Cancer

Posted: Oct 21, 2023

I have 5 secondary dedifferentiated chondrsacoma tumours in my right humorous and left thigh/hip. Primary in...

https://connect.mayoclinic.org/comment/1070714/

the IDH1 gene mutation and am on a clinical ... trial of a drug called Tibsovo.

Discussion: Does anyone have chondrosarcoma?

Support Group: Sarcoma

Posted: May 19 7:54am

Question: I seeking information on getting the TRACH removed after it has been capped for 24...

https://connect.mayoclinic.org/comment/837630/

Trials are to start again. ... Question 2: Would the Mayo clinic assist

Discussion: Living with a trach (tracheostomy), need advice.

Support Group: Head & Neck Cancer

Posted: Apr 4, 2023

Wellness 100. I think that Xtandi is an androgen receptor inhibitor, much like the Erleada that...

https://connect.mayoclinic.org/comment/836248/

like the Erleada that I was on in a clinical ... trial. ... The Erleada clinical trial statistics

Discussion: Stage 4 metastasis prostate cancer: Anyone had Lupron shots?

Support Group: Prostate Cancer

Posted: Apr 2, 2023

Excellent post Spino. I have Gleason 9, stage 3C , seminal invasion PC and I had...

https://connect.mayoclinic.org/comment/835643/

had 6 months of ADT before RP, in a clinical ... trial at UCLA. ... RP was possible for me due to the clinical ... trial.

Discussion: Why isn't hormone therapy used in all prostate cancers?

Support Group: Prostate Cancer

Posted: Apr 1, 2023

Thanks all. I’ve been in the NIH RECOVER program since June 2022 and Northwestern University’s long...

https://connect.mayoclinic.org/comment/833656/

me new tests when they’re able to trial ... to validate the tests for running trials ... these tests are being developed to do clinical

Discussion: Anyone think that it’s no longer long Covid? just permanent damage?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 28, 2023

Hello Val! Thank you for answering to me. It was exactly how I felt … frustrated...

https://connect.mayoclinic.org/comment/765515/

started an online contact with the Mayo Clinic ... In 1 day, I had a evaluation triage ... set up, earlier than the oncology clinic

Discussion: From slow to very fast. What to do ?

Support Group: Gynecologic Cancers

Posted: Oct 25, 2022

Reading the details of clinical trial TAILOR RT for more information. That said I was not...

https://connect.mayoclinic.org/comment/765141/

Reading the details of clinical trial

Discussion: Breast cancer-free anniversaries

Support Group: Breast Cancer

Posted: Oct 25, 2022