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373 total results
Comments (358)
@cmccaffe81 I have experienced most everything you have been experiencing. Here is my journey that may...
I was diagnosed with iron deficiency ... I was also diagnosed with left ear hearing ... fiber neuropathy (severe nerve damage diagnosed ... specialist/surgeon and he immediately diagnosed ... out MS) and spinal tap (to rule out CIDP
Support Group: Brain & Nervous System
Posted: Apr 23, 2024
@kgitti I am waiting to be tested for MS and CIDP. The symptoms are terrible and...
am waiting to be tested for MS and CIDP ... My hope is for diagnosis and treatment ... if anyone has improved following a CIDP ... diagnosis.
Support Group: Autoimmune Diseases
Posted: Apr 4, 2024
Hi Sundance. I would strongly encourage you to see a rheumatologist to check for autoimmune diseases...
Also, a neurologist to rule out CIDP ... about 12 years for someone to think of CIDP ... Early diagnosis is crucial and it’s
Support Group: Autoimmune Diseases
Posted: Apr 2, 2024
The pains in your legs and arms could be peripheral neuropathy which is caused by several...
things, an autoimmune disorder called CIDP ... It took me about 12 years to get diagnosed
Discussion: Can anyone help?
Support Group: Autoimmune Diseases
Posted: Mar 22, 2024
I did 3 rounds of plasmapheresis while in the hospital & rehab last summer & fall....
I'd initially been diagnosed with ... & all my ups & downs, the diagnosis ... was changed to CIDP. ... November & they confirmed this diagnosis
Thank you @nemo1. I believe we have communicated in the past with respect to a CIDP...
communicated in the past with respect to a CIDP ... diagnosis. ... would have associated this with my CIDP ... My ortho is well aware of the CIDP diagnosis
Support Group: Spine Health
Posted: Mar 13, 2024
nemo1, you wisely keep insisting on a dx. Without the testing we investigate on our own...
spinal tap may have had a differential diagnosis ... A friend was diagnosed several years ... also a video outlining the path to diagnosis ... https://www.gbs-cidp.org/support/centers-of-excellence
Support Group: Spine Health
Posted: Jan 21, 2024
I had the Shingrix vaccine in February of 2022. When she put the needle in my...
parsonage turner syndrome in my arm and CIDP ... that has any of these symptoms or any diagnosis
Support Group: Just Want to Talk
Posted: Oct 18, 2023
My case is the same . Idiopathic and now the neurologist has diagnosed CIDP after 9...
Idiopathic and now the neurologist has diagnosed ... CIDP after 9 months of tests both blood ... many forms of Neuropathy..At first my diagnosis ... I hope your diagnosis has a better outcome
Support Group: Neuropathy
Posted: Aug 16, 2023
Ray, I feel like you should always be prepared when you go to a doctor and...
saw her again last week after being diagnosed ... with CIDP and had another hour appointment
Support Group: Neuropathy
Posted: Aug 12, 2023
@goldacharma Hello, I would be glad to answer any questions relating to my symptoms, diagnosis and...
questions relating to my symptoms, diagnosis ... and treatment of CIDP. ... pain developed and no one was able to diagnose ... all and all it took about a year to diagnose
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Jul 10, 2023