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354 total results
Comments (321)
Hello @paula21, Your feedback is so very much appreciated. Hope you're feeling well. You were at...
I think, stress, hormones, pain and ... removed 98% of my endomentrial cancer tumor ... Paclitaxel after the second cycle due to neuropathy
Support Group: Gynecologic Cancers
Posted: Sep 28, 2023
Have any of you been diagnosed with connective tissue disease! Reynauds. In your feet in hands?...
sudden(overnight) onset of bi-lateral neuropathy ... Pain is constant,no matter the Temps ... ,(3rd son) Heart disease(daughter, tumor
Support Group: Neuropathy
Posted: Sep 20, 2023
Hello mrainne. Thank you for responding. All this started around July 23 out of no where....
middle of the night, still having the neuropathic ... Time went on, my flank pain subsided ... but the neuropathy did not. ... truly I am, but still I sit here with neuropathy ... Do I have a tumor somewhere that is
Support Group: Kidney & Bladder
Posted: Aug 26, 2023
Yes my sister and I suffer from these vibrations. We complain about the buzzing sensation constantly....
We both suffer from chronic pain also ... having been diagnosed with neuropathy ... and numerous spinal issues.
Support Group: Brain & Nervous System
Posted: Aug 21, 2023
I am a 73 yr old female. I had a meningioma tumor removed from my brain...
I had a meningioma tumor removed from ... It’s nerve pain similar to sciatica ... pain. ... to sleep on my back and have gotten neuropathy ... The pain in my groin makes me have numerous
Support Group: Spine Health
Posted: Jun 25, 2023
Thank you for your response. I ask WHY too much, I know. Even though I'm fairly...
contact with things that cause me pain ... he or anybody else could do for the pain ... My BS began a pattern of dropping numerous ... proved to them my BS was not causing my neuropathy ... the mornings & noon until the pain
Support Group: Joint Replacements
Posted: Jun 10, 2023
@user_ch98d0b5c . Good evening Ann. “Trauma” is the cause of my SFN (small fiber neuropathy). The...
is the cause of my SFN (small fiber neuropathy ... The trauma has been the result of numerous ... I use only medical cannabis for pain ... , and then pain produces more anxiety ... with a progressive condition like neuropathy
Support Group: Neuropathy
Posted: Jun 8, 2023
Hello! I've been diagnosed with Small Fiber (Poly-) Neuropathy. I have pain due to sensory symptoms...
diagnosed with Small Fiber (Poly-) Neuropathy ... I have pain due to sensory symptoms ... (mostly aches and shock-like pains) ... as well as autonomic effects (gut pain ... It took me three years, numerous specialists
Support Group: Chronic Pain
Posted: Dec 12, 2022
Every year since I was born, my birthday was a special day for me. As a...
was no cure, just medication for the numerous ... The neuropathy affected my balance, ... and also several over-the-counter neuropathy ... It was not at all painful, just a soothing ... I was actually feeling pain for the
Support Group: Neuropathy
Posted: Dec 1, 2022
Ask your neurologist for a tissue biopsy. They take small pieces of tissue from your ankle...
length dependent small fiber sensory neuropathy ... Autonomic neuropathy. ... started out putting a pacemaker in plus numerous ... bunch of opiates to try to control the pain ... and help to remove your pain.
Support Group: Neuropathy
Posted: Oct 14, 2022
You are not alone! I’m so grateful for you sharing your story! I literally thought I...
and no explanation for the constant pain ... , numbness, tingling, fatigue, and neuropathy ... I have been to numerous specialists,
Posted: Oct 11, 2022
Welcome @elt, I think you hit the nail on the head. Prednisone keeps the pain and...
Prednisone keeps the pain and inflammation ... rheumatologist had me only taper when the pain ... I kept a daily pain and dosage log and ... I also take turmeric curcumin everyday ... along with some supplements for my neuropathy
Posted: Sep 15, 2022
I am writing this to hopefully pass my experience forward! I believe I have idiopathic peripheral...
believe I have idiopathic peripheral neuropathy ... I have had numerous tests and seen particularly ... significant changes but now I am all most pain
Support Group: Neuropathy
Posted: Jul 23, 2022
Every year since I was born, my birthday was a special day for me. As a...
was no cure, just medication for the numerous ... The neuropathy affected my balance, ... and also several over-the-counter neuropathy ... It was not at all painful, just a soothing ... I was actually feeling pain for the
You've had multiple traumatic insults to your back and hips. The main supporting mechanisms our bodies...
intermittent sciatic bilateral leg pain ... So I live with chronic sciatic pain ... and spinal OA and peripheral neuropathy ... I do not ever expect to be pain free ... , baclofen 20mg for muscle spasm, turmeric
Support Group: Chronic Pain
Posted: Nov 15, 2021
@katec Hi Kate, I like the fact that the SPRINT is not implanted and is only...
learned about it right here, in the Neuropathy ... and within 48 hours, my foot nerve pain ... Many hours of the day, I am pain free ... in thiamine due to having a breast tumor ... have been on every med available for neuropathy
Support Group: Neuropathy
Posted: Aug 20, 2021
@greenacres Hi again, I buy Bestvite Benfotiamine 300mg. on Amazon. I take 2 pills a day,...
Within about 2 days of taking it, my pain ... ago, and was left with terrible foot neuropathy ... about Benfotiamine, is that my breast tumor ... lowered my thiamine levels, causing neuropathy ... must have been low in thiamine, as tumors
Support Group: Neuropathy
Posted: Aug 16, 2021
I came upon Mayo Clinic Connect and this group while researching neuropathic pain in the pudendal...
Connect and this group while researching neuropathic ... pain in the pudendal area. ... male and also have mild small cell neuropathy ... who I see monthly for chronic back pain ... imaging if necessary to rule out a tumor
Support Group: Chronic Pain
Posted: Jul 27, 2021
Hello @millis, Welcome to Connect, an online community where patients and caregivers share their experiences, find...
to press on a nerve root, causing pain ... Tumors, scars or bone spurs can also ... Commons - Causes of Neuropathy: https ... ://neuropathycommons.org/neuropathy/ ... causes-neuropathy @jenniferhunter
Support Group: Neuropathy
Posted: May 22, 2021
Thank you, Erika. I have received some unhelpful feedback. My first neurologist did an EMG. There...
" After 3 years and numerous doctor ... referred me on to Rheum and then to Pain ... The pain doc did an injection and suggested ... biopsy to show large and small fiber neuropathy ... note, I did see my GP today for the pain
Posted: Feb 18, 2021