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861 total results

Comments (821)

I've been diagnosed with CIDP since 2017 and have had a Port implanted I to my...

https://connect.mayoclinic.org/comment/1057628/

I've been diagnosed with CIDP since

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Apr 26 10:36am

Specifically I have many classic symptoms of GBS / CIDP I was first diagnosed with GBS...

https://connect.mayoclinic.org/comment/604973/

have many classic symptoms of GBS / CIDP ... not definitive), as of yesterday, is CIDP

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: May 26, 2021

My Neurologist at Mayo scheduled me for a Sural nerve biopsy, which was a minor surgery...

https://connect.mayoclinic.org/comment/660091/

any treatments cured the rest of my CIDP ... Anti-mag peripheral neuropathy and CIDP

Discussion: Nerve biopsy test: Is it done by a neurologist or rheumatologist?

Support Group: Neuropathy

Posted: Dec 6, 2021

I also have CIDP. It's been 3 years of ups and downs. I've been on Plasma...

https://connect.mayoclinic.org/comment/91861/

I also have CIDP. ... says the numb feet are a gift from CIDP

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Apr 11, 2017

@tjp4 That is actually one of the ones that isn’t ruled out (or maybe not even...

https://connect.mayoclinic.org/comment/281396/

am not sure about is that I thought CIDP ... body, which I believe is typical for CIDP

Discussion: Undiagnosed, numbness, tingling, Muscle weakness and more

Support Group: Brain & Nervous System

Posted: Nov 5, 2019

Over the last 30 years, I have been diagnosed with and treated for chronic fatigue, fibromyalgia,...

https://connect.mayoclinic.org/comment/81509/

CIDP. ... The CIDP and small fiber neuropathy

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Nov 28, 2018

I have CIDP. I got the two Evusheld shots this Tuesday. It's Friday and so far...

https://connect.mayoclinic.org/comment/682227/

I have CIDP.

Discussion: Just approved: Evusheld for the pre-exposure prevention of COVID-19

Support Group: Transplants

Posted: Feb 18, 2022

@kathleen123 I received the same vaccine and I have CIDP. My daily symptoms have definitely been...

https://connect.mayoclinic.org/comment/649256/

received the same vaccine and I have CIDP

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Oct 29, 2021

Yes. I am taking IVIG subcutaneous, now once a week, because I'm in a flare. Actually,...

https://connect.mayoclinic.org/comment/848879/

Does anybody with CIDP has these symptoms

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Apr 24, 2023

I have been diagnosed with CIDP and have had numbness in lips and tongue. I also...

https://connect.mayoclinic.org/comment/1082874/

I have been diagnosed with CIDP and

Discussion: Does anyone have neuropathy with a numb and tingling tongue?

Support Group: Neuropathy

Posted: Jun 8 8:05am

Indeed, life is very interesting. So, you were diagnosed with CIDP. How was that done? I...

https://connect.mayoclinic.org/comment/1145357/

So, you were diagnosed with CIDP.

Discussion: Swallowing difficulties

Support Group: Neuropathy

Posted: Sep 22 7:39am

Thanks for your comment! I'm sorry you have been dealing with chronic pain and similar symptoms....

https://connect.mayoclinic.org/comment/1097690/

and they wouldn't have if I had CIDP

Discussion: Leg Weakness and Mobility Issues

Support Group: Autoimmune Diseases

Posted: Jul 1 10:15pm

Hello @savomic, Welcome to Connect. While we wait wait for others to share their experience, I...

https://connect.mayoclinic.org/comment/778224/

the first line agents effective in CIDP ... DADS-M while patients with DADS-I or CIDP ... do not respond well to first-line CIDP ... Treatment Approaches for Atypical CIDP

Discussion: DADS-M Neuropathy with Anti-Mag Antibodies...anybody else?

Support Group: Neuropathy

Posted: Nov 28, 2022

@slkanowitz , What an encouraging letter! Made ME feel better and I'm not even part of...

https://connect.mayoclinic.org/comment/1170632/

Have enough else, though, including CIDP

Discussion: CIDP diagnosis after severe GBS long ago, where do I start?

Support Group: Neuropathy

Posted: Nov 9 11:04am

Hi Barb @bjk3, Thank you for your comments, you're a sweet kid! I'm sorry to hear...

https://connect.mayoclinic.org/comment/1170771/

I'm sorry to hear you have CIDP