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963 total results
Comments (917)
My recommendation to anyone in your situation is to go to Mayo. There is no test...
https://connect.mayoclinic.org/comment/704053/
There is no test for CIDP, and there ... it as ideopathic, while suggesting CIDP
Hi Tab, welcome to Connect. I'd like to introduce you to a few other members who...
https://connect.mayoclinic.org/comment/155479/
other members who are talking about CIDP ... discussion
– Anyone been diagnosed with CIDP
Hi @hertz, Welcome to Connect. The best thing you can do to help yourself is learn...
https://connect.mayoclinic.org/comment/157769/
Neuropathy > Anyone been diagnosed with CIDP ... has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare
It has been my understanding that CIDP affects the peripheral nervous system. Your indication that it...
https://connect.mayoclinic.org/comment/667620/
It has been my understanding that CIDP
I don't pay a penny for IVIG or now SCIG infusions on a Medicare Advantage plan....
https://connect.mayoclinic.org/comment/1053059/
have a life without it, but I have CIDP
Ps; my physical therapist asked if I heard of (If I’m recalling correctly) CIDP. It may...
https://connect.mayoclinic.org/comment/1000976/
heard of (If I’m recalling correctly) CIDP
Can you tell me what those two drugs,Gammagard and Panzyga did for your symptoms. I did...
https://connect.mayoclinic.org/comment/955202/
Neuro docs mentioned those for my CIDP
Hi, just wondering if anyone has experience with "Chronic Inflammatory Demyelinating Polyneuropathy". My husband was just...
https://connect.mayoclinic.org/comment/734484/
infusion and we not even sure he has CIDP
Hello @johnbishop, I hadn't heard of Shining Through CIDP but went there and was pleasantly surprised...
https://connect.mayoclinic.org/comment/1170020/
hadn't heard of Shining Through CIDP ... opinions and information concerning CIDP ... I'm going to recontact GBS/CIDP
Sorry all I know is what I posted. My Dr.s’ reading of the studies suggests to...
https://connect.mayoclinic.org/comment/1114623/
existing drug but actually targeted for CIDP
@kgitti thank you for the links! I saved them so I can watch later when my...
https://connect.mayoclinic.org/comment/1074569/
How are you dealing CIDP?
I too am up for IVIG treatment for CIDP...I was keen to read responses to your...
https://connect.mayoclinic.org/comment/910512/
too am up for IVIG treatment for CIDP
I just question if this hormone may hopefully have some impact on other demyelinating type conditions....
https://connect.mayoclinic.org/comment/882562/
I have CIDP.
@lorirenee1 I'm meeting with the Abbott rep tomorrow to try adjusting the scs. We didn't talk...
https://connect.mayoclinic.org/comment/99382/
The doctor said CIDP is an umbrella
@slavichx Like Colleen, I did not notice your post when you placed it here on 9/15....
https://connect.mayoclinic.org/comment/318898/
Interestingly CIDP came up in two other ... One person with CIDP, @sparshall , said
Sounds like he has checked all the boxes for CIDP already. Try to get an appt...
https://connect.mayoclinic.org/comment/1114612/
like he has checked all the boxes for CIDP
I get IVIG infusions every three weeks for CIDP. At first I took Tylenol and Benadryl...
https://connect.mayoclinic.org/comment/1051209/
IVIG infusions every three weeks for CIDP
My husband is in hospital with CIDP syndrome and is on a ventilator and they are...
https://connect.mayoclinic.org/comment/613827/
My husband is in hospital with CIDP
I am starting Vyvgart as well. CIDP started in me a few months after Covid vaccine....
https://connect.mayoclinic.org/comment/1184751/
CIDP started in me a few months after
I’m in Australia and going in for my first round of 5 next week. Firstly diagnosed...
https://connect.mayoclinic.org/comment/925063/
with SFN then LFN as well and now CIDP
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