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307 total results
Comments (287)
I'm CALR, too. Been on HU for 6 years and bloodwork very stable in 400s once...
https://connect.mayoclinic.org/comment/1089100/
goiter, what the dermatologist calls erythromelalgia
My first diagnosis of erythromelalgia (EM) came from an ER doctor at a hospital. I went...
https://connect.mayoclinic.org/comment/1073027/
My first diagnosis of erythromelalgia
How are you doing now? I am spending most of my day on the couch because...
https://connect.mayoclinic.org/comment/1055336/
just read that new studies show that erythromelalgia
How are you doing? I have erythromelalgia and I spend most of my day on the...
https://connect.mayoclinic.org/comment/1055197/
I have erythromelalgia and I spend most
I have erythromelalgia. I have tried almost all of the meds. and they either did not...
https://connect.mayoclinic.org/comment/1054682/
I have erythromelalgia. ... there is ever a break-thru for this Erythromelalgia
Hello @debinsf8, Welcome to Connect. While you wait for @debschults to respond here is some information...
https://connect.mayoclinic.org/comment/988076/
More resources on Erythromelalgia: ... /
The Erythromelalgia Association – ... FAQs: https://erythromelalgia.org/resources ... what other members have shared:
– Erythromelalgia ... /connect.mayoclinic.org/discussion/erythromelalgia
Hi @hotfooted, I think more members might see your post if it were in the following...
https://connect.mayoclinic.org/comment/213692/
the following active discussion on Erythromelalgia ... Groups > Autoimmune Diseases > Erythromelalgia ... /connect.mayoclinic.org/discussion/erythromelalgia
Hello @babyur4me, thank you for the private message. @emfm4me responded to your last post with her...
https://connect.mayoclinic.org/comment/213688/
at the Jacksonville Mayo Clinic for Erythromelalgia
I had a normal EMG yesterday so I don’t have large fiber involvement. The Neurologist did...
https://connect.mayoclinic.org/comment/243662/
I also was diagnosed with Erythromelagia
Hi geronimo.. Sure hope the F&M oils help you.. They don't do so for everybody, but...
https://connect.mayoclinic.org/comment/260530/
and has made a huge difference in my Erythromelalgia
Hi Laura, It is good news that your EMG was normal. That rules out the large...
https://connect.mayoclinic.org/comment/256483/
not realize that you definitely have Erythromelagia ... I actually know very little about Erythromelagia
Thank you David.. Neuropathy and Erythromelalgia are taking a toll on my feet.. The toes on...
https://connect.mayoclinic.org/comment/260510/
Neuropathy and Erythromelalgia are taking
@lorirenee1, Hi Lori, thanks so much for writing. Yes, the neuro consul...ugh, oh ugh. First off...
https://connect.mayoclinic.org/comment/256446/
caused by a rare condition called Erythromelalgia
Guess I'm in the same boat as you.. It just isn't fun being sick all the...
https://connect.mayoclinic.org/comment/257233/
also have the hot red burning feet (Erythromelalgia
As suggested by the Mayo Clinic to treat my erythromelalgia, I use a compound prepared by...
https://connect.mayoclinic.org/comment/1240488/
suggested by the Mayo Clinic to treat my erythromelalgia
Hi Tom @mistert250, I'm not sure if they take telehealth patients but it would be worth...
https://connect.mayoclinic.org/comment/1245214/
www.mayoclinic.org/departments-centers/erythromelalgia-clinic-in-minnesota
I am still rather lost on Connect.. Hopefully this is where I continue with my reports...
https://connect.mayoclinic.org/comment/260502/
NEUROPATHY that I'm trying for Erythromelalgia
I have been recently diagnosed with erythromelalgia in both hands and feet. I am 53yr old...
https://connect.mayoclinic.org/comment/1018157/
have been recently diagnosed with erythromelalgia ... point me to the contact info for the erythromelalgia
Hi, sorry you deal with this. I have possible Erythromelalgia and have suffered many flares for...
https://connect.mayoclinic.org/comment/1255971/
I have possible Erythromelalgia and
Erythromelalgia started in my feet years ago... gradually, over the years, moved on to neuropathy, then...
https://connect.mayoclinic.org/comment/1261441/
Erythromelalgia started in my feet years
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