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Comments (917)

Good suggestion for me too. I'm waiting to hear if a particular neurologist at Brigham &Women's...

https://connect.mayoclinic.org/comment/92523/

I have CIDP and SFN, both worsening.

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Nov 28, 2018

Harley, Dr S wants me to take Rituximab but my insurance denied it based on it’s...

https://connect.mayoclinic.org/comment/1070602/

not an FDA approved indication for CIDP ... hospitalized for 4 days with worsening CIDP

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: May 19, 2024

Hi Sundance. I would strongly encourage you to see a rheumatologist to check for autoimmune diseases...

https://connect.mayoclinic.org/comment/1044190/

Also, a neurologist to rule out CIDP ... about 12 years for someone to think of CIDP

Discussion: Anyone familiar with MAST cell activation syndrome?

Support Group: Autoimmune Diseases

Posted: Apr 2, 2024

I have CIDP and experience chills (and sweats) frequently. I think it’s due to autonomic (involuntary)...

https://connect.mayoclinic.org/comment/1035314/

I have CIDP and experience chills (and ... meals to goose bumps, sweating and CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 17, 2024

This happened back in the late 90's and about all I recall is the Spinal Tap...

https://connect.mayoclinic.org/comment/72023/

I was also told CIDP is related to Guillain-Barre ... I was told CIDP is mostly pain while

Discussion: Burning Feet syndrome

Support Group: Neuropathy

Posted: Feb 6, 2020

My husband had recently fallen a few times due to leg weakness, no other problems. Had...

https://connect.mayoclinic.org/comment/745704/

I'm not so sure that he has CIDP ... immunoglobulin for the treatment of CIDP ... a neurologist that is an expert on CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Sep 5, 2022

I get IVIG every 3 weeks and it takes about 5 hours. I heard someone in...

https://connect.mayoclinic.org/comment/1319301/

rep told her it targets one area for CIDP ... t think they know about causes for CIDP

Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?

Support Group: Autoimmune Diseases

Posted: Jun 3 10:23am

Totally new to this but considering most of my doctors had to research CIDP ...I was...

https://connect.mayoclinic.org/comment/602544/

most of my doctors had to research CIDP ... seem to be any scientific research on CIDP

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: May 17, 2021

Hello…I’m sorry for your symptoms. Did you talk to your doctor about CIDP? Also did you...

https://connect.mayoclinic.org/comment/1247682/

Did you talk to your doctor about CIDP

Discussion: EMG results

Support Group: Neuropathy

Posted: Feb 28 9:57pm

Hang in there. I am just starting my journey with CIDP so I cannot gibe much...

https://connect.mayoclinic.org/comment/917663/

I am just starting my journey with CIDP

Discussion: CIDP, While I am waiting for the tests, genetic?

Support Group: Neuropathy

Posted: Aug 23, 2023

Thanks for the encouragement. Sometimes I get worse for a couple of weeks and then spontaneously...

https://connect.mayoclinic.org/comment/1227040/

t know if flare-ups are typical in CIDP

Discussion: CIDP diagnosis

Support Group: Autoimmune Diseases

Posted: Feb 1 1:48pm

I'm surprised they haven't ordered a lumbar puncture on you yet. I don't think CIDP and...

https://connect.mayoclinic.org/comment/1034913/

I don't think CIDP and some of these

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 16, 2024

Sorry but Gabapentin absolutely works for me. I started taking it for debilitating femoral nerve pain...

https://connect.mayoclinic.org/comment/1059649/

Now I have CIDP since 2020. ... CIDP has usually expected severe bilateral

Discussion: Do not take gabapentin, makes it worse

Support Group: Neuropathy

Posted: Apr 30, 2024

I am too scared to complain. Let me explain what I mean. In 2002 I got...

https://connect.mayoclinic.org/comment/1053226/

after all this two doctors brought up CIDP ... If I have CIDP do I have everything ... else or just CIDP?

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 18, 2024

Hi Debbie, At this my point studies indicate nld pn small fiber not cidp. I know...

https://connect.mayoclinic.org/comment/828558/

studies indicate nld pn small fiber not cidp

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Mar 19, 2023

*** Edit Update Nov 16, 2023 *** FPN Webinar: CIDP: From Soup to Nuts, with Sami...

https://connect.mayoclinic.org/comment/909525/

Update Nov 16, 2023 *** FPN Webinar: CIDP ... The program will also highlight how CIDP ... inflammatory demyelinating polyneuropathy (CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Aug 8, 2023

I have CIDP in my right foot and right shin and I had a right knee...

https://connect.mayoclinic.org/comment/1225954/

I have CIDP in my right foot and right

Discussion: Has anyone with CIDP had Knee replacement?

Support Group: Autoimmune Diseases

Posted: Jan 31 7:04am

I took gabapentin for about one year for my CIDP. It did not help me to...

https://connect.mayoclinic.org/comment/1034659/

gabapentin for about one year for my CIDP