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Comments (821)

I'm surprised they haven't ordered a lumbar puncture on you yet. I don't think CIDP and...

https://connect.mayoclinic.org/comment/1034913/

I don't think CIDP and some of these

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 16 9:12pm

Sorry but Gabapentin absolutely works for me. I started taking it for debilitating femoral nerve pain...

https://connect.mayoclinic.org/comment/1059649/

Now I have CIDP since 2020. ... CIDP has usually expected severe bilateral

Discussion: Do not take gabapentin, makes it worse

Support Group: Neuropathy

Posted: Apr 30 9:35am

Hang in there. I am just starting my journey with CIDP so I cannot gibe much...

https://connect.mayoclinic.org/comment/917663/

I am just starting my journey with CIDP

Discussion: CIDP, While I am waiting for the tests, genetic?

Support Group: Neuropathy

Posted: Aug 23, 2023

Totally new to this but considering most of my doctors had to research CIDP ...I was...

https://connect.mayoclinic.org/comment/602544/

most of my doctors had to research CIDP ... seem to be any scientific research on CIDP

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: May 17, 2021

I have the occasional drink now days....down from a ton prior to CIDP since I owned...

https://connect.mayoclinic.org/comment/1034881/

now days....down from a ton prior to CIDP ... With CIDP, I find that my tolerance

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Mar 16 7:08pm

*** Edit Update Nov 16, 2023 *** FPN Webinar: CIDP: From Soup to Nuts, with Sami...

https://connect.mayoclinic.org/comment/909525/

Update Nov 16, 2023 *** FPN Webinar: CIDP ... The program will also highlight how CIDP ... inflammatory demyelinating polyneuropathy (CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Aug 8, 2023

I am too scared to complain. Let me explain what I mean. In 2002 I got...

https://connect.mayoclinic.org/comment/1053226/

after all this two doctors brought up CIDP ... If I have CIDP do I have everything ... else or just CIDP?

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 18 3:42pm

Yes, I have also been diagnosed with CIDP. My symptoms are numbness, mostly feet, and the...

https://connect.mayoclinic.org/comment/805362/

Yes, I have also been diagnosed with CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Feb 2, 2023

I took gabapentin for about one year for my CIDP. It did not help me to...

https://connect.mayoclinic.org/comment/1034659/

gabapentin for about one year for my CIDP

Discussion: Neuropathy: Anyone have any experience with gabapentin?

Support Group: Neuropathy

Posted: Mar 16 12:15pm

Hi @hertz, Welcome to Connect. The best thing you can do to help yourself is learn...

https://connect.mayoclinic.org/comment/157769/

Neuropathy > Anyone been diagnosed with CIDP ... has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Sep 2, 2019

Can you tell me what those two drugs,Gammagard and Panzyga did for your symptoms. I did...

https://connect.mayoclinic.org/comment/955202/

Neuro docs mentioned those for my CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Oct 28, 2023

@slavichx Like Colleen, I did not notice your post when you placed it here on 9/15....

https://connect.mayoclinic.org/comment/318898/

Interestingly CIDP came up in two other ... One person with CIDP, @sparshall , said

Discussion: Searching For Diagnosis. CIDP? Please Help Me

Support Group: Neuropathy

Posted: Oct 15, 2020

It has been my understanding that CIDP affects the peripheral nervous system. Your indication that it...

https://connect.mayoclinic.org/comment/667620/

It has been my understanding that CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 4, 2022

Hi Debbie, At this my point studies indicate nld pn small fiber not cidp. I know...

https://connect.mayoclinic.org/comment/828558/

studies indicate nld pn small fiber not cidp

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Mar 19, 2023

Hi, just wondering if anyone has experience with "Chronic Inflammatory Demyelinating Polyneuropathy". My husband was just...

https://connect.mayoclinic.org/comment/734484/

infusion and we not even sure he has CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Aug 5, 2022

My recommendation to anyone in your situation is to go to Mayo. There is no test...

https://connect.mayoclinic.org/comment/704053/

There is no test for CIDP, and there ... it as ideopathic, while suggesting CIDP

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 30, 2022

Hi Tab, welcome to Connect. I'd like to introduce you to a few other members who...

https://connect.mayoclinic.org/comment/155479/

other members who are talking about CIDP ... discussion – Anyone been diagnosed with CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Jul 10, 2017

You are doing some good things for your health in general and that’s great. The CIDP...

https://connect.mayoclinic.org/comment/1049158/

The CIDP is autoimmune meaning your ... I hope the CIDP stays mild but at some

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 11 6:03pm

I just question if this hormone may hopefully have some impact on other demyelinating type conditions....

https://connect.mayoclinic.org/comment/882562/

I have CIDP.

Discussion: Could this apply to other similar conditions?

Support Group: Autoimmune Diseases

Posted: Jun 21, 2023

I too am up for IVIG treatment for CIDP...I was keen to read responses to your...

https://connect.mayoclinic.org/comment/910512/

too am up for IVIG treatment for CIDP

Discussion: Questions on IVIg treatment for what I have: Axonal sensory-motor

Support Group: Neuropathy

Posted: Aug 10, 2023