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405 total results
Comments (387)
Hi, I have just been diagnosed with CIDP and have started treatment. If you will join...
Hi, I have just been diagnosed with ... CIDP and have started treatment. ... If you will join the International CIDP
Support Group: Autoimmune Diseases
Posted: Oct 16, 2021
Thx again for your answer… I have a very able-bodied husband who is absolutely zero help...
well.I have Sjogren’s along with the CIDP ... made an immediate difference at 1st diagnosis
Discussion: feeling defeated
Support Group: Neuropathy
Posted: Oct 10, 2021
Hello @amieb, Thanks for sharing your IVIG experience for CIDP. 15 years is certainly a long...
for sharing your IVIG experience for CIDP ... certainly a long time to battle with CIDP ... Trying to get a diagnosis can be difficult
Support Group: Autoimmune Diseases
Posted: Oct 6, 2021
Hello @wolfgang, Welcome to Connect. It's good to hear you are searching for answers and learning...
learning as much as you can about your diagnosis ... can meet other members discussing CIDP ... video that discusses sorting out your diagnosis ... and treatment of CIDP -- https://www.gbs-cidp.org ... /cidp/all-about-cidp/ Do you mind
Support Group: Neuropathy
Posted: Sep 30, 2021
Hello Colleen, hello group, I'm 59y old, from Vienna/Austria and I have been diagnosed with CIDP...
with CIDP (not sure whether I'm ... They diagnosed some kind Neuropathy ... A lot of diagnosis has been done and ... just a year ago I was diagnosed CIDP ... anyone share some experience with CIDP
Support Group: Neuropathy
Posted: Sep 30, 2021
Hi @shariday and welcome to Mayo Clinic Connect. It sounds like you’ve just had the rug...
discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare ... with your physician regarding the diagnosis
Support Group: Autoimmune Diseases
Posted: May 26, 2021
Hello @jhn48110, I might be mistaken but I think CFS and BFS are a similar condition...
Excerpt from article below - "My diagnosis ... Living Each Day to the Fullest - GBS/CIDP ... Foundation: https://www.gbs-cidp.org
Support Group: Brain & Nervous System
Posted: May 19, 2021
@jtbt0406 Was a steroid treatment ever discussed with you in regards to CIDP? I see that...
ever discussed with you in regards to CIDP ... One thing I know is that when I was diagnosed ... with MS (and I know MS and CIDP are
Support Group: Autoimmune Diseases
Posted: Oct 25, 2020
@slavichx Like Colleen, I did not notice your post when you placed it here on 9/15....
Interestingly CIDP came up in two other ... One person with CIDP, @sparshall , said ... that it is very important to have the diagnosis
Support Group: Neuropathy
Posted: Oct 15, 2020
If your neuropathy affects your legs/feet and arms/hands, make sure you are getting a correct diagnosis....
make sure you are getting a correct diagnosis ... CIDP -- chronic inflammatory demyelinating ... CIDP is rare and often misdiagnosed. ... As a CIDP patient, I urge you to bring ... up the possibility of CIDP with your
Hi @10987654321, I moved your most recent message to the discussion you started earlier to keep...
that you are making progress in your diagnosis ... further with your investigation of CIDP ... idiopathic-progressive-polyneuropathy/ - CIDP ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy
Support Group: Neuropathy
Posted: Aug 29, 2020
I’ve never had an MRI related to my neuropathy. I have CIDP and was told nothing...
I have CIDP and was told nothing having ... I was diagnosed via a markedly abnormal
Support Group: Neuropathy
Posted: Jan 18, 2020
Rachel, I developed CIDP symptoms in 2016, but wasn’t accurately diagnosed until late December because doctors...
Rachel, I developed CIDP symptoms in ... 2016, but wasn’t accurately diagnosed ... few doctors have ever seen a case of CIDP ... He has treated a lot of CIDP patients
Support Group: Neuropathy
Posted: Jan 15, 2020
I have CIDP — chronic inflammatory demyelinating polyneuropathy, which is autoimmune — and receive 5 IVIG...
I have CIDP — chronic inflammatory demyelinating ... function in my legs before I was properly diagnosed
Support Group: Neuropathy
Posted: Jan 14, 2020
Hello @vradifegari -- I would like to add my welcome to Connect along with @gingerw and...
demyelinating polyradiculoneuropathy (CIDP ... Groups > Neuropathy > Anyone been diagnosed ... with CIDP? ... discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare ... Inflammatory Demyelinating Polyneuropathy (CIDP
Support Group: Neuropathy
Posted: Jun 25, 2019
Yes, have auto immune neuropathy cidp. Hands and feet unbearable pain. Took very long to diagnose.....
Yes, have auto immune neuropathy cidp ... Took very long to diagnose.. ... Finally diagnosed at Cornell Weil in
Support Group: Neuropathy
Posted: Dec 28, 2018
Hi Carrie @sherlock, welcome to Mayo Clinic Connect. I have small fiber PN but I only...
Groups > Neuropathy > Anyone been diagnosed ... with CIDP? ... discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare
Support Group: Neuropathy
Posted: Nov 26, 2018
I do and I've had it for about 16 years. it progressed very slowly over the...
infusions for many years to keep the CIDP ... I've been diagnosed with foot drop ... other members who are suffering from CIDP
Support Group: Autoimmune Diseases
Posted: May 28, 2018