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405 total results
Comments (387)
Hi, I have just been diagnosed with CIDP and have started treatment. If you will join...
https://connect.mayoclinic.org/comment/645749/
Hi, I have just been diagnosed with ... CIDP and have started treatment. ... If you will join the International CIDP
Thx again for your answer… I have a very able-bodied husband who is absolutely zero help...
https://connect.mayoclinic.org/comment/643857/
well.I have Sjogren’s along with the CIDP ... made an immediate difference at 1st diagnosis
Hello @amieb, Thanks for sharing your IVIG experience for CIDP. 15 years is certainly a long...
https://connect.mayoclinic.org/comment/642772/
for sharing your IVIG experience for CIDP ... certainly a long time to battle with CIDP ... Trying to get a diagnosis can be difficult
Hello @wolfgang, Welcome to Connect. It's good to hear you are searching for answers and learning...
https://connect.mayoclinic.org/comment/640722/
learning as much as you can about your diagnosis ... can meet other members discussing CIDP ... video that discusses sorting out your diagnosis ... and treatment of CIDP -- https://www.gbs-cidp.org ... /cidp/all-about-cidp/
Do you mind
Hello Colleen, hello group, I'm 59y old, from Vienna/Austria and I have been diagnosed with CIDP...
https://connect.mayoclinic.org/comment/640655/
with CIDP (not sure whether I'm ... They diagnosed some kind Neuropathy ... A lot of diagnosis has been done and ... just a year ago I was diagnosed CIDP ... anyone share some experience with CIDP
Hi @shariday and welcome to Mayo Clinic Connect. It sounds like you’ve just had the rug...
https://connect.mayoclinic.org/comment/604965/
discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare ... with your physician regarding the diagnosis
Hello @jhn48110, I might be mistaken but I think CFS and BFS are a similar condition...
https://connect.mayoclinic.org/comment/603003/
Excerpt from article below - "My diagnosis ... Living Each Day to the Fullest - GBS/CIDP ... Foundation: https://www.gbs-cidp.org
Ted. My wife, Cheryl, has neuropathy. It is a result of POEMS Syndrome. She was misdiagnosed...
https://connect.mayoclinic.org/comment/159467/
She was misdiagnosed in 2006, CIDP. ... Diagnosed correctly in 2009.
@jtbt0406 Was a steroid treatment ever discussed with you in regards to CIDP? I see that...
https://connect.mayoclinic.org/comment/238732/
ever discussed with you in regards to CIDP ... One thing I know is that when I was diagnosed ... with MS (and I know MS and CIDP are
@slavichx Like Colleen, I did not notice your post when you placed it here on 9/15....
https://connect.mayoclinic.org/comment/318898/
Interestingly CIDP came up in two other ... One person with CIDP, @sparshall , said ... that it is very important to have the diagnosis
If your neuropathy affects your legs/feet and arms/hands, make sure you are getting a correct diagnosis....
https://connect.mayoclinic.org/comment/324197/
make sure you are getting a correct diagnosis ... CIDP -- chronic inflammatory demyelinating ... CIDP is rare and often misdiagnosed. ... As a CIDP patient, I urge you to bring ... up the possibility of CIDP with your
Hi @10987654321, I moved your most recent message to the discussion you started earlier to keep...
https://connect.mayoclinic.org/comment/318895/
that you are making progress in your diagnosis ... further with your investigation of CIDP ... idiopathic-progressive-polyneuropathy/
- CIDP ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy
I’ve never had an MRI related to my neuropathy. I have CIDP and was told nothing...
https://connect.mayoclinic.org/comment/290581/
I have CIDP and was told nothing having ... I was diagnosed via a markedly abnormal
Rachel, I developed CIDP symptoms in 2016, but wasn’t accurately diagnosed until late December because doctors...
https://connect.mayoclinic.org/comment/219626/
Rachel, I developed CIDP symptoms in ... 2016, but wasn’t accurately diagnosed ... few doctors have ever seen a case of CIDP ... He has treated a lot of CIDP patients
I have CIDP — chronic inflammatory demyelinating polyneuropathy, which is autoimmune — and receive 5 IVIG...
https://connect.mayoclinic.org/comment/219619/
I have CIDP — chronic inflammatory demyelinating ... function in my legs before I was properly diagnosed
Hello @vradifegari -- I would like to add my welcome to Connect along with @gingerw and...
https://connect.mayoclinic.org/comment/266009/
demyelinating polyradiculoneuropathy (CIDP ... Groups > Neuropathy > Anyone been diagnosed ... with CIDP? ... discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare ... Inflammatory Demyelinating Polyneuropathy (CIDP
Yes, have auto immune neuropathy cidp. Hands and feet unbearable pain. Took very long to diagnose.....
https://connect.mayoclinic.org/comment/92561/
Yes, have auto immune neuropathy cidp ... Took very long to diagnose.. ... Finally diagnosed at Cornell Weil in
Hi Carrie @sherlock, welcome to Mayo Clinic Connect. I have small fiber PN but I only...
https://connect.mayoclinic.org/comment/156821/
Groups > Neuropathy > Anyone been diagnosed ... with CIDP? ... discussion/has-anyone-on-this-feed-been-diagnosed-with-cidp-its-very-rare
HI, I'm Carrie . I was diagnosed with CIDP and Small Fiber Neuropathy about 2 1/2...
https://connect.mayoclinic.org/comment/156820/
I was diagnosed with CIDP and Small ... finding another neurologist expert in CIDP
I do and I've had it for about 16 years. it progressed very slowly over the...
https://connect.mayoclinic.org/comment/81500/
infusions for many years to keep the CIDP ... I've been diagnosed with foot drop ... other members who are suffering from CIDP
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