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548 total results
Comments (480)
Hi @gnest, your can read more about histotripsy for liver metastases in - Has anyone out...
anyone out there tried Histotripsy for tumors ... histotripsy treatment for metastatic NETs ... i-have-recently-learned-of-a-treatment-for-metastatic-neuroendocrine
Support Group: Pancreatic Cancer
Posted: Jan 7, 2025
@rachismarie Sorry to hear about all you’re going thru. I understand how scary it can all...
DIPNECH can lead to lung NETs (neuroendocrine ... I have lung NETs (typical carcinoids ... It also can slow tumor growth.
Posted: Nov 29, 2024
Hi Teresa, I had a tiny NET found in my rectum on my first colonoscopy. It...
Hi Teresa, I had a tiny NET found in ... These are slow growing tumors. ... new sphincter saving methods now for neuroendocrine ... rectal tumors which is totally different ... oncology staff possible trained im NETs
I’ve had similar issues following a surgery (Whipple procedure) to remove a neuroendocrine tumor (NET) from...
surgery (Whipple procedure) to remove a neuroendocrine ... tumor (NET) from my small intestine ... The tumor was a gastrinoma, meaning ... rule out the presence of a gastinoma tumor
Support Group: Digestive Health
Posted: Jul 5, 2024
We’ve been treated at Mayo for neuroendocrine tumor for five years. During that. My wife had...
We’ve been treated at Mayo for neuroendocrine ... tumor for five years. ... My wife had three net tests from WREN ... The results of the net test were inconsistent ... Our oncologist at Mayo thought the net
Posted: Jan 23, 2020
I had my PET scan as well as MRI brain and am told no tumors are...
as well as MRI brain and am told no tumors ... where the surgery was performed showed neuroendocrine ... differentiation of breast and not actual neuroendocrine ... breast but is not the same as actual NET
Support Group: Breast Cancer
Posted: Mar 20, 2019
Did the path report tell you the size of the tumor? The fact that your son...
path report tell you the size of the tumor ... errant cell left behind when original tumor ... medical profession is more aware of neuroendocrine ... But I urge you to consult with a NET
Posted: Nov 12, 2018
Hello Douglas @douger I am sorry to hear of the difficulties you are experiencing with this...
also has a rare form of malignancy, neuroendocrine ... tumors, I can understand your frustration ... to invite some other members of our NET
Support Group: Head & Neck Cancer
Posted: Oct 24, 2017
@hopeful33250 I am very curious about your NETs. Did they present in your breast then? My...
hopeful33250 I am very curious about your NETs ... My second breast tumor was neuroendocrine
Support Group: Breast Cancer
Posted: Sep 1, 2020
I'm so sorry your sister has to go through this. My husband was diagnosed with stage...
tumors 19 years ago. ... Most neuroendocrine tumors of the liver ... this such as www.netrf.org www.ncf.net ... good place to start: https://www.ncf.net ... newlydiagnosed There is a directory of net
@matt76 I have been there. I got progressively sicker over three years and lost over 100...
I have a pancreatic neuroendocrine tumor ... Second, she should find a NET (neuroendocrine ... tumor) specialist as quickly as possible ... NETs are pretty rare. ... resource at the moment to look up NET
Second opinion is always advisable. Hopefully you can find a dr that treats Pnet patients regularly....
also a Facebook page “Ronny Alan’s nueroendocrine ... tumor group”. ... people from around the world with net ... tumors are part of his group.
Posted: May 15, 2024
@cms426, I'm tagging @frendo, who posted here: - Anyone diagnosed with a primary neuroendocrine brain tumour?...
- Anyone diagnosed with a primary neuroendocrine ... brain tumour? ... discussion/anyone-diagnosed-with-a-primary-neuroendocrine-brain-tumour ... long journey with neuroblastoma and NETs ... diagnosis, @hopeful33250 has also had NETs
@ginny100 I've been taking Kisqali (CDK 4/6 inhibitor) and Letrozole (AI) for 3+ years now due...
I had the chest wall tumor removed ( ... third cancer med for non-related lung NETs ... (neuroendocrine lung cancer) two months
Support Group: Breast Cancer
Posted: Apr 8, 2024
Hi jestjohn, I’d be interested to know the results of your Dec. 15, 2023 PET scan....
the surgical removal of a malignant neuroendocrine ... tumor and several lymph nodes (one ... uptake that is usually indicative of NET
Hi mama neuroendocrine, it sound like you’re on a similar path of hope in managing this...
Hi mama neuroendocrine, it sound like ... similar path of hope in managing this NET ... 80% reduction in size and numbers of tumors ... gall bladder, and debulked all the tumors ... treatments to knock the remaining NET
Posted: Oct 25, 2023