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301 total results

Comments (281)

My neurologist thought I had erythromelalgia until I pointed out that my SCN9A gene is normal....

https://connect.mayoclinic.org/comment/1113474/

My neurologist thought I had erythromelalgia ... Erythromelagia can be caused by other

Discussion: Idiopathic Neuropathy started with Erythromelalgia

Support Group: Neuropathy

Posted: Jul 28, 2024

@rwinney and everyone yes I got p.n. in hands and feet 2016 after taking a quinolone...

https://connect.mayoclinic.org/comment/749197/

I did google Erythromelalgia and also

Discussion: Temperature intolerance and sensitivity - Autonomic Neuropathy?

Support Group: Neuropathy

Posted: Sep 13, 2022

I'm interested in trying to reverse my SFN and have seen it mentioned a few times...

https://connect.mayoclinic.org/comment/241216/

I am Type 2 Diabetic and have Erythromelalgia

Discussion: Small Fiber Neuropathy?

Support Group: Neuropathy

Posted: Jun 28, 2019

Dear runwthme, I am heavy-hearted to read about your plight. I am so very sorry you...

https://connect.mayoclinic.org/comment/213732/

and/or hemmatologist doc for your Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Oct 3, 2020

My first diagnosis of erythromelalgia (EM) came from an ER doctor at a hospital. I went...

https://connect.mayoclinic.org/comment/1073027/

My first diagnosis of erythromelalgia

Discussion: Covid Legs and Toes

Support Group: Post-COVID Recovery & COVID-19

Posted: May 22, 2024

Prednisone 10 mg/day for about 12 years following serendipitous discovery: Out of concern that new, severe...

https://connect.mayoclinic.org/comment/1017907/

cases, the neuropathy presented as an erythromelalgia-like

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 18, 2024

Thanks for moving this post. I’m still trying to figure out this site. Symptoms started 3...

https://connect.mayoclinic.org/comment/213729/

connective tissue disease, and finally Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Oct 3, 2020

It is good to talk to other people on here who have the same pain and...

https://connect.mayoclinic.org/comment/1040807/

People just don’t Understand erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Mar 26, 2024

Thank you so much for your reply. It makes me feel so much better that someone...

https://connect.mayoclinic.org/comment/1058164/

would only work for the pain if the erythromelalgia ... do not know why or what causes the erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Apr 27, 2024

Good evening @dipperlip1 ..........greetings. Are you 85 years old now? I just turned 82 on Monday....

https://connect.mayoclinic.org/comment/1028979/

read about your chronic symptoms of Erythromelalgia

Discussion: Peripheral Neuropathy and benign fasciculation syndrome.

Support Group: Neuropathy

Posted: Mar 6, 2024

They did an ECG on my heart and everything was normal. I've had a history of...

https://connect.mayoclinic.org/comment/635113/

of the burning hand's syndrome (erythromelalgia

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Sep 13, 2021

@lorirenee1, Hi Lori, thanks so much for writing. Yes, the neuro consul...ugh, oh ugh. First off...

https://connect.mayoclinic.org/comment/256446/

caused by a rare condition called Erythromelalgia

Discussion: Does anyone find that a type of shoe helps your foot neuropathy?

Support Group: Neuropathy

Posted: May 4, 2019

Desperate for Answers – Persistent chronic Headache, Red Ears, and Nausea with No Diagnosis - Thanks...

https://connect.mayoclinic.org/comment/1169300/

chronic headache -Red ear syndrome -Erythromelalgia

Discussion: Does anyone have daily persistent headache all day, every day?

Support Group: Headache & Migraine

Posted: Nov 7, 2024

Thanks all I've had many tests in the last one and a half years, including x-rays,...

https://connect.mayoclinic.org/comment/1367574/

Someone's non expert floated idea of erythromyalgia

Discussion: Spreading pain and swelling

Support Group: Chronic Pain

Posted: Aug 10 9:53am

John, you are the mentor that I always want to read... I have followed you for...

https://connect.mayoclinic.org/comment/1357098/

Erythromyalgia was the initial diagnosis ... eventually some folks started the Erythromyalgia

Discussion: Increasingly Difficult to Accept Peripheral Neuropathy

Support Group: Neuropathy

Posted: Jul 26 3:36pm

It's been awhile and I've been reading your replies and thank you for them. Otolaryngology had...

https://connect.mayoclinic.org/comment/1193068/

dermatology consult and mentioned erythromelagia

Discussion: Neuropathy? Endocrinology? Something else.

Support Group: Neuropathy

Posted: Dec 18, 2024

Hello, Do I reply to all or just to one person? I am still learning this...

https://connect.mayoclinic.org/comment/1057135/

discussions about Sjogren's and erythromyelagia

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Apr 25, 2024

I take alpha lipoic acid after getting neuropathy from chemo from breast cancer, I take many...

https://connect.mayoclinic.org/comment/979883/

I thought I had erthromelalgia for 20

Discussion: Erythromelalgia: What medications or therapies have helped you?

Support Group: Autoimmune Diseases

Posted: Dec 13, 2023

Have Erythromelagia Symptoms are an intolerance to hot environments direct sun and cold. Feet and hands...

https://connect.mayoclinic.org/comment/905607/

Have Erythromelagia Symptoms are an

Discussion: Erythromelalgia: What medications or therapies have helped you?

Support Group: Autoimmune Diseases

Posted: Aug 1, 2023

@erythromelalgiaca I see that you posted the same message twice, thinking that 1 person didn’t receive...

https://connect.mayoclinic.org/comment/883304/

@erythromelalgiaca I see that you

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Jun 22, 2023