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Comments (2,407)

@sundance6 you are right, It is very difficult to get a correct diagnosis for an autoimmune...

https://connect.mayoclinic.org/comment/239832/

I also had a biopsy to confirm the GCA

Discussion: Difficult case, several diagnosis, no solution yet

Support Group: Autoimmune Diseases

Posted: Feb 5, 2019

Yes. Neck and shoulder pain started after my first Pfizer vax in May 2021. This pain...

https://connect.mayoclinic.org/comment/744099/

dl-information-for-new-and-maybe-not-so-new-patients-with-polymyalgia-rheumatica-pmr-and-giant-cell-arteritis-gca

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 1, 2022

"Well I am in the early stages of treatment, begun with Prednisone about two weeks ago....

https://connect.mayoclinic.org/comment/944769/

pmc/articles/PMC9261375/ Since PMR/GCA

Discussion: A month into my diagnosis with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 9, 2023

Hello @jesfactsmon. I live in British Columbia, Canada, so Marijuana is recently legal in my province....

https://connect.mayoclinic.org/comment/310490/

, in the past that was prior to my GCA

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Jan 9, 2021

@dadcue, @johnbishop, @ropnrose...and alll... dadcue, your journey is very similar to mine in the way these...

https://connect.mayoclinic.org/comment/1203913/

was about 30mg at first with PMR and GCA

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 4:16pm

"Would you mind sharing what medication you took to take off the Prednisone? Do you still...

https://connect.mayoclinic.org/comment/1040764/

(tocilizumab) was FDA approved for GCA ... It wasn't GCA either but an ophthalmologist

Discussion: What steroid dosage did you start on? Did you find the right dosage?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2024

PMR was my primary diagnosis and I was treated with daily prednisone for 12 years. I...

https://connect.mayoclinic.org/comment/1125409/

Actemra is FDA approved for GCA.

Discussion: Actemra and prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 17, 2024

Hello @microbe1943, I would like to add my welcome along with @colleenyoung and other members. I...

https://connect.mayoclinic.org/comment/619476/

a symptom of Giant Cell Arteritis (GCA

Discussion: Pain flare after Dexascan 15 min flat on back

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 24, 2021

That’s understandable. Apologies for the delayed reply. I agree it’s frustrating treatment options are limited seemingly...

https://connect.mayoclinic.org/comment/1052115/

there’s still the risk of developing GCA

Discussion: Small Dose Prednisone Therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 17, 2024

I just found this article in the Medical Journal of Australia (MJA) while waiting for midnight...

https://connect.mayoclinic.org/comment/989420/

Splitting your dose for PMR/GCA may

Discussion: Just diagnosed and still hurt in am with 20 mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 31, 2023

I’m new to the group and will throw my 2-cents worth in here re: vaccines. I’ve...

https://connect.mayoclinic.org/comment/941236/

had subsequent hospitalizations for GCA

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 3, 2023

Hi @pierwell, you have my sympathy, 10 years with this terrible condition! In 11/2023 I started...

https://connect.mayoclinic.org/comment/1245272/

Also went on prednisone for the GCA.

Discussion: Occipital Neuralgia

Support Group: Chronic Pain

Posted: Feb 25 12:39pm

I have taken 60 mg many times. I would only take 60 mg for a few...

https://connect.mayoclinic.org/comment/824291/

That is a GCA dose ... not a PMR dose

Discussion: PMR, prednisone and Poor Sleep or Insomnia

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 10, 2023

Hi, I'm on Plaquenil 200-400 since April and now Low Dose Naltrexone, a week tapered up...

https://connect.mayoclinic.org/comment/956105/

I do not want to bring on GCA!

Discussion: PMR: Hydroxychloroquine or low dose naltrexone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 30, 2023

@redboat Have you ever been diagnosed with anything more specific or is it still "presumptive" PMR...

https://connect.mayoclinic.org/comment/931264/

still "presumptive" PMR and/or GCA

Discussion: Corticosteroid injections for polymyalgia rheumatica

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 17, 2023

Before having my GCA and losing sight in one eye... I had two bouts with depression;...

https://connect.mayoclinic.org/comment/867346/

Before having my GCA and losing sight

Discussion: Do you have depression/anxiety as well as autoimmune illness?

Support Group: Autoimmune Diseases

Posted: May 26, 2023

Trying to figure out if I have PMR so looking for help on symptoms others experienced...

https://connect.mayoclinic.org/comment/712216/

continued to today but doctors rule out GCA

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2022

@doreenc Wow! You have been through it!! I tend to disagree with you about the "fragility...

https://connect.mayoclinic.org/comment/1098574/

first rheumatologist (he has PMR and GCA ... He's on another drug for the GCA

Discussion: Fracturing easily - how do you manage everyday life?

Support Group: Osteoporosis & Bone Health

Posted: Jul 3, 2024

Hello, I can say that (the research is out there) I absolutely contracted PMR as a...

https://connect.mayoclinic.org/comment/1128743/

And of course GCA is lurking in the

Discussion: Could your PMR have been a result of the Covid mRNA vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 22, 2024

@legacyrock, @charlanepj and all... I'm 77 years old. An ascending thoracic aortic aneurysm was diagnosed several...

https://connect.mayoclinic.org/comment/1036459/

Prednisone and Methotrexate for PMR and GCA

Discussion: Ascending Aneurysm - Surgery Experience and Recovery/Risk

Support Group: Aortic Aneurysms

Posted: Mar 19, 2024