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333 total results
Comments (321)
@kyoto and @lisalucier The arachnoid cysts sound so much to me like Tarlov cysts, also called...
https://connect.mayoclinic.org/comment/51735/
kyoto and @lisalucier
The arachnoid cysts ... sound so much to me like Tarlov cysts ... , also called perineural cysts. ... just told me that Rita, founder of Tarlov ... Cyst Foundation, just met with the
@sherri2022 I've had 5 or 6 Tarlov cysts, also called perineural cysts, in my sacral/coccyx area...
https://connect.mayoclinic.org/comment/245668/
@sherri2022 I've had 5 or 6 Tarlov ... cysts, also called perineural cysts ... may help your husband to go the The Tarlov ... Cyst Foundation website to learn more ... about the cysts, connect with people
@wisco50 Actually, no, not really. I only take 1/2 (50mg) during the day and then just...
https://connect.mayoclinic.org/comment/150826/
I have large Tarlov cysts compressing
@donfeld I'm so sorry to hear about your pain. I can absolutely relate as I spent...
https://connect.mayoclinic.org/comment/178531/
Look to see if there are Tarlov cyst ... know nothing to very little about Tarlov ... cysts and will tell you that it'
I sadly am in your same boat. I have several large sacral Tarlov cysts with the...
https://connect.mayoclinic.org/comment/243345/
I have several large sacral Tarlov cysts ... The cysts are eroding my tailbone and ... the subject and do not understand Tarlov ... cyst at all. ... overdo it. on Facebook there is a Tarlov
I live in Wisconsin and I've been seen at Mayo Clinic Rochester. I was there back...
https://connect.mayoclinic.org/comment/245939/
about that because I have multiple Tarlov ... cysts, also called perineural cysts ... These cysts were present over 15 years ... only done a couple surgeries on these cysts ... Feigenbaum from the Tarlov Cyst Institute
I ended up with multiple Tarlov cysts in my sacral area after a slip and fall...
https://connect.mayoclinic.org/comment/243339/
I ended up with multiple Tarlov cysts ... The cysts were never mentioned to me ... what was causing my pain, that these cysts ... would like any other info. look up The Tarlov ... Cyst Foundation.
@bluej You should be able to go out of state. If your insurance company doesn't have...
https://connect.mayoclinic.org/comment/647754/
have someone that specializes in the Tarlov ... still deny you contact Reta from the Tarlov ... Cyst Disease Foundation. ... The injury that caused the cysts was ... One of my doctors also had one Tarlov
Thanx for the reply. I am 65, no childhood problems except horrible periods, crazy pain cramps,...
https://connect.mayoclinic.org/comment/1054513/
I also have Phleboliths and Tarlov cysts
@jimhd I apologize for butting in on your conversations but... I have some info. to share...
https://connect.mayoclinic.org/comment/150754/
The fall caused Tarlov cysts to form ... years causing a ton of pain and they cysts
@jenapower I have also been diagnosed with Tarlov cysts. I have 5 or 6 of them...
https://connect.mayoclinic.org/comment/152334/
I have also been diagnosed with Tarlov ... cysts.
@aquafun23 and all others... I am so sorry to hear of your pain and that you're...
https://connect.mayoclinic.org/comment/243359/
strongly urge all of you reach out to the Tarlov ... Cyst Foundation and Dr. ... Tarlov Cysts go hand in hand with EDS
@rwinney Back in 2017 my husband and I agreed to make this our last effort to...
https://connect.mayoclinic.org/comment/158316/
so that she happens to have had a Tarlov ... cyst too. ... ve had PN for a while now from the Tarlov ... cysts but within the last month the
@ablc Welcome to Connect. I took some time to think about your message before responding. You...
https://connect.mayoclinic.org/comment/669407/
visit with your physician about the Tarlov ... cysts? ... to consult for an answer on if your Tarlov ... cysts could be causing symptoms or
Yes, the Fentanyl did work for me but every doctor I saw for pain refused to...
https://connect.mayoclinic.org/comment/662680/
involves the bladder and bowel (from the Tarlov ... cysts) so I'm sure you can imagine
Hello, Here are the findings from the two MRIs I had yesterday on my thoracic spine...
https://connect.mayoclinic.org/comment/740735/
Small Tarlov cysts are present involving ... few scattered small cortical renal cysts
@colleenyoung Hi Colleen, Thanks for adding "Advocating for Yourself". I'm sorry to sound so angry in...
https://connect.mayoclinic.org/comment/252742/
She pointed out the Tarlov cysts on ... but because the doctors ignored the cysts
So sorry you are suffering without answers or treatment. Did you have a pelvic or sacrum...
https://connect.mayoclinic.org/comment/1236956/
Any chance you might have a tarlov cyst ... Here is a Tarlov organization talking
I have had lifelong connective tissue disease and weakness with nothing diagnosed...at age 53 I'm finally...
https://connect.mayoclinic.org/comment/1237991/
imbalances, early age osteoporosis, tarlov ... cyst disease and joint problems...can
Hello, I had an extensive workup and after several orthos who did not know the cause...
https://connect.mayoclinic.org/comment/1200133/
was finally diagnosed with several Tarlov ... cyst in my sacral area. ... cyst ,in Dallas, Texas who recommended ... read many firsthand accounts from a “Tarlov ... cyst support group on Facebook”.
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