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257 total results
Comments (238)
Hi, Twelve years to get a diagnosis. A trip to ED with high BP which couldn't...
the right time and bingo Autonomic polyneuropathy ... What a relief to know I wasn't going ... It can suddenly drop to what is described ... So far, the only hint of help has been
re: burning feet. My pain started as burning feet and progressed to stabbing pain and other...
is Chronic Ideopathic Demylinating Polyneuropathy ... the doctors could find and nothing helped ... effect on my pain but now it seems to help ... our bodies are always changing and what ... didn't work, now helps.
Support Group: Neuropathy
Posted: Feb 6, 2020
I have been a part of this thread of polyneuropathy for several months. Mine is sensory...
have been a part of this thread of polyneuropathy ... I have found Gabapentin has helped with ... main problem, though now that I know what
Support Group: Neuropathy
Posted: Jan 4, 2020
I live in Sioux Falls SD. I have had several auto immune problems for years( Graves...
I had to have what was left of a molar ... has told me want to expect from the polyneurapahy ... What is the out look? ... What should I be doing? ... Should I be getting further medical help
Support Group: Neuropathy
Posted: Nov 4, 2018
Hello Carlos @carlitto, Welcome to Connect. I can understand your frustration trying to know what to...
understand your frustration trying to know what ... Masquerading as Diabetic Autoimmune Polyneuropathy ... If you would like to seek help from
Support Group: Neuropathy
Posted: Nov 2, 2018
Hi Kevin, I wasn't exactly sure what the diagnosis was not able to find much specific...
Hi Kevin, I wasn't exactly sure what ... Not sure if it's helpful but you may ... ;q=+idiopathic+sensorimotor+axonal+polyneuropathy ... as_sdt=1%2C24&as_sdtp= Hope this helps
Support Group: Neuropathy
Posted: Jul 19, 2017
Glad to see this group. I have idiopathic sensorimotor axonal polyneuropathy, which means, in my case,...
have idiopathic sensorimotor axonal polyneuropathy ... in my experience that drug was not helpful ... What's next? Don't know. Kevin
Support Group: Neuropathy
Posted: Jul 19, 2017
I am Swiss, born in 1939 and have been diagnosed idiopathic polyneuropathy some 13 years ago,...
and have been diagnosed idiopathic polyneuropathy ... could help such attacks, it is like ... bilateral knee arthrosis does not help ... back to a hospital in order to check what ... could be reduced first and in what
Support Group: Neuropathy
Posted: Apr 11, 2017
The reason I was retested is I felt the metoprolol succinate was not doing any good....
the heart monitor showed it was not helping ... Severe sensorimotor peripheral polyneuropathy ... What a lot of people will not tell you
Support Group: Autoimmune Diseases
Posted: May 16, 2024
My motor and sensory polyneuropathy started in feet/legs, but slowly left hand got weaker and weaker,...
My motor and sensory polyneuropathy ... therapy, so far it is hard to say if helping ... I am terrified of what it will be like
Support Group: Neuropathy
Posted: Aug 17, 2023
Ray, I feel like you should always be prepared when you go to a doctor and...
down the questions you want to ask helps ... I have peripheral sensorimotor polyneuropathy ... learned to speak up and tell them what ... I need to know as well as what I think
Support Group: Neuropathy
Posted: Aug 12, 2023
Welcome @gotosarah, I'm glad you found Connect. You are definitely not alone and hopefully you can...
where you can meet others discussing polyneuropathy ... and learn what they have shared. ... --- Idiopathic Polyneuropathy: My endless ... connect.mayoclinic.org/discussion/idiopathic-polyneuropathy-my-endless-journey-to-a-near-diagnosis ... neuropathy and things you can do to help
Support Group: Neuropathy
Posted: Jun 3, 2023
@ray666 - I too have idiopathic polyneuropathy - sensory and motor which gives me bad balance....
ray666 - I too have idiopathic polyneuropathy ... to walk with a little zig zag, cane helps ... I usually get...what's that?
Support Group: Neuropathy
Posted: Feb 28, 2023
Hello Todd, I am so sorry to hear about your diagnosis! First and foremost in this...
As a healthcare provider I ask what ... give you your diagnosis of idiopathic polyneuropathy ... pain and your medications are not helping
Support Group: Neuropathy
Posted: Jan 22, 2023
@sam1942, Here are discussions where others with similar symptoms have shared their experience and what helps:...
symptoms have shared their experience and what ... helps: -- Burning Mouth Syndrome ( ... burning-mouth-syndrome-clonazepam/ -- Small Fiber Polyneuropathy ... /connect.mayoclinic.org/discussion/polyneuropathy
Support Group: Neuropathy
Posted: Jan 21, 2023
Hello @26sabrina and @danawyn, I would like to welcome you both to Connect. One of the...
others and also learn from each other what ... has helped ... still searching for something that helps ... Chronic Inflammatory Demyelinating Polyneuropathy
Support Group: Neuropathy
Posted: Dec 8, 2022
Sure! (short version) Following my initial J&J vaccine, I started having numb spots throughout my body....
induction, I was told it was axonal polyneuropathy ... Pregabaline and Tramadol helped take ... Pain is half of what it was a year ago
Support Group: Neuropathy
Posted: Dec 8, 2022
Every year since I was born, my birthday was a special day for me. As a...
However, on my 61st birthday, what started ... called “severe axonal sensorimotor polyneuropathy ... I needed help entering and leaving a ... places in hopes that someone could help ... I have suffered with polyneuropathy
Support Group: Neuropathy
Posted: Dec 1, 2022
Hi Jeff @jeffrapp, My primary care doctor wanted me to take a statin to help lower...
doctor wanted me to take a statin to help ... and started doing some research on what ... helps and causes. ... Masquerading as Diabetic Autoimmune Polyneuropathy
Support Group: Neuropathy
Posted: Oct 26, 2022
Yes, a neurosurgeon from Northwestern took an updated MRI and saw it and prescribed an internal...
nothing for me except testing for polyneuropathy ... which I have, and he only concurred what ... Also, Medicare does not have any help
Support Group: Spine Health
Posted: Oct 18, 2022