How to best explain?
I have been asked to write something about my experience living with idiopathic polyneuropathy. I have found that since receiving my diagnosis what a tough time it can be to explain to friends what the symptoms "feel" like. Most of my friends assume I am suffering a terrible dizziness. I tell them, "No, I don't feel 'dizzy'." I tell them my head remains clear. The best I have been able to come up with so far is to tell my friends: "My polyneuropathy feels more like I am onboard a ship in a lightly rolling sea and I am being gently tossed from side to side." I am wondering if any of you have found a better way to explain what the sensation is like. I'd love to hear what you've come up with. Thanks!