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579 total results

Comments (527)

Welcome to Connect, @dot65. I moved your message to this discussion so you could meet others...

https://connect.mayoclinic.org/comment/132608/

meet others who are talking about myelofibrosis

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2017

So sorry you are dealing with this. It is overwhelming. I can relate. In January, was...

https://connect.mayoclinic.org/comment/1520149/

January, was diagnosed with High Risk Myelofibrosis ... Oncologist chose VONJO/Pacritinib to treat Myelofibrosis

Discussion: This is new, overwhelming. Wife is diagnosed with PV, we need support

Support Group: Blood Cancers & Disorders

Posted: Mar 5 9:18am

I posted a year ago about seeing a specialist in Myelofibrosis at Mayo Clinic. Dr. Tefferi...

https://connect.mayoclinic.org/comment/1412441/

year ago about seeing a specialist in Myelofibrosis ... still not feeling any effects of the Myelofibrosis

Discussion: Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2025

@gajokos I’m bad with remembering dates and timelines, but yes, I probably joined this forum fairly...

https://connect.mayoclinic.org/comment/1503486/

fairly soon after being diagnosed with Myelofibrosis ... - I have taken no medicine for the Myelofibrosis

Discussion: Anyone have Myelofibrosis (CMS-HCC)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11 7:06pm

I found it online. It's an open access article in Volume 67 (January 2024) of the...

https://connect.mayoclinic.org/comment/1226430/

to post-essential thrombocythemia myelofibrosis

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 31, 2025

Wowza! What a great forum here! I am in the process of having a BMT for...

https://connect.mayoclinic.org/comment/1358794/

the process of having a BMT for my Myelofibrosis

Discussion: Reduced intensity BMT

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 28, 2025

Hi, @toste. I looked at your profile and see that you have found Myelofibrosis-related discussions and...

https://connect.mayoclinic.org/comment/1433259/

profile and see that you have found Myelofibrosis-related

Discussion: Are there support groups for Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2025

Hi Steve, I couldn't find any evidence-based mentions of serrapeptase being used to help treat myelofibrosis....

https://connect.mayoclinic.org/comment/132609/

serrapeptase being used to help treat myelofibrosis

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Feb 24, 2017

Wow. I'm terrible at this posting stuff I guess. I just saw that you had asked...

https://connect.mayoclinic.org/comment/1039752/

From what I understand, myelofibrosis

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2024

@steiner Jakafi is the drug I take for CMML and myelofibrosis. The cancers were separate. Each...

https://connect.mayoclinic.org/comment/1432393/

Jakafi is the drug I take for CMML and myelofibrosis

Discussion: MDS-CMML-1: Anyone dealing with pruritus (itching)?

Support Group: Blood Cancers & Disorders

Posted: Nov 6, 2025

How does one know that Prostate cancer is progressing? What are the symptoms? What clues does...

https://connect.mayoclinic.org/comment/953505/

I also have primary myelofibrosis.

Event: Prostate Cancer Support Group Meeting

Posted: Oct 25, 2023

Welcome to Connect, @ronegeorge. Thank you for sharing your encouraging experience with using Hydroxyurea to control...

https://connect.mayoclinic.org/comment/1081066/

using Hydroxyurea to control your myelofibrosis

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2024

It’s been a blessing to connect daily with others who share similar concerns. I was diagnosed...

https://connect.mayoclinic.org/comment/1452770/

I was diagnosed with myelofibrosis in

Discussion: Thanks: Just want to say thank you

Support Group: Blood Cancers & Disorders

Posted: Dec 4, 2025

I am seeing Dr. Teffari at Mayo Clinic. He's the lead specialist in the world for...

https://connect.mayoclinic.org/comment/1194113/

, "You are not going to die of Myelofibrosis ... You will eventually die WITH Myelofibrosis

Discussion: Primary Myelofibrosis: Continue watch & wait? 2nd opinion?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

Hi davi0937, Thank you for posting. Great to had 17 years before getting myelofibrosis. Does that...

https://connect.mayoclinic.org/comment/1348903/

Great to had 17 years before getting myelofibrosis

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2025

@nisi I just posted this to someone asking about Jakafi and ET: “ I was placed...

https://connect.mayoclinic.org/comment/1527366/

10 years until my ET converted to Myelofibrosis

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: 2 days ago

I have just been diagnosed with Myelodysplastic Syndromes ( MDS-a bone marrow decease) & Myelofibrosis (MF-blood...

https://connect.mayoclinic.org/comment/194288/

Syndromes ( MDS-a bone marrow decease) & Myelofibrosis

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Feb 20, 2019

I couldn't get my Anagralide through hospital was going to cost the earth to get through...

https://connect.mayoclinic.org/comment/1202803/

Possibly myelofibrosis from what he

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2025

@kate3 hi Kate ! I am sorry you have MF ! I also have confirmed MF...

https://connect.mayoclinic.org/comment/1469568/

I also have confirmed MF MYELOFIBROSIS

Newsfeed Post: Happy Holidays: Many lights lead to hope & healing

Blog: About Connect: Who, What & Why

Posted: Dec 28, 2025

So happy for you to be able to continue with your calling. So happy you were...

https://connect.mayoclinic.org/comment/1070670/

I transfuse a guy weekly with myelofibrosis

Discussion: How do you deal with aging?

Support Group: Aging Well

Posted: May 19, 2024