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220 total results

Comments (209)

I've been suffering now for 3 very long and brutal years. When I read the information...

https://connect.mayoclinic.org/comment/928192/

ocid=hpmsn&cvid=1e9bd81a613a42c485c74cf6ff9021c7&

Discussion: Long Term Covid articles - MUST READS

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 11, 2023

Dear wolfbauer, I did not realize that the problems I experienced prior to my diagnosis (2010)...

https://connect.mayoclinic.org/comment/156982/

have Primary Antibody Deficiency (CVID

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 5, 2019

I am new to this forum as of yesterday..I live in Houston and feel I have...

https://connect.mayoclinic.org/comment/60495/

CT scan with a immune deficency...CVID

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Mar 5, 2017

Hi Missey, I have: Encephalitis Rheumatoid Arthritis Sjogren’s Syndrome Lupus Hashimoto’s CVID Per literature, significant flares...

https://connect.mayoclinic.org/comment/1293358/

Sjogren’s Syndrome Lupus Hashimoto’s CVID

Discussion: Prolia dangers for those with autoimmune disease

Support Group: Bones, Joints & Muscles

Posted: Apr 30, 2025

Yes, I am the same as you. I have CVID, Common Variable Immune Deficiency, so I...

https://connect.mayoclinic.org/comment/1462958/

I have CVID, Common Variable Immune ... respiratory infections, that is the CVID

Discussion: Sjogrens Syndrome and sinus drainage

Support Group: Autoimmune Diseases

Posted: Dec 17, 2025

I have some itching in my hands, but majority of my itching is with my feet...

https://connect.mayoclinic.org/comment/1506085/

I have CVID-Common Variable Immune Deficiency

Discussion: Chronic Itchy Hands and Feet

Support Group: Autoimmune Diseases

Posted: Feb 14 11:19pm

Post autologous Stem Cell Transplant for scleroderma, I have Dysautonomia. Symptoms vary depending on the type...

https://connect.mayoclinic.org/comment/1558843/

amp;sc=12-12&sp=2&ghc=0&cvid

Discussion: Sjogren's Syndrome?

Support Group: Autoimmune Diseases

Posted: Apr 24 8:22pm

I would request more testing for autoimmune either thru your current Dr. or switch to another...

https://connect.mayoclinic.org/comment/1482301/

I am currently seeing one, I have CVID-Common ... I am complex and rare with the CVID.

Discussion: Do I have Autoimmune

Support Group: Autoimmune Diseases

Posted: Jan 14 2:24pm

Have you done any type of food logs and marking down any type of symptoms or...

https://connect.mayoclinic.org/comment/1457874/

I am rare, I have CVID- Common Variable

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Dec 10, 2025

Hey there @nick86, in the interim since the last few messages here, I have been on...

https://connect.mayoclinic.org/comment/963024/

as an example is something called CVID

Discussion: Does anyone have any info on MGUS treatment or risk of progression?

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2023

I cannot imagine how frustrating and scary this must be to you. Has he not ever...

https://connect.mayoclinic.org/comment/921176/

I have CVID with 2 subclass deficiencies

Discussion: Hypogammaglobulinemia: Caring for my teenage son

Support Group: Autoimmune Diseases

Posted: Aug 29, 2023

@minnerhead1 Hi, EBV can cause neurological symptoms, please see a link below: https://www.bing.com/search?q=can%20EBV%20cause%20neurological%20symptoms&qs=n&form=QBRE&sp=-1&ghc=1&lq=0&pq=can%20ebv%20cause%20neurological%20symptoms&sc=1-35&sk=&cvid=5DC8D1B53B274CF69990428C7A3E3826 However, one-sided weakness,...

https://connect.mayoclinic.org/comment/1454591/

20symptoms&sc=1-35&sk=&cvid

Discussion: Does EBV cause Neurological Symptoms?

Support Group: Infectious Diseases

Posted: Dec 6, 2025

@justrosie Hi, I have CVID-Common Variable Immune Deficiency- I get anywhere from 6-8 sinus infections a...

https://connect.mayoclinic.org/comment/1519140/

@justrosie Hi, I have CVID-Common

Discussion: What helps with dry mouth with Sjogren's?

Support Group: Autoimmune Diseases

Posted: Mar 4 6:51am

@Glenb I have living w this nightmare for years . I worked in an acknowledged sick...

https://connect.mayoclinic.org/comment/1440016/

W CVID and CMID .

Discussion: Mold Toxicity

Support Group: Autoimmune Diseases

Posted: Nov 16, 2025

I am 76 and have had nocturnal headaches for about 12 years. I was one of...

https://connect.mayoclinic.org/comment/112618/

time with a rare condition called CVID

Discussion: How are your chronic severe nocturnal hypnic headaches treated?

Support Group: Headache & Migraine

Posted: Mar 27, 2018

I’m 50, was Dx’d with MGUS just over 2 years ago via BMB just under smouldering...

https://connect.mayoclinic.org/comment/976019/

something called POEMS, alongside CVID

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

Yes, she is an Endocrinologist. No, she didn't say there isn't a medicine for Hashimoto's thyroiditis....

https://connect.mayoclinic.org/comment/1532751/

The fatigue could be related to my CVID

Discussion: Diagnosed with Hashimoto's Thyroiditis, on no prescribed meds!

Support Group: Autoimmune Diseases

Posted: Mar 22 10:30am

Hi there, I am more complicated than most people replying on this post. In addition to...

https://connect.mayoclinic.org/comment/1494138/

asthma and bronchiectasis, I have CVID

Discussion: Anyone have Athsma & Bronchiectasis?

Support Group: MAC & Bronchiectasis

Posted: Jan 30 11:01am

Hi @dash99999, I'm sorry to hear your suffering - been there, done (and doing) that. As...

https://connect.mayoclinic.org/comment/138375/

- CVID Common variable immune ... deficiency (aka CVID) is also a possibility ... diseases are often an extension of CVID

Discussion: Male, 23, Possible Autoimmune Issues, Difficult to Diagnose

Support Group: Autoimmune Diseases

Posted: Feb 16, 2017

RE: Dismissing doctors Different issues but similar experience. I'm sorry if this is long or hard...

https://connect.mayoclinic.org/comment/697734/

I was diagnosed with CVID - Common Variable

Discussion: Dismissing doctors: How do you find a doctor who can help?

Support Group: Bones, Joints & Muscles

Posted: Apr 10, 2022