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207 total results

Comments (196)

@justrosie Hi, I have CVID-Common Variable Immune Deficiency- I get anywhere from 6-8 sinus infections a...

https://connect.mayoclinic.org/comment/1519140/

@justrosie Hi, I have CVID-Common

Discussion: Has anyone used the oral medication for dry mouth (Sjogren's)?

Support Group: Autoimmune Diseases

Posted: Mar 4 6:51am

@Glenb I have living w this nightmare for years . I worked in an acknowledged sick...

https://connect.mayoclinic.org/comment/1440016/

W CVID and CMID .

Discussion: Mold Toxicity

Support Group: Autoimmune Diseases

Posted: Nov 16, 2025

@pm56 You are correct! Yes, I have the Common Variable Immune Deficiency disorder, and I knew...

https://connect.mayoclinic.org/comment/1568317/

infusion treatment that I am getting for CVID

Discussion: Mayo Clinic diagnosis of Gammaglobulin deficiency: Any tips?

Support Group: Autoimmune Diseases

Posted: May 6 3:20pm

I am 76 and have had nocturnal headaches for about 12 years. I was one of...

https://connect.mayoclinic.org/comment/112618/

time with a rare condition called CVID

Discussion: Chronic severe nocturnal hypnic headaches

Support Group: Headache & Migraine

Posted: Mar 27, 2018

I’m 50, was Dx’d with MGUS just over 2 years ago via BMB just under smouldering...

https://connect.mayoclinic.org/comment/976019/

something called POEMS, alongside CVID

Discussion: Should I be worried about my MGUS diagnosis and my M Spike rising?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2023

Hi there, I am more complicated than most people replying on this post. In addition to...

https://connect.mayoclinic.org/comment/1494138/

asthma and bronchiectasis, I have CVID

Discussion: Anyone have Athsma & Bronchiectasis?

Support Group: Asthma & Allergy

Posted: Jan 30 11:01am

Hi @dash99999, I'm sorry to hear your suffering - been there, done (and doing) that. As...

https://connect.mayoclinic.org/comment/138375/

- CVID Common variable immune ... deficiency (aka CVID) is also a possibility ... diseases are often an extension of CVID

Discussion: Male, 23, Possible Autoimmune Issues, Difficult to Diagnose

Support Group: Autoimmune Diseases

Posted: Feb 16, 2017

RE: Dismissing doctors Different issues but similar experience. I'm sorry if this is long or hard...

https://connect.mayoclinic.org/comment/697734/

I was diagnosed with CVID - Common Variable

Discussion: Dismissing doctors: How do you find a doctor who can help?

Support Group: Bones, Joints & Muscles

Posted: Apr 10, 2022

Hi! Sorry you are still having issues. I have ongoing sinus issues and I have an...

https://connect.mayoclinic.org/comment/1463414/

I have CVID- Common Variable Immune

Discussion: Help with worsening food allergy symptoms, headache, etc.

Support Group: Asthma & Allergy

Posted: Dec 18, 2025

Here some suggestions for ya: 1.) See a Functional Medicine Dr. Some insurance companies help pay...

https://connect.mayoclinic.org/comment/1458702/

I have CVID- Primary Immunodeficiency

Discussion: Severe upper left to mid abdominal pain, sometimes radiates to back

Support Group: Chronic Pain

Posted: Dec 11, 2025

I'll try to answer as best I can. I don’t really know why the Endocrinologist ordered...

https://connect.mayoclinic.org/comment/636873/

August I was officially diagnosed with CVID

Discussion: Reclast Appointment Cancelled Morning of Appointment!

Support Group: Osteoporosis & Bone Health

Posted: Sep 19, 2021

I would stick with the chiropractor, as over time it would hopefully get better! I would...

https://connect.mayoclinic.org/comment/1520122/

navage every day for my sinus issues-CVID

Discussion: Mysterious shortness of breath, no satisfactory answers

Support Group: Asthma & Allergy

Posted: Mar 5 8:42am

Dorma, you are so welcome. Check reviews online for Functional Medicine Dr's. I looked into it...

https://connect.mayoclinic.org/comment/1429825/

I am immunocompromised, I have CVID-

Discussion: NO appetite, nausea, losing weight,

Support Group: Digestive Health

Posted: Nov 3, 2025

Hi all, I wanted to reply that I have never gone to Mayo but have always...

https://connect.mayoclinic.org/comment/60278/

to my undiagnosed lung condition & cvid

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Feb 20, 2017

Yes, I am gluten/wheat free and dairy free. Long story short, I was diagnosed awhile back...

https://connect.mayoclinic.org/comment/1475918/

Common Variable Immune Deficiency CVID

Discussion: Autoimmune diagnosing problem

Support Group: Autoimmune Diseases

Posted: Jan 6 1:52pm

I have CAEBV/CEBV. I have elevated titers...the one that should go down after six months is...

https://connect.mayoclinic.org/comment/980586/

especially in kids (I have milder CVIDS

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Dec 14, 2023