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963 total results

Comments (917)

I have CIDP and I’ve just now had my booster shot with no unusual side effects...

https://connect.mayoclinic.org/comment/651619/

I have CIDP and I’ve just now had my

Discussion: Anyone had a problem with neuropathy after receiving the vaccine?

Support Group: Neuropathy

Posted: Nov 5, 2021

I have CIDP too and have IVIG infusions 2 days a month. You might want to...

https://connect.mayoclinic.org/comment/156933/

I have CIDP too and have IVIG infusions

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 22, 2019

We’re your treatments for neuropathy? I’m not sure what CIDP is. I’m in constant pain and...

https://connect.mayoclinic.org/comment/1036350/

I’m not sure what CIDP is.

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Mar 19, 2024

Thank you for sharing. Over the last 3 years I have been diagnosed or “suspected” of...

https://connect.mayoclinic.org/comment/615063/

diagnosed or “suspected” of having CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jul 8, 2021

Am seeing another nm doctor in June for an opinion. If my current doctor won’t give...

https://connect.mayoclinic.org/comment/1019049/

She asked me if I’d heard of CIDP. ... Then there are assorted causes to the CIDP ... I wonder if CIDP is genetic.

Discussion: Small fiber neuropathy?

Support Group: Neuropathy

Posted: Feb 20, 2024

I have CVID. I also have a demyelinating nerve disorder called CIDP. What is your question?...

https://connect.mayoclinic.org/comment/1165484/

demyelinating nerve disorder called CIDP

Discussion: Does anyone else have CVID?

Support Group: Neuropathy

Posted: Oct 30, 2024

Hi Cathy @catharbert, I'm not sure @harley22 is still following Connect but @gratefulone may have some...

https://connect.mayoclinic.org/comment/720513/

experience to share on the IVIG therapy for CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Jun 24, 2022

I have been diagnosed with CIDP and am currently getting an IVIG infusion every 4 weeks,...

https://connect.mayoclinic.org/comment/1053220/

I have been diagnosed with CIDP and ... my trunk) are associated with the CIDP

Discussion: Muscle Spams and Neuropathy

Support Group: Neuropathy

Posted: Apr 18, 2024

I’ve been on Gabapebtin preceding the CIDP and IVIG and periodic steroids for the CIDP a...

https://connect.mayoclinic.org/comment/1206841/

ve been on Gabapebtin preceding the CIDP ... IVIG and periodic steroids for the CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 8 12:46pm

@nemo1 You might also find this webinar on CIDP from the Foundation for Peripheral Neuropathy helpful....

https://connect.mayoclinic.org/comment/1021517/

You might also find this webinar on CIDP

Discussion: CIDP/GBS

Support Group: Autoimmune Diseases

Posted: Feb 24, 2024

@amieb mentioned CIDP and sciatica in another discussion here and may have some additional suggestions or...

https://connect.mayoclinic.org/comment/1179346/

@amieb mentioned CIDP and sciatica in

Discussion: CIDP and Sciatic Nerve Pain

Support Group: Neuropathy

Posted: Nov 24, 2024

hello Cathy, I saw your note regarding IgG therapy for CIDP and I started IgG therapy...

https://connect.mayoclinic.org/comment/720911/

your note regarding IgG therapy for CIDP ... and I started IgG therapy for CIDP ... information helps you to manage your CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Jun 25, 2022

Since I posted about CIDP I have been rediagnosed with POEMS syndrome even rarer than CIDP....

https://connect.mayoclinic.org/comment/81491/

Since I posted about CIDP I have been ... with POEMS syndrome even rarer than CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Apr 11, 2017

If you read the available medical literature I think you will understand. GBS is a rapidly...

https://connect.mayoclinic.org/comment/1153705/

developing short term illness whereas CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Oct 7, 2024

thanks for the welcome. thanks for the referral to the foundation for peripheral Neuropathy. Regarding the...

https://connect.mayoclinic.org/comment/782537/

Regarding the CIDP I don't know

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 8, 2022

Thank you. I have been enjoying the posts and positive feedback. There's so much to learn...

https://connect.mayoclinic.org/comment/156825/

There's so much to learn about CIDp

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 28, 2018

I am taking Panzyga. It was approved in 2021 for CIDP. It has no glucose in...

https://connect.mayoclinic.org/comment/1144279/

It was approved in 2021 for CIDP.

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Sep 19, 2024

No you’re not missing anything. I haven’t heard or read anything saying that Gabapentin was addicting....

https://connect.mayoclinic.org/comment/1105739/

years, and it actually didn’t help my CIDP

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jul 15, 2024

@paktoledo: I have a friend with Lupus and she has neuropathy in her hands and feet....

https://connect.mayoclinic.org/comment/806302/

are likely from Lupus and are not CIDP ... medically and trust me, you don't want CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Feb 4, 2023

I have had CIDP for 18 months during that time. I’ve had IvIG infusions for two...

https://connect.mayoclinic.org/comment/1233887/

I have had CIDP for 18 months during

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Feb 10 2:56pm