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Comments (896)

Hi Cathy @catharbert, I'm not sure @harley22 is still following Connect but @gratefulone may have some...

https://connect.mayoclinic.org/comment/720513/

experience to share on the IVIG therapy for CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Jun 24, 2022

I have been diagnosed with CIDP and am currently getting an IVIG infusion every 4 weeks,...

https://connect.mayoclinic.org/comment/1053220/

I have been diagnosed with CIDP and ... my trunk) are associated with the CIDP

Discussion: Muscle Spams and Neuropathy

Support Group: Neuropathy

Posted: Apr 18, 2024

I start Vyvgart this week. After 4 years of CIDP (Induced by the covid Vaccine) it...

https://connect.mayoclinic.org/comment/1248200/

After 4 years of CIDP (Induced by the

Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?

Support Group: Autoimmune Diseases

Posted: Mar 1 4:20pm

@nemo1 You might also find this webinar on CIDP from the Foundation for Peripheral Neuropathy helpful....

https://connect.mayoclinic.org/comment/1021517/

You might also find this webinar on CIDP

Discussion: CIDP/GBS

Support Group: Autoimmune Diseases

Posted: Feb 24, 2024

I’ve been on Gabapebtin preceding the CIDP and IVIG and periodic steroids for the CIDP a...

https://connect.mayoclinic.org/comment/1206841/

ve been on Gabapebtin preceding the CIDP ... IVIG and periodic steroids for the CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 8 12:46pm

@amieb mentioned CIDP and sciatica in another discussion here and may have some additional suggestions or...

https://connect.mayoclinic.org/comment/1179346/

@amieb mentioned CIDP and sciatica in

Discussion: CIDP and Sciatic Nerve Pain

Support Group: Neuropathy

Posted: Nov 24, 2024

I have CIDP and have had all three Pfizer shots snd have had only mild reactions...

https://connect.mayoclinic.org/comment/652628/

I have CIDP and have had all three Pfizer

Discussion: CIDP and the Covid Vaccine

Support Group: Autoimmune Diseases

Posted: Nov 9, 2021

Since I posted about CIDP I have been rediagnosed with POEMS syndrome even rarer than CIDP....

https://connect.mayoclinic.org/comment/81491/

Since I posted about CIDP I have been ... with POEMS syndrome even rarer than CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Apr 11, 2017

hello Cathy, I saw your note regarding IgG therapy for CIDP and I started IgG therapy...

https://connect.mayoclinic.org/comment/720911/

your note regarding IgG therapy for CIDP ... and I started IgG therapy for CIDP ... information helps you to manage your CIDP

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: Jun 25, 2022

If you read the available medical literature I think you will understand. GBS is a rapidly...

https://connect.mayoclinic.org/comment/1153705/

developing short term illness whereas CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Oct 7, 2024

thanks for the welcome. thanks for the referral to the foundation for peripheral Neuropathy. Regarding the...

https://connect.mayoclinic.org/comment/782537/

Regarding the CIDP I don't know

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Dec 8, 2022

Same. First they said CIDP. BUT when nerve and muscle biopsy done. Said no. Now saying...

https://connect.mayoclinic.org/comment/1233707/

First they said CIDP.

Discussion: Full body Loss of sensation(numbness) and tingling

Support Group: Brain & Nervous System

Posted: Feb 10 11:44am

Thank you. I have been enjoying the posts and positive feedback. There's so much to learn...

https://connect.mayoclinic.org/comment/156825/

There's so much to learn about CIDp

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 28, 2018

I am taking Panzyga. It was approved in 2021 for CIDP. It has no glucose in...

https://connect.mayoclinic.org/comment/1144279/

It was approved in 2021 for CIDP.

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Sep 19, 2024

No you’re not missing anything. I haven’t heard or read anything saying that Gabapentin was addicting....

https://connect.mayoclinic.org/comment/1105739/

years, and it actually didn’t help my CIDP

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Jul 15, 2024

@paktoledo: I have a friend with Lupus and she has neuropathy in her hands and feet....

https://connect.mayoclinic.org/comment/806302/

are likely from Lupus and are not CIDP ... medically and trust me, you don't want CIDP

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Feb 4, 2023

I have also been diagnosed with CIDP. I believe that this is because there seems to...

https://connect.mayoclinic.org/comment/984637/

I have also been diagnosed with CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Dec 21, 2023

This is promising news, Raphy, especially for patients who are immunocompromised. I moved your post to...

https://connect.mayoclinic.org/comment/661049/

to this existing discussion about CIDP

Discussion: CIDP and the Covid Vaccine

Support Group: Autoimmune Diseases

Posted: Dec 9, 2021

Mark, Mayo turned me down too. But I’ve had excellent care for my CIDP in Albuquerque...

https://connect.mayoclinic.org/comment/1210933/

But I’ve had excellent care for my CIDP

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 13 9:32pm

Yes I was diagnosed with CIDP 7 years ago. When I was 16 I was diagnosed...

https://connect.mayoclinic.org/comment/81481/

Yes I was diagnosed with CIDP 7 years

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Feb 18, 2015