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199 total results
Comments (187)
Hello @stevep123, Welcome to Connect. You are definitely not alone. It can be overwhelming with your...
https://connect.mayoclinic.org/comment/1361187/
neuropathy and have no experience with IVIG ... did a search of Connect for "stopping ... IVIG" and thought you might like ... search=stopping+IVIG.
Discussion: Suspected auto-immune or immune mediated Small Fibre neuropathy
Support Group: Neuropathy
Posted: Aug 1, 2025
@sarahlee2 It sounds like you've really been put through your paces lately. Hoping that's it for...
https://connect.mayoclinic.org/comment/1507368/
IVIg is from collected plasma donations ... Had to stop when I became unable to ... Since I have been advised to stop driving
Discussion: Anyone here with Anti-TIF-1γ Antibody-Positive Dermatomyositis?
Support Group: Autoimmune Diseases
Posted: Feb 16 1:03pm
@anthoney Since 2020, I have continued on the roller coaster. My hgb has been as high...
https://connect.mayoclinic.org/comment/1524066/
included rituximab every 8 weeks and IVIG ... Nothing could stop the decline and I ... Today as I write this, I am getting my IVIG
Discussion: Anyone diagnosed with warm Autoimmune Hemolytic Anemia?
Support Group: Autoimmune Diseases
Posted: 5 days ago
Cidp is chronic. Are you receiving ivig? Or subq? That’s what stops the mylan from being...
https://connect.mayoclinic.org/comment/1464173/
Are you receiving ivig? ... That’s what stops the mylan from being ... down. 7 weeks in the hospital with ivig
Discussion: Has anyone really gotten over CIDP?
Support Group: Autoimmune Diseases
Posted: Dec 19, 2025
Wow - you hit the nail right on the head. "Instead of receiving the best of...
https://connect.mayoclinic.org/comment/1298043/
from steroids, Cellcept, Rituximab, IVIG ... EXHAUSTING and at what point do I stop
Discussion: Creatine Benefits for Epilepsy
Support Group: Epilepsy & Seizures
Posted: May 6, 2025
I am desperately seeking options for my 20-year-old with LV for almost 7 years. Xarelto showed...
https://connect.mayoclinic.org/comment/1217961/
time at the highest doses and then stopped ... What about IVIG? ... Is IVIG clean and safe? ... on her right arm that faded after stopping
Discussion: Livedoid vasculopathy
Support Group: Blood Cancers & Disorders
Posted: Jan 21, 2025
Welcome Toolman 53! I too have had a combination of GBS and CIDP although my timeline...
https://connect.mayoclinic.org/comment/1170525/
In spite of stopping the drug my symptoms ... recovered somewhat after five days of IVIG ... I am currently on IVIG and recently
Discussion: CIDP diagnosis after severe GBS long ago, where do I start?
Support Group: Neuropathy
Posted: Nov 9, 2024
Has anyone here seen Mayo for CIDP treatment? My dad who is 74 has been receiving...
https://connect.mayoclinic.org/comment/739280/
My dad who is 74 has been receiving IVIG ... for 2 years but they seemed to have stopped
Discussion: CIDP and concerns about treatment risk factors
Support Group: Neuropathy
Posted: Aug 19, 2022
I have a daughter who was diagnosed with SPS in 3/2019 but went undiagnosed for several...
https://connect.mayoclinic.org/comment/666964/
Usually extra Clonidine stopped the ... Unfortunately she has received IVIG ... facilities which will take someone on IVIG
Discussion: Stiff Person Syndrome: Want to connect with others
Support Group: Brain & Nervous System
Posted: Jan 1, 2022
Hi Jim! I’m so excited for you to start your infusions!! I hope that they bring...
https://connect.mayoclinic.org/comment/638339/
My son tried IVIg last summer. ... decide if he wanted to continue on or stop ... you have any more questions about IVIg
Discussion: Has anyone had IVIG Infusions for Neuropathy?
Support Group: Neuropathy
Posted: Sep 23, 2021