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22 total results

Comments (21)

I wish I had more answers for you. But maybe this will help. I did a...

https://connect.mayoclinic.org/comment/1338844/

Rytelo And here are the results for Luspatercept ... search=+Luspatercept Hopefully there ... experiences with Imetelstat (Rytelo) or Luspatercept

Discussion: imetelstat/Rytelo MDS treatment anyone?

Support Group: Blood Cancers & Disorders

Posted: Jun 30 9:17pm

It's not a new oncologist. Just moved her appointment up a month. They mentioned starting her...

https://connect.mayoclinic.org/comment/1120255/

They mentioned starting her on Luspatercept

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

I am receiving injections of Luspatercept every 3 weeks. This has gotten my hgb over 10...

https://connect.mayoclinic.org/comment/1121111/

I am receiving injections of Luspatercept

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 10, 2024

@abdweidner, such a journey of trial and figuring things out that work for your husband. That...

https://connect.mayoclinic.org/comment/1088152/

weeks on followed by 2 weeks off of luspatercept

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2024

The luspatercept injections are every 3 weeks. Those do not work as well anymore, which we...

https://connect.mayoclinic.org/comment/1088387/

The luspatercept injections are every

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Thanks, suetex! I looked up Reblozyl. It's Luspatercept, the drug Moffit Cancer Tampa, Dr. Rami Komrokji...

https://connect.mayoclinic.org/comment/1100293/

It's Luspatercept, the drug Moffit ... https://www.reblozyl.com REBLOZYL® (luspatercept-aamt

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jul 6, 2024

I have MDS and I went to Dr Mariano Garcia at MD Anderson in Houston. He...

https://connect.mayoclinic.org/comment/665480/

He made a diagnosis and put me on Luspatercept

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Dec 27, 2021

My husband had been on Luspatercept and the side effects are severe fatigue and shortness of...

https://connect.mayoclinic.org/comment/1080463/

My husband had been on Luspatercept

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

I have a diagnosis of MDS/MPN- RARS-T. My platelets have been too high. When I began...

https://connect.mayoclinic.org/comment/1183829/

I now take an injection of luspatercept

Discussion: MDS (myelodysplastic syndrome): When to start treatment?

Support Group: Blood Cancers & Disorders

Posted: Dec 3, 2024

I still suffer from fatigue but I push through with attitude. Do not want to give...

https://connect.mayoclinic.org/comment/657631/

Have no idea if this is caused by Luspatercept

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2021

I expect your sister is feeling a little more perky tonight after her transfusion today. I’m...

https://connect.mayoclinic.org/comment/1120359/

Luspatercept is one of the newer meds

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

Hi, I hope you don’t mind me commenting but I just had to share that my...

https://connect.mayoclinic.org/comment/1080466/

He was on Luspatercept to increase his

Discussion: Have you been able to reverse Anemia of Chronic Disease (ACD)?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

Does anyone here have experience with 5q deletion? A little background: My age 77 husband was...

https://connect.mayoclinic.org/comment/226237/

posts here discussing Revlimid or Luspatercept ... #39;s Moffitt has done studies with Luspatercept ... waiting for FDA approvals, and that Luspatercept ... with discussions with doctors about Luspatercept

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Sep 10, 2019

Yes, my husband has MDS and he has had a rash on his face, neck, back,...

https://connect.mayoclinic.org/comment/1069372/

I’m wondering if it is from Luspatercept

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: May 17, 2024

Six months have passed since we became aware of Rytelo as a possibility. As expected, my...

https://connect.mayoclinic.org/comment/1337629/

read that Rytelo/Imetelstat and also Luspatercept