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548 total results
Comment
@mcwjr189, you will find many members talking about Lutathera, a type of peptide receptor radionuclide therapy...
radionuclide therapy (PRRT) in the Neuroendocrine ... /group/neuroendocrine-tumors-nets/. ... radioactive therapy used to treat neuroendocrine ... tumors. ... for you malignant solitary fibrous tumor
Support Group: Sarcoma
Posted: Apr 23 1:00pm
Comment
@zalda, I'd like to add my welcome. I'm glad that fellow NETs members like @mimisayhi and...
I'm glad that fellow NETs members ... to the support group dedicated to Neuroendocrine ... Tumors (NETs) here https://connect.mayoclinic.org ... /group/neuroendocrine-tumors-nets/ ... discussions related to small bowel NETs
Comment
The contrast matters. My oncologist uses a 68Ga-DOTATATE PET/CT scan. A 68Ga-DOTATATE PET/CT scan is a...
technique used to detect and assess neuroendocrine ... tumors (NETs), using a radioactive ... binds to somatostatin receptors on NET
Posted: Apr 8, 2025
Comment
Hi @nathanb1979, you do have a lot to take in with this new diagnosis of carcinoid...
I have added your post to the Neuroendocrine ... Tumors (NETs) group here: https://connect.mayoclinic.org ... /group/neuroendocrine-tumors-nets/ ... seeing a oncology team specializing in neuroendocrine ... Will you see a NETs specialist next?
Posted: Sep 10, 2022
Discussion
2nd 3 month follow up
well differentiated, grade 2 stage 4 NET ... Amr Mohamed, head of the neuroendocrine ... tumor program at UH Seidman Cancer. ... He stated that since her pancreatic tumors
Last active: Oct 5, 2025
Discussion
NET found by colonoscopy. What to expect and how should I approach
NET found by colonoscopy. ... Colonic mucosa with well-differentiated neuroendocrine ... tumor. ... a few videos to get some ideas on NET ... NET specialist. how to find them?
Last active: Jun 26, 2023
Discussion
Neuroendocrine Pancreatic Tumors with KIT Missense Variant Exon 10 GOF
Neuroendocrine Pancreatic Tumors with ... Tumors covering pancreas and liver. ... Not normal in NETS. "One in a million ... and pass up trying to stave off the tumors
Last active: Apr 14 7:41pm
Discussion
Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide
Stage 4 grade2 Pancreatic Neuroendocrine ... February 2025 by liver lesion biopsy with neuroendocrine ... confirmed pancreas as primary with tumor ... oncologist 4 1/2 hours away who has Net ... so I was hopeful for stability of tumors
Last active: Sep 16, 2025
Discussion
Has anyone had experience with a Liver Transplant that has NET cancer?
experience with a Liver Transplant that has NET ... experience with a Liver Transplant that has Neuroendocrine ... NET? ... only in the liver, with about 10-12 tumors ... My question(s) is if anyone with NET
Support Group: Transplants
Last active: Feb 28, 2025