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507 total results
Comment
988 when diagnosed with ET on 1/10/25 and 844 when diagnosis changed to Myelofibrosis one 2/10/25
https://connect.mayoclinic.org/comment/1281844/
and 844 when diagnosis changed to Myelofibrosis
Comment
Welcome to Connect, @godschild56. I encourage you to view this more recent discussion where you will...
who’ve shared their experiences with myelofibrosis ... www.mayoclinic.org/diseases-conditions/myelofibrosis
Comment
Welcome to Connect, @drmshadowrid. It sounds like you’re having good success with Jakafi but that is...
to meet other members who also have myelofibrosis ... More can be found by typing myelofibrosis ... ~ Myelofibrosis https://connect.mayoclinic.org ... /discussion/myelofibrosis-24a025/?
Comment
@steiner Jakafi is the drug I take for CMML and myelofibrosis. The cancers were separate. Each...
Jakafi is the drug I take for CMML and myelofibrosis
Comment
Good luck at Mayo. Would really appreciate hearing about info. received at Mayo re.. Myelofibrosis. Important...
Myelofibrosis.
Discussion
Your tips as I prepare for first phlebotomy
iron is low)
Polycythemia Vera and Myelofibrosis
Discussion
After 3 months on hydroxyurea, I am going to ask to switch to Besremi
; 50% can lead to a higher risk of myelofibrosis
Discussion
Medicines for reducing fibrosis in polycythemia vera patients
prevent/reduce fibrosis and eventual myelofibrosis ... as I'm obviously not the full myelofibrosis
Discussion
F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!
F/w PV- JAK2-pre-mylelofibrosis SCARED
Connect