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858 total results
Discussion
Primary pulmonary amyloidosis light chain diagnosis
Primary pulmonary amyloidosis light ... been diagnosed with primary pulmonary Amyloidosis
Support Group: Lung Health
Last active: Feb 23, 2024
Discussion
Recently diagnosed with AL Amyloidosis: Any advice?
Recently diagnosed with AL Amyloidosis ... My mom was recently diagnosed w AL Amyloidosis
Last active: May 18, 2024
Discussion
Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?
Diagnosing amyloidosis: Why monitor ... I have many symptoms of amyloidosis.
Last active: Dec 17, 2024
Comment
Thank you for sharing this, @oldkarl. This may sound naive, but with all your incredible research...
with all your incredible research on Amyloidosis ... 'open' studies, with respect to AL amyloidosis ... hereditary transthyretin-mediated amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Lab" which focuses on light chain amyloidosis
Comment
@gala75, @oldkarl, @cgarcia56 and others. I thought you might find the following upcoming webinar interesting and...
Hereditary ATTR (hATTR) amyloidosis ... In hATTR amyloidosis, the TTR gene change ... As a hereditary disease, hATTR amyloidosis ... If one parent has hATTR amyloidosis, ... mean that they will develop hATTR amyloidosis
Support Group: Autoimmune Diseases
Posted: Oct 4, 2024
Comment
Have you seen a hematologist and had a bone marrow biopsy? That is how my AL...
That is how my AL Amyloidosis was diagnosed ... There are other discussions about AL Amyloidosis ... find them by doing a search of "Amyloidosis
Posted: Mar 12, 2023