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@kristin3 -- typical carcinoids are the best kind to have. They are the slow growing kind....
I wonder if you might have DIPNECH also ... DIPNECH can be a precursor to carcinoids ... DIPNECH also usually causes respiratory ... My carcinoids/DIPNECH are treated with
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Thank you for reply, I don't have a net's team, I rely on my thoracic surgeon...
that but after ,it was found I had dipnech ... Obviously I'd had dipnech for many
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Hi @donnapeck51 I’m sorry to hear about your Merkel cell carcinoma. I’m not a doctor but...
As for DIPNECH, it is even rarer and ... I do not believe DIPNECH is Merkel cell
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@grec, it is scary having a rare disorder, especially when active surveillance is the presecribed treatment....
pulmonary neuroendocrine cell hyperplasia (DIPNECH
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Slow growing is good! How large is the largest tumor? It makes me wonder if you...
It makes me wonder if you have DIPNECH ... at Ki-67 2% with 50+ bilateral NETs/DIPNECH
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