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@spoeps and @mcolton16, there are several blog posts related to EDS and exercise that you may...
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Comment
Hi @shcraft. While we wait for @emo to share their experience with you. You may find...
discussions useful:
- Hypermobile Ehlers ... connect.mayoclinic.org/discussion/hypermobile-ehlers-danlos-care-team-in-arizona ... /
– Ehlers Danlos Syndrome – Who is ... /connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-new-diagnosis
Comment
Hi Grace, welcome to Mayo Clinic Connect. I'm glad you found this blog and the patient...
other EDS-ers (people living with Ehlers ... – Ehlers Danlos Syndrome https:/ ... /connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-new-diagnosis ... -1/
- Ehlers Danlos Syndrome (EDS)
Comment
Welcome @josh42, I'm sorry to hear that your doctors don't seem to be listening to you....
daughter have been diagnosed with Ehlers ... shared and might find helpful:
--- Ehlers ... /connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-new-diagnosis
Newsfeed Post
Learn about prostate cancer and genetics, onco-psychology, and life after ovarian and thyroid cancer
cancer-related distress
Shawna Ehlers
Newsfeed Post
"Patients" are part of the cure! – A Mayo Clinic Patient Experience
fall of 2018 and became part of the Ehlers-Danlos
Newsfeed Post
EDS and Physical Therapy Treatment
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/newsfeed-post/physical-therapy-treatment/
and EDS/HSD (Physical Therapy and Ehlers-Danlos
Discussion
Gagging + coughing w/saliva only (possible cricopharyngeal spasm?)
playing a role here, including classical Ehlers-Danlos
Newsfeed Post
Movement is Medicine – What’s the secret to healthy, sustainable movement with hEDS & HSD?
A diagnosis of hypermobile Ehlers-Danlos
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