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799 total results
Discussion
Husband diagnosed with smothering myeloma and AI amyloidosis
https://connect.mayoclinic.org/discussion/husband/
diagnosed with smothering myeloma and AI amyloidosis
Support Group: Blood Cancers & Disorders
Last active: Jul 13, 2022
Discussion
Thought it was TTR Amyloidosis - can’t find results
https://connect.mayoclinic.org/discussion/thought-it-was-ttr-amyloidosis-cant-find-results/
Thought it was TTR Amyloidosis - can ... believe they had found that he had TTR Amyloidosis
Support Group: Brain & Nervous System
Last active: Dec 20, 2024
Discussion
Anyone with BMT experience for AL Amyloidosis?
https://connect.mayoclinic.org/discussion/anyone-with-bmt-experience-for-al-amyloidosis/
Anyone with BMT experience for AL Amyloidosis ... With AL Amyloidosis, I understand that
Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Last active: Apr 23 9:17am
Discussion
Primary pulmonary amyloidosis light chain diagnosis
https://connect.mayoclinic.org/discussion/primary-pulmonary-amyloidosis-light-chain-diagnosis/
Primary pulmonary amyloidosis light ... been diagnosed with primary pulmonary Amyloidosis
Support Group: Lung Health
Last active: Feb 23, 2024
Comment
Hi Becky, Here's a good discussion to connect with others talking about amyloidosis - Diagnosed with...
https://connect.mayoclinic.org/comment/738582/
connect with others talking about amyloidosis ... - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Aug 17, 2022
Comment
Hi - My HOCM doc is at Johns Hopkins which is a COE. I was tested...
https://connect.mayoclinic.org/comment/1283183/
I was tested for amyloidosis early on ... would have referred me to their "amyloidosis ... treatment is very different for HOCM and amyloidosis
Discussion: Cardiac Amyloidosis
Support Group: Hypertrophic Cardiomyopathy (HCM)
Posted: Apr 16 9:52am
Comment
Clifford, you may be interested in this related discussion as you research more about amyloidosis: -...
https://connect.mayoclinic.org/comment/846424/
discussion as you research more about amyloidosis ... : - Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Amyloidosis symptoms, negative fat pad biopsy?
Support Group: Blood Cancers & Disorders
Posted: Apr 20, 2023
Comment
Hi @jewel8888 You can connect with other members who have amyloidosis in these discussions on Connect....
https://connect.mayoclinic.org/comment/59720/
connect with other members who have amyloidosis ... - Current diagnosis is Amyloidosis ... mayocl.in/2bAqF5j - Diagnosed with AL Amyloidosis ... webinar with Mayo Clinic experts "Amyloidosis
Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
Support Group: MAC & Bronchiectasis
Posted: Jan 11, 2017
Comment
@oldkarl and other members with Amyloidosis, hATTR, and polyneuropathy. I thought you might be interested in...
https://connect.mayoclinic.org/comment/644797/
@oldkarl and other members with Amyloidosis ... Hereditary ATTR (hATTR) amyloidosis ... In hATTR amyloidosis, the TTR gene change ... As a hereditary disease, hATTR amyloidosis ... If one parent has hATTR amyloidosis,
Discussion: Amyloidosis. Diagnosis, treatment, frustration. AL, hATTR, etc.
Support Group: Autoimmune Diseases
Posted: Oct 14, 2021