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194 total results
Discussion
Nerve damage and other issues - no root cause
I also went through IVIG treatment for ... Once IVIG was stopped my condition went
Discussion
Suspected auto-immune or immune mediated Small Fibre neuropathy
most of that time, I was on monthly IVIG ... However, I had to pause IVIG treatments ... in those 6 months without getting ivig ... a similar onset of symptoms after stopping ... or missing IVIG?
Discussion
Myasthenia Gravis: Share your treatment journey
doses of Prednisone and couldn't stop ... throwing up so I stopped taking them ... Prednisone plus Mesthinon, Cellcept and IVIG ... Only to find out we should have stopped
Discussion
Relapse after GFAP
corticosteroids and intravenous immunoglobulin (IVIG ... to go on decreasing Prednisone and stop
Discussion
neurologists and brain scans three doctors 2 different diagnosis help
concern or advised by nurse giving me ivig ... I stopped seeing neurologist or other
Comment
@scoop I didn't know that about bronchiectasis and immune disorders. Maybe that's why they don't routinely...
https://connect.mayoclinic.org/comment/1414144/
immunologist if I'll ever be able to stop ... the IVIG and she said no.
Comment
My son has been diagnosed with Autoimmune GFAP astrocytopathy at 8 years of age. If you...
the week his bladder & bowels stopped ... longer digesting food and his lungs stopped ... rounds of plasmapheresis, 4 rounds of ivig
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Sorry to hear of your condition. It's horrible to have to see so many "experts" who...
durations shortened between "recovery", I stopped ... considered and I was treated with IVIG
Comment
Wow - you hit the nail right on the head. "Instead of receiving the best of...
from steroids, Cellcept, Rituximab, IVIG ... EXHAUSTING and at what point do I stop
Comment
Your sister's progression sounds a lot like mine. I have been living with it now for...
I have done 2+ years of IvIG. ... some of the symptoms, but did not stop
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