I am a male 55 years old and have been very active all my life. Two years ago I started having issues. No root cause to date. I have nerve damage, apparently lumbar sacral region that has resulted in muscle weakness in my quad/gluteus and have foot drop. It started suddenly and has deteriorated gradually. It initially affected my one leg and recently I noticed that my other leg is having issues. My upper body strength is excellent. Have done lots of PT and see many neurologist including those at John Hopkins!!. Done a lot of tests EMG, spinal taps, MRI and other more sophisticated tests. All appear normal. I also went through IVIG treatment for three months. This seemed to help I think. Once IVIG was stopped my condition went worse or it may have been a coincident. I wear a foot drop brace and have recently started wearing a KAFO brace. I am going to see my neurologist again but I am frustrated at the lack of information on the root cause. I am making the most of life and need to get to the bottom of this.
Do you know of anyone else with similar history or an expert in this area at MC. Any help, suggestions, information would be appreciated.