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Discussion
Chronic pain from Erythromelalgia
Chronic pain from Erythromelalgia ... currently struggling with ideopathic neuropathy ... I’m in pain every single day. ... I’m wondering what other people with ... Any suggestions or help would be appreciated
Discussion
What do people do for chronic neuropathic pain?
What do people do for chronic neuropathic ... pain? ... What do people do/take that is helpful ... for chronic neuropathic pain?
Discussion
Treatment for neuropathy
Treatment for neuropathy ... me with the pain from neuropathy. ... What else do they offer that so many ... apply to go there that helps with the ... pain??
Discussion
Severe Sensorimotor Polyneuropathy, Muscle Wasting, Numbness
despite mentioning I dont really have pain ... AFO doesnt help the ankle still feels ... Im not really sure what the point of ... there doesnt seem to be anything for help ... mostly run into people who are in pain
Discussion
CMT (Charcot-Marie-Tooth Disease) - Genetic Testing
pain, characterized by tingling, burning ... sensations, or sharp, shooting pain ... and hopefully find what’s been causing ... my neuropathy, well I have and I wanted ... Physical therapy, proper shoes to help
Comment
I have CIDP, with burning pain in my feet and ankles and tingling and numbness up...
https://connect.mayoclinic.org/comment/1542970/
I have CIDP, with burning pain in my ... No neuropathy medication has helped ... It reduces the pain from 8-9 to 3-5. ... We each do what we can to cope with ... the pain.
Comment
You are not alone! ( @georgescraftjr Lilly, neither is your husband.) My response is long ......
Maybe it would be of some help to you ... conduction testing which showed I have neuropathy ... through episodes of horrible nerve pain ... Doctors could not figure out what was ... point, I knew that I had a trigger for what
Comment
Have you been to a neurologist? Get an emg/nerve conduction test. My neuropathy is autoimmune. And...
My neuropathy is autoimmune. ... I have been in extreme pain since 2002 ... I do get IVIG which helps me not get ... It helps with muscle atrophy that I ... Anything elevated google it and see what
Comment
Welcome @neurojudy, sorry to hear you also have idiopathic peripheral neuropathy. You mentioned metabolic disorder and...
treatments (medications) that help ... They just provide pain relief. ... I do think exercise helps but not to ... the extent I would like it to help ... What has really helped me is trying
Comment
Welcome @normski, It is a good feeling to learn that you are not alone when you...
I am fortunate not to have pain with ... my neuropathy so I don't have to ... to learn what other members have found ... search of Connect for "Allodynia what ... search=Allodynia%20+%22what%20helps%
Newsfeed Post
Searching for Answers With Others: Meet @johnbishop
there are no available treatments that help ... polyneuropathy, just drugs to mask the pain ... mostly in the Autoimmune Diseases and Neuropathy ... It also helps me with my daily goal: ... or helps them be a better advocate
Newsfeed Post
Lead with love: Meet @marciak9
@marciak9: I like to help others with ... , and any helpful tips that I can pass ... I also follow the Cancer, Chronic Pain ... , Mental Health and Neuropathy support ... @marciak9: It’s helpful to talk with
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Community can move mountains: Meet @rivermaya34
the ability to ‘give back’ … i.e. helping ... Brain & Nervous System, Chronic Pain ... , Just Want to Talk, Neuropathy and ... through her story which involved a long, painful ... others who truly understand or want to help
Newsfeed Post
Finding open, honest conversations with others: Meet @2011panc
ROSEMARY: What brought you to Mayo Clinic ... ROSEMARY: What motivates you to take ... ; Muscles
Caregivers
Chronic Pain ... ; Grief
Intensive Care (ICU)
Neuropathy ... great to see it grow and become so helpful
Newsfeed Post
A day without painting is like a day without sunshine: Meet @SusanEllen66
@SusanEllen66: The act of helping others ... Brain & Nervous System
Chronic Pain ... Fibromyalgia
Neuropathy
There ... support group, I’mI looking to get help ... But we can give support and help people
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