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52 total results
Comment
Hi Folks, I did meet with my team and we discussed many things. Some background. I...
https://connect.mayoclinic.org/comment/1187880/
It was discovered that I also have DDX41 ... Unfortunately, that DDX41 mutation puts ... #39;t a lot of cases like mine and DDX41 ... ve done quite a bit of research on DDX41 ... on the forum about what is best for DDX41
Comment
I just saw the pathology report from the 2nd hospital. They noted DDX41 (R525H) (3% vax)...
They noted DDX41 (R525H) (3% vax) as
Comment
As an update, today I went to see the Transplant Team at the Hospital. My MDS...
you take into account that my MDS is ddx41 ... system does not take into account ddx41 ... They feel that if you consider the ddx41 ... they say I'm lucky that I have a ddx41 ... Also, donors are NOT checked for the ddx41
Comment
Hi @rosejen - indeed, DDX41 is not the most common mutation, but there is a sizable...
Hi @rosejen - indeed, DDX41 is not the ... Their observations and conclusions on DDX41 ... This is not the case with germline DDX41 ... You can find an article on DDX41 published ... DDX41 also tends to have a better %
Comment
Hi There, My story very much matches yours! I have a lot to share but may...
Diagnosed with MDS in Aug 2024, DDX41 ... mutation than yours but still in the DDX41 ... opposite course of treatment - that DDX41 ... Also that DDX41 patients seem to have ... There are variants of DDX41 mutations
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