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93 total results
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I was suspected of having Marfans syndrome. My doctor at the Mayo Clinic in Florida ordered...
https://connect.mayoclinic.org/comment/645975/
I was suspected of having Marfans syndrome ... that covers just Ehler's-Danlos syndrome
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I feel the same way. Mine was 3.7 in 2017 and is 4.0 now, so I'm...
Johns Hopkins for genetic testing for Marfan ... Syndrom.
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Please contact The Marfan Foundation. marfan.org. They are the people to help you get to the...
Please contact The Marfan Foundation ... marfan.org. ... EDS is another syndrome that is included
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The genetic panels can be very limited and there are MANY hypermobility syndromes. They will likely...
limited and there are MANY hypermobility syndromes ... likely only check for the obvious: Marfan
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My aortic aneurysm is 4.3 steady last 2 6month scans. But it was 3.9 in 2018...
much info out there, but similar to Marfans ... , Loeys-Dietz syndrome which "is
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