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146 total results
Comment
Hi @rogo It seems like we’ve communicated in the past. I have DIPNECH and lung NETs...
https://connect.mayoclinic.org/comment/1070950/
I have DIPNECH and lung NETs (typical ... Based on symptoms, I’ve had DIPNECH ... greatly improved so was clearly tied to DIPNECH ... 65 and I don’t expect to die from DIPNECH
Discussion: Anyone living long-term with DIPNECH on lungs?
Support Group: Neuroendocrine Tumors (NETs)
Posted: May 19 12:08pm
Comment
I was Dx’d with DIPNECH post op after removal of right middle lobe Oct 2023. PET...
https://connect.mayoclinic.org/comment/1108711/
I was Dx’d with DIPNECH post op after ... The more I read about DIPNECH, the more
Discussion: DIPNECH
Support Group: Neuroendocrine Tumors (NETs)
Posted: Jul 20 9:17am
Comment
It can sure be a frustrating journey to diagnosis, can’t it? Glad they figured yours out...
https://connect.mayoclinic.org/comment/1171342/
out I also had the very, very rare DIPNECH ... Mayo study I found that focused on 59 DIPNECH ... university hospital and they confirmed DIPNECH
Discussion: How many doctors did you see to get to your NETS diagnosis?
Support Group: Neuroendocrine Tumors (NETs)
Posted: 5 days ago