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Hi @ecdhope, welcome. I'm unfamiliar with Erdheim Chester disease, but have been reading about it on...
Have you been involved in clinical trials
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@margefromwi , have you asked your oncologist about adding Cisplatin to the GA mix? The ATM...
MD Anderson in Houston has several clinical ... trials going on that ATM mutants like
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I'm so excited to hear of new approaches coming out of clinical trials! I am following...
hear of new approaches coming out of clinical ... trials!
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Ask for second opinion! Forget being nice..it is your life!! I have heard that a dr....
Have you asked about clinical trials ... Look on NIH website for trials for your
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He had genetic testing and there were no gene mutations identified for clinical trials that would...
were no gene mutations identified for clinical ... trials that would be more beneficial