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106 total results
Discussion
Systemic Mastocytosis: Does anyone have bone pain?
Systemic Mastocytosis: Does anyone have
Discussion
Has anyone in group been diagnosed with monoclonal mastocytosis?
group been diagnosed with monoclonal mastocytosis
Discussion
Are the symptoms in my head? Polycythemia Vera + Mastocytosis (age-23)
Polycythemia Vera + Mastocytosis (age ... Evidence of mastocytosis is NOT identified ... diagnosed me with Advanced Systemic Mastocytosis ... hyperactive mast cells, while Systemic Mastocytosis
Comment
Depending on which area was biopsies and what the biopsies said you may have one of...
you may have one of several types of mastocytosis ... and I highly recommend you join the mastocytosis ... on inspire no matter which form of mastocytosis
Comment
@pricejod, there are a number of members talking about mastocytosis in the group https://connect.mayoclinic.org/search/?search=mastocytosis%20 What symptoms...
a number of members talking about mastocytosis ... search=mastocytosis%20
What symptoms
Comment
Hello @christyann715 - I moved your discussion and combined it with your existing discussion titled, "Systemic...
existing discussion titled, "Systemic Mastocytosis ... connect.mayoclinic.org/discussion/systemic-mastocytosis ... frenchie333 who have all discussed mastocytosis
Comment
Your doctor has pretty much ruled out PV, even with the bone marrow biopsy. Hydroxyurea (HU)...
Ayvakit your doctor recommended for the mastocytosis ... article link I gave you from Mayo for mastocytosis ... the signs and symptoms of systemic mastocytosis ... validity for your doctor to suspect mastocytosis ... enlarged spleen are side effects of the mastocytosis
Comment
What is the name of the FB group? My 23 yr old son has systemic Mastocytosis.
My 23 yr old son has systemic Mastocytosis
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