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52 total results
Discussion
Anyone familiar with DDX41?
Anyone familiar with DDX41? ... They noted DDX41 (R525H) (3% vax) as
Last active: Sep 15, 2025
Discussion
MDS diagnosis with DDX41 Germline and Somatic
MDS diagnosis with DDX41 Germline and ... that I have a low grade MDS with a DDX41
Last active: 1 day ago
Discussion
Does anyone else have AML with ddx41 genetic mutation?
Does anyone else have AML with ddx41 ... it was put off because I have the ddx41
Last active: May 1 1:17pm
Discussion
New diagnosis DDX41 MDS-EB1: what made you start treatment?
New diagnosis DDX41 MDS-EB1: what made ... connect with others who have MDS with a DDX41 ... or both germline and somatic DDX41. ... I have DNMT3A 8%, DDX41 R525H 10%, and ... DDX41 R339 51%.
Last active: Aug 18 8:43am
Comment
Hi @lhick - it is not unusual with DDX41 MDS to watch and wait, but you...
Hi @lhick - it is not unusual with DDX41 ... I was diagnosed with DDX41 AML (which ... most likely developed on the back on DDX41 ... Germline DDX41-driven MDS/AML is typically ... the most common somatic variant for DDX41
Comment
Hi @sherbs. The DDX41 mutation is isn’t well understood but my transplant doctor at Mayo-Rochester is...
The DDX41 mutation is isn’t well understood ... doctors there involved in a study of the DDX41 ... Does anyone else have AML with ddx41 ... connect.mayoclinic.org/discussion/aml-with-ddx41 ... doctor’s input and mentioning the DDX41
Comment
Hi there, I also have a DDX41 mutation. I'm not sure what hospitals you are working...
Hi there, I also have a DDX41 mutation ... experts in the field when it comes to DDX41 ... There are many sub-types of DDX41 mutations
Comment
Welcome @thick. There are a few other members in Connect who also have AML with the...
Connect who also have AML with the DDX41 ... From my understanding the DDX41 mutation ... One of our chats was about DDX41 and ... AML with DDx41 mutation; Anyone else ... If you type in DDX41 mutation in the
Comment
Hi There... Was diagnosed about a month ago with MDS. I also have a DDX41 mutation...
I also have a DDX41 mutation (no other ... truncating and non-truncating variants of DDX41 ... isn't a great deal of data on DDX41