HLHS

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, email HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

PUBLIC PAGE
Thu, Sep 29, 2016 2:41am

Can’t Attend Feel the Beat in Person? Join Us Online!

By Suzanne R. Ferguson, @suzannerferguson

Our Feel the Beat event on October 8 is fast approaching! We are excited to see you all in Rochester, Minnesota. However, we also realize that Minnesota might be a bit far for some of you to travel. That’s why we are making it easier for you to attend from your own home (or any place that you can stream video)! So, here are a couple options for you to choose from. FTB-pic-800x533 Live stream both of our guest speaker panels. From 10:45 a.m. until 11:20 a.m. CT hear from Stacey Lihn, co-founder and president of Sisters by Heart; Meagan Broucek, a 26-year-old HLHSer who shares messages of hope on social media; Christina DeShaw, mother of two HLHS children who blogs about her family’s journey; and Kelly DiMaggio, a 27-year-old HLHSer who has participated in the research at Mayo and is a blogger for the Adult Congenital Heart Association.

Then, from 11:20 a.m. until 12:00 p.m. CT, learn from physicians and researchers directly on how they are transforming the future of HLHS. Joining us will be Dr. Rolf Bodmer from Sanford Burnham Prebys Medical Discovery Institute, Dr. Paul Grossfeld from Rady Children’s Hospital – San Diego, Dr. Timothy Nelson from Mayo Clinic, and Drs. Joseph Rossano and Robert Shaddy, both from the Children’s Hospital of Philadelphia.

Live stream from Facebook. During our afternoon segment from 1:20 p.m. to 2:00 p.m. CT, we will be discussing the genetics of HLHS. Head on over to our Facebook page to catch the Facebook Live broadcast.

And, for those of you who want to ask our researchers and physicians questions, you can do so through the first webcast or on twitter using #FeeltheBeat2016.

If you still haven’t registered for Feel the Beat 2016, do so here. See you on October 8!

 


The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.

 

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