The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a research program with the goal of delaying or preventing heart failure for individuals with HLHS.

To learn more or to participate, please visit our website or contact HLHS@mayo.edu.

Follow the program on Facebook at Mayo Clinic HLHS, on Twitter @MayoClinicHLHS, and on Instagram at MayoClinicHLHS.

Nov 29, 2016

HLHS Health Journal – New App to Keep Track of Health

By Suzanne R. Ferguson, @suzannerferguson

hlhs-health-journal-facebook The Todd and Karen Wanek Family Program is excited to announce a new collaboration with Sisters by Heart and Empatheia to provide the HLHS Health Journal, a new app for individuals and families to help keep track of important daily vitals and improve clinical care.

HLHS Health Journal makes it easier for individuals and parents to keep track of health information including heart rate, nutrition, medication, body weight, and oximetry levels and even provides the ability to take photographs and capture videos. The app provides a unique opportunity to collect, monitor and share information with medical care teams by email and to voluntarily participate in research studies to improve the overall care of patients. By sharing daily HLHS Health Journal entries, individuals are leading the transformation of the future for HLHS by helping to develop standards of care for all HLHS patients. When doctors and researchers know more about the daily lives of all HLHS patients, they can provide them with better treatment options in the future.

HLHS Health Journal can be downloaded to an iPhone through the App Store. While currently only available on an iPhone, the Android version will be coming in the near future. Life beyond the surgeries should not be a guessing game. Lead the transformation of the future - one HLHS Health Journal entry at a time. *Mayo Clinic has a financial interest in Empatheia.

The Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome (HLHS) is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects including HLHS. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies. Contact the program at HLHS@mayo.edu.

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