You've been diagnosed with Erdheim-Chester disease (ECD), now what? Doctors Ronald Go and Gaurav Goyal discuss what comes after receiving your diagnosis of ECD – treatment options, waiting and watching, and how you can find a specialist to best care for your rare and complex disease.
Now that you have learned a bit more about treatment options, how can you work with your provider and find a specialist to determine the best care moving forward and for the long-term? Doctors Ronald Go and Gaurav Goyal discuss some tips below.
Find out more about the ECD Global Alliance.
Liked by Nancy, Volunteer Mentor