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Author: Dacre Knight, MD, MS, FACP
We have posted previously on transcutaneous electrical nerve stimulation (TENS) for hypermobility pain. In this post we will cover the growing research on TENS and transcutaneous auricular Vagus Nerve Stimulation (taVNS). We keep seeing this news pop up everywhere. Even Netflix has a new documentary you may find entertaining: ‘Don’t Die: The Man Who Wants to Live Forever’ Review: Matter Over Mind - The New York Times. It shows the main character, Bryan Johnson, using a vagal nerve stimulator that looks like Nurosym, a device reviewed in an EDS Society Instagram post.
Some comorbidities of EDS and HSD have been gaining attention in this field too. For example, a POTS study does show impressive results. It was not a large sample (n=26), but there is a lot of research on taVNS altogether. Also, some RCTs show significant benefit for treatment of insomnia as well.
Emerging evidence supports the use of TENS for reducing pain in hypermobility by interrupting pain signals, releasing endorphins, improving circulation, and easing muscle tension around unstable joints. We've also seen patients benefit from gammaCore and other forms of taVNS, which may help by activating the parasympathetic nervous system and reducing inflammation and central sensitization. These non-invasive approaches are promising additions to the pain management toolbox for individuals with EDS or HSD. As research continues to grow, consider discussing these options with your healthcare provider.
Feel free to share your experiences in the comments below.
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Where does one place the TENS electrodes to benefit EDS symptoms?