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Thyroid Cancer Support Group

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Discussions (19)
Radioactive iodine or not
Hi all, I'm feeling lost and overwhelmed. I found out in April I have thyroid cancer. Then in May I had a TT and neck...
Support Group: Thyroid Cancer
Last active: Jul 14, 2024
Radioactive iodine ablation
Good day I am due for a 2nd round of RAI treatment. I've read that radiation may cause secondary cancer. What are the chances that...
Support Group: Thyroid Cancer
Last active: Dec 27, 2022
Effects of radioactive iodine (RAI) Treatment
Hey guysThis is a desperate attempt in the hope someone else has been through this.I had 2 rounds of RAI - first in May 2021...
Support Group: Thyroid Cancer
Last active: Jan 31 1:15pm
Radioactive Iodine Scan and/or Treatment? Your Experience?
If you are willing to share, I'm anxious to get straightforward feedback about any experience you may have had with a radioactive iodine or with...
Support Group: Thyroid Cancer
Last active: Jan 3 8:14am
Is Radioactive Iodine treatment used for all types of Thyroid Cancer?
Quick question..I haven’t received a solidified diagnosis yet as to which kind of thyroid cancer I have yet but does everyone go through radioactive iodine...
Support Group: Thyroid Cancer
Last active: May 20, 2024
Anyone have multiple rounds of radioactive iodine (RAI)?
I had a left neck dissection 3/2023, then thyroidectomy and partial central dissection 4/2023. 11/40 positive lymph nodes w/ positive margins so I had 150mci...
Support Group: Thyroid Cancer
Last active: Nov 20, 2023
1131 radioactive iodine pill: How did you manage it?
i would like to hear from anyone who has had the radioactive iodine pill and how they endured it. just the thought bothers me. my...
Support Group: Thyroid Cancer
Last active: Jun 26, 2023
How did Radioactive Iodine (RAI) therapy make you feel? Experiences?
I just had my thyroid removed due to a large cancerous tumor. I am fairly sure that my physicians will strongly recommend RAI for at...
Support Group: Thyroid Cancer
Last active: May 17 5:03pm
Pap follicular- help with treatment options
Got diagnosed with Papilary follicular going to have my whole thyroid and left lymp node chain removed it was only detected in one lymph node....
Support Group: Thyroid Cancer
Last active: Feb 7, 2024
Anyone have any questions about the RAI treatment?
As a thyroid cancer volunteer I have answered many questions about the radioactive iodine treatment so anyone has any questions I’d be happy to answer.
Support Group: Thyroid Cancer
Last active: Sep 24, 2025
Thyroglobulin by RIA test results
Hello! I am a 62 female who was diagnosed with Stage 3 N1 Papillary Thyroid cancer. I have had a total thyroid removal last July...
Support Group: Thyroid Cancer
Last active: May 27, 2024
thyroglobulin and anti-thyroglobulin levels 4 months after RAI
My 18-year-old daughter is 7 months post thyroidectomy (many lymph nodes included) and 4 months post RAI treatment. Her TSH is 0.29 mU/L, thyroglobulin 0.6...
Support Group: Thyroid Cancer
Last active: Oct 28, 2025
Anyone taking liothyronine 5mcg? What side effects do you have?
hello everyone, i've been through my 2 surgeries for removal of the thyroid. had the radioactive iodine, the high dose. had the full body scan....
Support Group: Thyroid Cancer
Last active: Jun 11, 2023
Thyroglobulin rising post-thyroidectomy
Hello, all. I'm really not sure whether to be concerned about this or not. (Sorry if this is a question asked on here a million...
Support Group: Thyroid Cancer
Last active: Nov 26, 2025
Weird symptoms 10 years post surgery/radiation
I am 44 years old. I had a total thyroidectomy and radioactive iodine 10 years ago. About 5 years ago, I started having symptoms (abdominal...
Support Group: Thyroid Cancer
Last active: Jun 28 1:28am
Ultrasound = TR5; biopsy/surgery questions
Hello Thyroid Group! This is my fist post. I had an incidental discovery of a 1cm nodule in a carotid artery ultrasound after an episode...
Support Group: Thyroid Cancer
Last active: Mar 19, 2023
Tall Cell Subtype, maybe RAI avid, TG levels are extremely high
Hi! My mother (58 years old) had a total thyroidectomy in January 2023. We didn't know it was cancer before the surgery, and we only...
Support Group: Thyroid Cancer
Last active: Sep 13, 2025
Thyroid cancer, heart problems & finding right thyroid med dose
Hello everyone. I would like to share my experience and ask if anyone has gone through something similar.I had a total thyroidectomy in 2021 due...
Support Group: Thyroid Cancer
Last active: Jul 28 8:02am
I am looking for options post hemithryoidectomy suspicious lymph node
I recently had a hemithyroidectomy after deliberating about active surveillance, but because of the proximity of the papillary nodule near the laryngeal nerve, I opted...
Support Group: Thyroid Cancer
Last active: Jul 20 8:47pm