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Thyroid Cancer Support Group

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Discussions (24)
Radioactive iodine or not
Hi all, I'm feeling lost and overwhelmed. I found out in April I have thyroid cancer. Then in May I had a TT and neck...
Support Group: Thyroid Cancer
Last active: Jul 14, 2024
Radioactive iodine ablation
Good day I am due for a 2nd round of RAI treatment. I've read that radiation may cause secondary cancer. What are the chances that...
Support Group: Thyroid Cancer
Last active: Dec 27, 2022
Effects of radioactive iodine (RAI) Treatment
Hey guysThis is a desperate attempt in the hope someone else has been through this.I had 2 rounds of RAI - first in May 2021...
Support Group: Thyroid Cancer
Last active: Jan 9, 2024
Radioactive Iodine Scan and/or Treatment? Your Experience?
If you are willing to share, I'm anxious to get straightforward feedback about any experience you may have had with a radioactive iodine or with...
Support Group: Thyroid Cancer
Last active: Jun 14, 2024
Anyone have multiple rounds of radioactive iodine (RAI)?
I had a left neck dissection 3/2023, then thyroidectomy and partial central dissection 4/2023. 11/40 positive lymph nodes w/ positive margins so I had 150mci...
Support Group: Thyroid Cancer
Last active: Nov 20, 2023
Is Radioactive Iodine treatment used for all types of Thyroid Cancer?
Quick question..I haven’t received a solidified diagnosis yet as to which kind of thyroid cancer I have yet but does everyone go through radioactive iodine...
Support Group: Thyroid Cancer
Last active: May 20, 2024
1131 radioactive iodine pill: How did you manage it?
i would like to hear from anyone who has had the radioactive iodine pill and how they endured it. just the thought bothers me. my...
Support Group: Thyroid Cancer
Last active: Jun 26, 2023
Anyone have radiation iodine (RAI) Therapy after Thyroid Lobectomy?
Has anyone received RAI Therapy after only having a thyroid LOBECTOMY?From my research it's not as affective when you have a remaining lobe left. The...
Support Group: Thyroid Cancer
Last active: Feb 16 12:20am
Tall cell papillary thyroid cancer: What treatments did you have?
Anyone else diagnosed with tall cell papillary thyroid cancer? Did you have iodine therapy??
Support Group: Thyroid Cancer
Last active: Mar 14, 2024
Pap follicular- help with treatment options
Got diagnosed with Papilary follicular going to have my whole thyroid and left lymp node chain removed it was only detected in one lymph node....
Support Group: Thyroid Cancer
Last active: Feb 7, 2024
Anyone have any questions about the RAI treatment?
As a thyroid cancer volunteer I have answered many questions about the radioactive iodine treatment so anyone has any questions I’d be happy to answer.
Support Group: Thyroid Cancer
Last active: Sep 24 4:38pm
8.530 TSH and 2.8 T3 free, and 1.2 T4 free
This looks like the best place to ask. My TSH is high but the T3 and T4 are normal. One doctor told me to get...
Support Group: Thyroid Cancer
Last active: 1 day ago
Thyroglobulin by RIA test results
Hello! I am a 62 female who was diagnosed with Stage 3 N1 Papillary Thyroid cancer. I have had a total thyroid removal last July...
Support Group: Thyroid Cancer
Last active: May 27, 2024
Lung nodules from thyroid cancer found 4 years after thyroidectomy
Hello, I had a thyroidectomy 4 years ago with multiple lymph nodes also removed back in 2021. My endocrinologist had me do a PET scan...
Support Group: Thyroid Cancer
Last active: Feb 20 7:07pm
Poorly differentiated thyroid cancer with BRAF and TERT mutations.
My mother was diagnosed with Poorly Differentiated Thyroid Carcinoma in November 2024. She got a total thyroidectomy that was complicated by an esophageal perforation and...
Support Group: Thyroid Cancer
Last active: Feb 18 10:53pm
thyroglobulin and anti-thyroglobulin levels 4 months after RAI
My 18-year-old daughter is 7 months post thyroidectomy (many lymph nodes included) and 4 months post RAI treatment. Her TSH is 0.29 mU/L, thyroglobulin 0.6...
Support Group: Thyroid Cancer
Last active: Oct 28 7:41pm
RAI after total thyroidectomy, and postpartum
Hi everyone. I’m recently postpartum and while pregnant I was diagnosed with papillary thyroid cancer. I underwent a total thyroidectomy with right neck dissection a...
Support Group: Thyroid Cancer
Last active: Aug 17 8:14am
Thyroglobulin rising post-thyroidectomy
Hello, all. I'm really not sure whether to be concerned about this or not. (Sorry if this is a question asked on here a million...
Support Group: Thyroid Cancer
Last active: Nov 26 2:26pm
Papillary Thyroid Cancer post surgery - next steps
Hi all, I was diagnosed with papillary thyroid cancer mid June and had a modified radical bilateral neck dissection with total thyroidectomy July 9th. 17...
Support Group: Thyroid Cancer
Last active: Jul 28, 2024
Anyone taking liothyronine 5mcg? What side effects do you have?
hello everyone, i've been through my 2 surgeries for removal of the thyroid. had the radioactive iodine, the high dose. had the full body scan....
Support Group: Thyroid Cancer
Last active: Jun 11, 2023