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Thyroid Cancer Support Group

Public Support Group
153 total results
Discussions (19)
Radioactive iodine or not
Hi all, I'm feeling lost and overwhelmed. I found out in April I have thyroid cancer. Then in May I had a TT and neck...
Support Group: Thyroid Cancer
Last active: Jul 14, 2024
Radioactive iodine ablation
Good day I am due for a 2nd round of RAI treatment. I've read that radiation may cause secondary cancer. What are the chances that...
Support Group: Thyroid Cancer
Last active: Dec 27, 2022
Effects of radioactive iodine (RAI) Treatment
Hey guysThis is a desperate attempt in the hope someone else has been through this.I had 2 rounds of RAI - first in May 2021...
Support Group: Thyroid Cancer
Last active: Jan 9, 2024
Radioactive Iodine Scan and/or Treatment? Your Experience?
If you are willing to share, I'm anxious to get straightforward feedback about any experience you may have had with a radioactive iodine or with...
Support Group: Thyroid Cancer
Last active: Jun 14, 2024
Anyone have multiple rounds of radioactive iodine (RAI)?
I had a left neck dissection 3/2023, then thyroidectomy and partial central dissection 4/2023. 11/40 positive lymph nodes w/ positive margins so I had 150mci...
Support Group: Thyroid Cancer
Last active: Nov 20, 2023
Is Radioactive Iodine treatment used for all types of Thyroid Cancer?
Quick question..I haven’t received a solidified diagnosis yet as to which kind of thyroid cancer I have yet but does everyone go through radioactive iodine...
Support Group: Thyroid Cancer
Last active: May 20, 2024
1131 radioactive iodine pill: How did you manage it?
i would like to hear from anyone who has had the radioactive iodine pill and how they endured it. just the thought bothers me. my...
Support Group: Thyroid Cancer
Last active: Jun 26, 2023
Anyone have radiation iodine (RAI) Therapy after Thyroid Lobectomy?
Has anyone received RAI Therapy after only having a thyroid LOBECTOMY?From my research it's not as affective when you have a remaining lobe left. The...
Support Group: Thyroid Cancer
Last active: Feb 16 12:20am
Tall cell papillary thyroid cancer: What treatments did you have?
Anyone else diagnosed with tall cell papillary thyroid cancer? Did you have iodine therapy??
Support Group: Thyroid Cancer
Last active: Mar 14, 2024
Pap follicular- help with treatment options
Got diagnosed with Papilary follicular going to have my whole thyroid and left lymp node chain removed it was only detected in one lymph node....
Support Group: Thyroid Cancer
Last active: Feb 7, 2024
Thyroglobulin by RIA test results
Hello! I am a 62 female who was diagnosed with Stage 3 N1 Papillary Thyroid cancer. I have had a total thyroid removal last July...
Support Group: Thyroid Cancer
Last active: May 27, 2024
Lung nodules from thyroid cancer found 4 years after thyroidectomy
Hello, I had a thyroidectomy 4 years ago with multiple lymph nodes also removed back in 2021. My endocrinologist had me do a PET scan...
Support Group: Thyroid Cancer
Last active: Feb 20 7:07pm
Poorly differentiated thyroid cancer with BRAF and TERT mutations.
My mother was diagnosed with Poorly Differentiated Thyroid Carcinoma in November 2024. She got a total thyroidectomy that was complicated by an esophageal perforation and...
Support Group: Thyroid Cancer
Last active: Feb 18 10:53pm
Papillary Thyroid Cancer post surgery - next steps
Hi all, I was diagnosed with papillary thyroid cancer mid June and had a modified radical bilateral neck dissection with total thyroidectomy July 9th. 17...
Support Group: Thyroid Cancer
Last active: Jul 28, 2024
Weird symptoms 10 years post surgery/radiation
I am 44 years old. I had a total thyroidectomy and radioactive iodine 10 years ago. About 5 years ago, I started having symptoms (abdominal...
Support Group: Thyroid Cancer
Last active: Nov 26, 2022
Thyroglobulin rising post-thyroidectomy
Hello, all. I'm really not sure whether to be concerned about this or not. (Sorry if this is a question asked on here a million...
Support Group: Thyroid Cancer
Last active: Jan 17 9:35am
Anyone taking liothyronine 5mcg? What side effects do you have?
hello everyone, i've been through my 2 surgeries for removal of the thyroid. had the radioactive iodine, the high dose. had the full body scan....
Support Group: Thyroid Cancer
Last active: Jun 11, 2023
Ultrasound = TR5; biopsy/surgery questions
Hello Thyroid Group! This is my fist post. I had an incidental discovery of a 1cm nodule in a carotid artery ultrasound after an episode...
Support Group: Thyroid Cancer
Last active: Mar 19, 2023
Tall Cell Subtype, maybe RAI avid, TG levels are extremely high
Hi! My mother (58 years old) had a total thyroidectomy in January 2023. We didn't know it was cancer before the surgery, and we only...
Support Group: Thyroid Cancer
Last active: May 20, 2024